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People with Disabilities in India: From Commitment to Outcomes

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40. In early 2006, a National Policy on Persons <strong>with</strong> <strong>Disabilities</strong> was approved by GoI.<br />

While a welcome measure, it could do significantly more <strong>to</strong> propose concrete strategies for<br />

realiz<strong>in</strong>g the entitlements of people <strong>with</strong> disabilities. In addition, there cont<strong>in</strong>ues <strong>to</strong> be very<br />

limited reference <strong>to</strong> the role of people <strong>with</strong> disabilities themselves as active participants <strong>in</strong><br />

realiz<strong>in</strong>g the objectives of policy. However, despite the overall Policy, sec<strong>to</strong>ral policy has<br />

progressed significantly <strong>in</strong> education, <strong>with</strong> <strong>in</strong>clusion of CWD <strong>in</strong><strong>to</strong> ma<strong>in</strong>stream education<br />

<strong>in</strong>creas<strong>in</strong>gly accepted <strong>in</strong> recent years. At the state level, there rema<strong>in</strong>s a basic question <strong>in</strong> many<br />

states of limited political buy-<strong>in</strong> by many states <strong>to</strong> the commitments of the PWD Act. To date, the<br />

only states that have draft disability policies are Chhattisgarh and Karnataka. The latter largely<br />

mirrors the structure and major provisions of the PWD Act, <strong>with</strong>out <strong>in</strong> most areas provid<strong>in</strong>g more<br />

specific commitments or implementation guidance. In contrast, the Chhattisgarh draft state<br />

disability policy can be considered “best practice” <strong>with</strong><strong>in</strong> <strong>India</strong>, and could provide a model for<br />

future national and state-level policy development (see Chapter 7).<br />

41. There is limited awareness of the entitlements of the Act—a key constra<strong>in</strong>t <strong>in</strong><br />

implementation. 6 A key <strong>in</strong>gredient of effective implementation is awareness of entitlements.<br />

Evidence from various sources <strong>in</strong>dicates that awareness of the PWD Act rema<strong>in</strong>s very low, and<br />

lower among households <strong>with</strong> PWDs than others. While awareness of specific entitlements is<br />

higher, it rema<strong>in</strong>s low for most benefits (see Figure 3). In addition, for those PWD who are aware<br />

of benefits/services, a substantial share of PWD report difficulties <strong>in</strong> access<strong>in</strong>g them. Very little<br />

empirical evidence exists of the <strong>in</strong>teractions of PWD <strong>with</strong> the official <strong>in</strong>stitutional network, but<br />

this study confirms that around 43 percent of those eligible <strong>in</strong> UP and TN had not received any<br />

benefits or services. Three ma<strong>in</strong> challenges <strong>in</strong> receiv<strong>in</strong>g benefits and services <strong>in</strong>clude: (i)<br />

physical access problems; (ii) problems <strong>with</strong> procedures and officials; and (iii) communication<br />

difficulties for disabled people <strong>in</strong> approach<strong>in</strong>g providers. In addition, the <strong>in</strong>stitutions from which<br />

PWD most often reported receiv<strong>in</strong>g services and benefits were at district level, though panchayats<br />

were grow<strong>in</strong>g <strong>in</strong> significance.<br />

Awareness of entitlements under PWD Act is also low, though <strong>with</strong> strong state variation<br />

Figure 3: Share of PWD HHs not aware of entitlements<br />

Figure 3<br />

Transport subsidy<br />

Job reservation<br />

Education stipend<br />

Employ exchange<br />

Subsidy on credit<br />

Aids/appliances<br />

TN<br />

UP<br />

Food ration<br />

PWD benefit<br />

PWD certificate<br />

0 10 20 30 40 50 60 70 80 90 100<br />

Source: UP and TN Village Survey (2005).<br />

42. Implementation is made more challeng<strong>in</strong>g <strong>in</strong> part due <strong>to</strong> a nodal M<strong>in</strong>istry <strong>with</strong><br />

limited resources and conven<strong>in</strong>g power, and weakly function<strong>in</strong>g coord<strong>in</strong>at<strong>in</strong>g <strong>in</strong>stitutions <strong>in</strong><br />

much of the country. Implementation is also constra<strong>in</strong>ed by a complex <strong>in</strong>stitutional framework<br />

for operation of the disability sec<strong>to</strong>r <strong>in</strong> <strong>India</strong>. The nodal agency for disability is the M<strong>in</strong>istry of<br />

Social Justice and Empowerment (MSJE). There are <strong>in</strong>herent challenges for any nodal m<strong>in</strong>istry<br />

<strong>in</strong> a multi-sec<strong>to</strong>ral field as disability. That said, there are areas where hav<strong>in</strong>g MSJE as lead<br />

agency seems questionable. Two examples are special education and early identification of<br />

6 CAG (2004).<br />

%<br />

xxi

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