People with Disabilities in India: From Commitment to Outcomes

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unusual significance. The role of NGOs is also important to consider in light of the relative obligations of the state and civil society, with a number of practitioners in India seeing an overreliance on NGOs in the disability sector. 195 A positive feature of the 2006 National Policy is that it gives very clear recognition of the role of NGOs in service delivery, and encourages their greater future involvement in policy development and other areas. 7.36 NGOs working in the field of disability are indispensable to supplement and support the efforts of the state in cases where the market fails to be a reliable or accessible source of services. As one would expect, disability NGOs divide along several lines: 196 • place of operation. There is a strong urban bias in disability NGO presence and activities. There is also a strong state-wise concentration of disability NGOs, with a generally stronger presence in southern states. In addition, states where NGOs are very active are not necessarily ones with a concentration of disability NGOs (e.g. Rajasthan). • area of focus. While there has traditionally been a strong focus on education and rehabilitation activities, a wider range of issues are being taken up by disability NGOs (e.g. access to justice; participation in voting). This reflects to some extent a difference between disability NGOs with a service delivery focus and those with an advocacy focus. • philosophical tradition: As in the NGO movement more broadly, disability NGOs reflect a variety of traditions, including Gandhian, Christian, Secular, Hindu, and Muslim. 197 In some sectors, some traditions have had strong presence (e.g. Christians in special education). • the large majority of disability NGOs have been on a disability-specific basis, with crossdisability NGOs and networks only emerging in the last decade. To date, there has been a higher share of NGOs providing services for the blind and hearing impaired than for persons with locomotor disabilities and mental retardation. NGOs dealing specifically with mental illness continue to be very limited. One result of the disability-specific focus of NGOs has been that until recently the sector often did not speak with one voice. 198 However, Tamil Nadu shows that this fragmented tradition is being overcome in some states. 7.37 A recent sample survey of the non-profit sector in India puts the total number of NGOs at 1.2 million. They employ nearly 19.4 million persons, many of whom work on a voluntary basis. 199 There are no comprehensive statistics on the numbers of NGOs that work in the disability sector, but the numbers of rganizations known to be working in disability has increased. Data from the mid-1990s suggest that there were more than 2000 NGOs working in the area of disability. 200 More recently, the Delhi DRC reports 5,231 such NGOs. It is not possible to identify the number of rganizations working with different types of disabilities. 7.38 According to MSJE, in 2003-2004, grant-in-aid funds of just over Rs. 71 crore were provided to 657 voluntary organizations and benefited 217,000 PWD. 201 During 2004-05, the amount was reduced to Rs.67 crores for 700 voluntary organizations. The majority of funds were allocated to residential and non-residential schools for different categories of disabilities. There were distinct differences in government allocations to NGOs between states, which are not 195 See, e.g. Rao (2004). 196 Erb (2002), NCPEDP (1998) and Officer (2005). The term “disability NGO” in the following refers both to NGOs dealing only with disability and general NGOs which include a disability focus in their work. 197 Harris-White, op.cit., notes that Hindu religious organizations – with few but notable exceptions such as Rama Krishnan Mission and Seva-in Action – have failed to mobilize disability NGO activity, in contrast to groups such as Jains and Parsees. 198 Lang (2000). 199 Srivastava and Tandon (2005), which is a useful empirical source on the NGO movement in India. 200 NCPEDP (1998). 201 MSJE (2005). -137-
systematically related to the number of PWD in the state or their share in the national total PWD population. 202 There is a need to look at how funds can be allocated across states to ensure greater equity in NGO and PWD coverage. In addition, NGOS addressing disability issues appear less reliant on government funding when compared to the entire non-profit sector in India, with an estimated one quarter of disability NGO funding from Government and around 32.4 percent of general NGO revenues from Government funding. Box 7.4: Disability For a in Tamil Nadu There is evidence of good collaboration amongst NGOS and between NGOS and the state in Tamil Nadu: Vellore District Disability Network: 12 disability related rganizations meet quarterly to share resources for the rehabilitation of persons with disabilities. The District Disability Rehabilitation Officer is present and occasionally the Disability Commissioner Disability Forum: A disability forum of 23 NGOs (disability specific and development) is facilitated by the Organisation for Development Action (ODA). This forum shares information, knowledge and refers between NGOs. There is reluctance by some rganizations in this forum to lobby for change as they receive government support and were concerned about what impact their involvement may have on access to state resources. Hence issues identified in this forum are used for lobbying the government directly by ODA and other interested parties. In August 2005, a State Resource Training Centre for PWD was set up in Chennai under the National Programme for Rehabilitation of Persons with Disabilities (NPRPD). Different NGOs with disability specific expertise are providing their voluntary services for training of persons with disabilities. The centre will showcase good NGOS practices. A weekly radio programme call Thiramaiyin Thisayil (In the Direction of Your Abilities) is broadcast by Ability Foundation in association with all-India radio. It focuses on issues and policies which affect the rights of PWD. Other NGOs also use the show as a vehicle for spreading information on vocational training programmes, and to publicize events such as job fairs. Letters and responses from remote rural towns of TN indicate significant penetration. Source: Officer (2005). 7.39 Disability NGOs operate with many different methods and goals and hence with diverse actors. Examples of interactions among NGOs and between NGOs and the public sector in Tamil Nadu are presented in Box 7.4. It is not possible to characterize these patterns of interaction in a comprehensive manner, but general patterns can be seen, including: • links between the Government and the non-government sectors. Many NGOs have links with public agencies, predominantly for direct contracting out of services, technical assistance and training. A common source of interaction is with RCI, with NGOs operating special educators’ courses for teachers, though numerous other examples exist in the fields of vocational training and rehabilitation. While results have in many cases been positive, there remain concerns about weak monitoring of NGO performance and hence accountability for use of public funds. 203 However, very few NGOs have had direct influence on disability policy development. There are certain key forums to which select NGOS are invited, e.g. five NGOs working with different disability groups are also involved in each of the central 202 See Officer, op.cit. 203 CAG reports that MJSE blacklisted a number of NGOs which had proved to be fake/non-existent, predominantly in UP. While this is a positive step, it also reflects poorly on the vetting procedure of state departments which had proposed the NGOs for funding. See CAG, op.cit. -138-
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PEOPLE WITH DISABILITIES IN INDIA:
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Abbreviations and Acronyms ADL ANM
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Table of Contents EXECUTIVE SUMMARY
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Figure 5.3: Employment rates of PWD
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Box 5.4: A Jobs Fair Bringing Emplo
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NGOs, both quantitative and qualita
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Out of school rates for CWD are hig
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needs to respond more proactively t
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government strategies for promoting
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Safety Net Schemes 33. Safety nets
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40. In early 2006, a National Polic
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should move to implement the Act’
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54. Addressing current and future p
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disability SHGs, which has been sho
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have comparative advantage is putti
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extent of individual functioning du
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converting income into well-being o
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21. In light of the challenges that
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not be explained by this. The major
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Table 1.2: Disability Prevalence ra
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The share of disability impact due
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• It is also important to recall
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1.17. A second issue with obvious i
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Figure 1.9: Employment rates of PWD
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Box 1.2: Census questions on disabi
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Box 2.1: Disability in Indian mytho
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• overall, there is low acceptanc
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Table 2.2: Positive perceptions of
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different areas, as for example the
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governmental sectors drive home the
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Box 2.4: Raising awareness and chan
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• onset of mental disabilities is
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3.9. Locomotor disability is the ca
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B. Prevention of Disability 3.15. A
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3.20. The NBCP, like other vertical
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almost three times more likely to h
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PWDs. The scheme operates in 11 cen
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Figure 3.4: Proportion of disabled
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Table 3.11: Type of Service Accesse
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Urban 1.46 North 1.40 South 1.10 Ea
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Box 3.1: WHO’s “Ten Question Pl
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3.51. (f) Financial barriers to acc
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including for road accidents, and e
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A. Indian and International Policy
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4.9. A specific feature of SSA is a
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• significant gender differential
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Out of school rates for CWD are hig
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Only around 5 percent of children w
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4.30. (b) Financial performance of
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only factor contributing to both po
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The numbers of CWD identified by SS
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IE training options. The impacts of
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part of the authorities to increase
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well beyond the needs of CWD alone.
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performance in the schooling system
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DLROs has contributed to West Benga
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CHAPTER 5: EMPLOYMENT OF PERSONS WI
Page 115 and 116: atios, while others such as J&K, Bi
Page 117 and 118: Figure 5.8: Employment rates over t
Page 119 and 120: • the relative wages of PWD to no
Page 121 and 122: of age and disability status. Multi
Page 123 and 124: 5.23. For males in the survey, a de
Page 125 and 126: equirement of specific post identif
Page 127 and 128: 5.34. Nonetheless, there has been u
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Page 131 and 132: exchanges are in any event servicin
Page 133 and 134: Source: NHFDC website reporting cum
Page 135 and 136: Box 5.5: Good practice in NGO skill
Page 137 and 138: D. Conclusions and recommendations
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Page 143 and 144: Table 6.4: Coverage of disability s
Page 145 and 146: Table 6.6: Contributions and benefi
Page 147 and 148: 6.24. Easily the largest scheme for
Page 149 and 150: 6.35. While the design of the insur
Page 151 and 152: people. The transfer under NOAPS wa
Page 153 and 154: 7.4 (a) The Persons with Disabiliti
Page 155 and 156: 7.8 (ii) Sectoral policy issues in
Page 157 and 158: • in the area of education, the p
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Page 165: Table 7.2: Institutions providing b
Page 169 and 170: • collaboration between NGOs and
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Page 173 and 174: CHAPTER 8: ACCESS FOR PEOPLE WITH D
Page 175 and 176: Box 8.1: International and regional
Page 177 and 178: The comparison of institutional arr
Page 179 and 180: laudable, there are concerns that m
Page 181 and 182: ANNEX 1: COMPARING THE INCOMPARABLE
Page 183 and 184: of prevalence estimates across the
Page 185 and 186: person will be treated as having
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