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People with Disabilities in India: From Commitment to Outcomes

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NGOs, both quantitative and qualitative, and <strong>in</strong>teractions <strong>with</strong> the <strong>India</strong>n disability community<br />

and officials deal<strong>in</strong>g <strong>with</strong> disability matters <strong>in</strong> various sec<strong>to</strong>rs.<br />

4. The report concludes that it will take a multi-faceted approach for disabled people<br />

<strong>to</strong> realize their full <strong>in</strong>dividual potential and <strong>to</strong> maximize their social and economic<br />

contribution <strong>to</strong> society. Strengthen<strong>in</strong>g preventive and curative health care services, ensur<strong>in</strong>g<br />

<strong>in</strong>clusion <strong>in</strong> education, and <strong>in</strong>creas<strong>in</strong>g the participation of disabled <strong>in</strong> the workplace will be<br />

essential. Also critical will be improvements <strong>in</strong> available <strong>in</strong>formation on disability and reduc<strong>in</strong>g<br />

stigma about disability. Efforts <strong>to</strong> m<strong>in</strong>imize disability (e.g. immunization, early detection, better<br />

outreach for rehabilitation) will be critical, but more effective efforts <strong>to</strong> ensure <strong>in</strong>clusion of<br />

disabled <strong>in</strong> basic services (e.g. <strong>in</strong>clusive education, health, social protection programs) will also<br />

be required. In some areas, this will require more public resources, but the fiscal impacts of even<br />

significant proportional <strong>in</strong>creases will be negligible and fiscally supportable.<br />

5. Although improvements are needed <strong>in</strong> a number of areas, <strong>in</strong>terventions will need <strong>to</strong><br />

be prioritized and sequenced if the agenda for promotion <strong>in</strong>clusion of people <strong>with</strong><br />

disabilities is <strong>to</strong> be realized. <strong>India</strong>’s implementation capacity is generally weak <strong>in</strong> a number of<br />

areas of service delivery which are most critical <strong>to</strong> improv<strong>in</strong>g the situation of disabled people, and<br />

it is not realistic <strong>to</strong> expect that all the actions needed by many public and non-public ac<strong>to</strong>rs can be<br />

taken all at once. It is important therefore <strong>to</strong> decide the most critical <strong>in</strong>terventions and “get the<br />

basics right” first. Obvious priorities <strong>in</strong>clude: (i) preventive care, both for mothers through<br />

nutritional <strong>in</strong>terventions, and <strong>in</strong>fants through both nutrition and basic immunization coverage; (ii)<br />

identify<strong>in</strong>g people <strong>with</strong> disabilities as soon as possible after onset. The system needs major<br />

improvements <strong>in</strong> this most basic function; (iii) major improvements <strong>in</strong> early <strong>in</strong>tervention, which<br />

can cost effectively transform the lives of disabled people and their families, and their<br />

communities; and (iv) expand<strong>in</strong>g the under-developed efforts <strong>to</strong> improve societal attitudes <strong>to</strong><br />

people <strong>with</strong> disabilities, rely<strong>in</strong>g on public-private partnerships that build on successful models<br />

already operat<strong>in</strong>g <strong>in</strong> <strong>India</strong>.<br />

6. The study f<strong>in</strong>ds that it is neither possible nor desirable for the public sec<strong>to</strong>r <strong>to</strong> “do it<br />

all”. Operationaliz<strong>in</strong>g this <strong>in</strong>sight will require stronger coord<strong>in</strong>ation of efforts <strong>with</strong><strong>in</strong> the public<br />

sec<strong>to</strong>r, greater engagement between public and non-public ac<strong>to</strong>rs, and mobilization of ac<strong>to</strong>rs <strong>in</strong><br />

local governments and community <strong>in</strong>stitutions <strong>in</strong> order <strong>to</strong> address a variety of market,<br />

government and collective action failures.<br />

7. The report also br<strong>in</strong>gs out the heterogeneity of the situation of and policy options<br />

for different groups of disabled people <strong>in</strong> <strong>India</strong>. There are substantial differences <strong>in</strong> socioeconomic<br />

outcomes, social stigma, and access <strong>to</strong> services by disability type, <strong>with</strong> those <strong>with</strong><br />

mental illness and mental retardation <strong>in</strong> a particularly poor position. As <strong>with</strong> the general<br />

population, there are also major urban/rural differences <strong>in</strong> outcomes, though the policy<br />

implications differ <strong>in</strong> some cases from those of the general population. Gender, class and<br />

regional variations are also significant <strong>in</strong> many cases. While the report therefore attempts an<br />

overview of the situation of people <strong>with</strong> disabilities <strong>in</strong> <strong>India</strong>, it is also important <strong>to</strong> stress such<br />

heterogeneity <strong>in</strong> order <strong>to</strong> explore implications for public policy. The ma<strong>in</strong> f<strong>in</strong>d<strong>in</strong>gs of the report<br />

and policy options for address<strong>in</strong>g disability are summarized below.<br />

II. Socio-economic Profile of <strong>People</strong> <strong>with</strong> <strong>Disabilities</strong> (Chapter 1)<br />

8. While official estimates of disability are low (around 2 percent), alternative<br />

estimates us<strong>in</strong>g better methods and more <strong>in</strong>clusive def<strong>in</strong>itions suggest a higher <strong>in</strong>cidence of<br />

disability (4-8 percent). The 2001 census found 21.91 million PWD (2.13 percent of the<br />

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