People with Disabilities in India: From Commitment to Outcomes
People with Disabilities in India: From Commitment to Outcomes
People with Disabilities in India: From Commitment to Outcomes
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TQ probe is a modified version of the Ten Questions used <strong>in</strong> the orig<strong>in</strong>al pilot study. As before, it is a short<br />
questionnaire, <strong>in</strong> a Yes/No format consist<strong>in</strong>g of 11 questions <strong>with</strong> probes concern<strong>in</strong>g the child’s vision,<br />
hear<strong>in</strong>g, movement, and seizure, and six concern<strong>in</strong>g cognitive competence, and one extra question<br />
regard<strong>in</strong>g any other serious health problems. Each question was supplemented <strong>with</strong> additional one or more<br />
questions <strong>to</strong> further probe <strong>in</strong><strong>to</strong> the problem detected. The probe questions were only asked if a problem was<br />
reported <strong>in</strong> response <strong>to</strong> the ma<strong>in</strong> question. For each 2-9 year old child listed and still liv<strong>in</strong>g <strong>in</strong> a household,<br />
one TQ probe was completed. The two stage methodology is now be<strong>in</strong>g piloted <strong>in</strong> seven countries across<br />
four regions <strong>in</strong> the OECD/World Bank Disability Screen<strong>in</strong>g Initiative.<br />
• Vietnam and Indonesia <strong>in</strong> East Asia<br />
• Bangladesh <strong>in</strong> South Asia<br />
• Ethiopia and Kenya <strong>in</strong> Africa<br />
• Panama and Mexico <strong>in</strong> Lat<strong>in</strong> America and Caribbean<br />
On obvious question on such a method relates <strong>to</strong> cost. Experience <strong>in</strong> pilot countries (e.g. <strong>in</strong> recently<br />
completed pilot <strong>in</strong> Ethiopia) <strong>with</strong> TQ probe <strong>in</strong>dicates a need for tra<strong>in</strong><strong>in</strong>g and capacity build<strong>in</strong>g of<br />
community workers <strong>in</strong> the pilot phase, but also that local teams have became rapidly self-sufficient.<br />
Source: OECD and World Bank staff<br />
3.48. (c) Physical access <strong>to</strong> health facilities: Aga<strong>in</strong>, this rema<strong>in</strong>s an under-researched<br />
area, though there is an <strong>in</strong>creas<strong>in</strong>g number of NGO access audits on facilities which confirm<br />
significant issues <strong>in</strong> physical access for PWD. The courts have also been active <strong>in</strong> certa<strong>in</strong> cases<br />
<strong>in</strong> promot<strong>in</strong>g access of PWD <strong>to</strong> basic services. 81 As noted, problems of immediate physical<br />
access <strong>to</strong> PHCs were not identified by PWD <strong>in</strong> the UP and TN survey as an issue. However,<br />
around on fifth of respondents identified accessible transport as a major issue, <strong>in</strong>dicat<strong>in</strong>g that<br />
“door <strong>to</strong> door” access rema<strong>in</strong>s an issue for health services. In addition, results from other states<br />
<strong>in</strong>dicate that physical access is <strong>in</strong>deed a significant problem at higher levels of the system. In<br />
addition, evidence from Orissa for example suggests that more complex facilities like district<br />
hospitals have serious access issues for PWD, <strong>with</strong> for example the ma<strong>in</strong> entrance <strong>in</strong> around half<br />
the hospitals and <strong>to</strong>ilets <strong>in</strong> around 90 percent of hospitals not be<strong>in</strong>g accessible. 82<br />
3.49. (d) The number of rehabilitation staff available is <strong>in</strong>adequate. Accord<strong>in</strong>g <strong>to</strong> WHO’s<br />
guidel<strong>in</strong>es at least one tra<strong>in</strong>ed P&O (prosthetics and orthotic) personnel is required <strong>to</strong> meet the<br />
needs of 1000 people <strong>in</strong> need. In <strong>India</strong>, there are estimated <strong>to</strong> be less than 700 <strong>in</strong> <strong>to</strong>tal, aga<strong>in</strong>st a<br />
need of over 10, 000. The number of P&O facilities is also low. In <strong>India</strong> there are approximately<br />
500 workshops, and 80 percent of these services are located <strong>in</strong> the major cities.<br />
3.50. (e) A poor referral system which doesn’t fully utilize the expertise at the higher<br />
levels of the system. At present there are a collection of disparate services between health and<br />
rehabilitation and there is a need <strong>to</strong> develop a supply cha<strong>in</strong> from PHCs <strong>with</strong> community<br />
participation <strong>to</strong> national level medical and rehabilitation services. There are however, promis<strong>in</strong>g<br />
<strong>in</strong>itiatives such as that <strong>in</strong> 9 districts of Gujarat, which aims <strong>to</strong>: (i) enhance knowledge and skills of<br />
primary health professionals <strong>in</strong> disability identification and prevention so that they are able <strong>to</strong><br />
identify persons <strong>with</strong> disabilities and persons at risk of develop<strong>in</strong>g a disability and refer them for<br />
<strong>in</strong>tervention; and (ii) improve coord<strong>in</strong>ation between government health providers at different<br />
levels through develop<strong>in</strong>g mechanisms for referral, treatment and follow-up ensur<strong>in</strong>g improved<br />
access and cont<strong>in</strong>uity of service.<br />
81 Disability Law Network (2005).<br />
82 Swabhiman (2004).<br />
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