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Mental health policy and practice across Europe: an overview

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Identifying needs using epidemiological research<br />

The evidence base 109<br />

One powerful way of identifying mental <strong>health</strong> needs is through the use of<br />

epidemiological research (Jenkins 2001). Methods, namely epidemiological<br />

interviewing techniques (Wing et al. 1990; Lewis et al. 1992; Jenkins <strong><strong>an</strong>d</strong><br />

Meltzer 2003) c<strong>an</strong> be used to appraise mental <strong>health</strong>, mental disorders <strong><strong>an</strong>d</strong> the<br />

accomp<strong>an</strong>ying disability in individuals <strong><strong>an</strong>d</strong> populations. There are also methods<br />

to assess the service needs of sick populations (e.g. Marshall et al. 1995; Phel<strong>an</strong><br />

et al. 1995; Avon Measure Working Group 1996). Although epidemiology is<br />

crucial for <strong>policy</strong>-makers (Jenkins 2001), few countries perform national epidemiological<br />

studies on the general household population because of the<br />

perception that such studies are relatively expensive <strong><strong>an</strong>d</strong> time-consuming.<br />

This need not be the case; the current world mental <strong>health</strong> survey has been<br />

working with 14 countries worldwide to run national surveys (World <strong>Mental</strong><br />

Health Survey Consortium 2004). Relatively small-scale, but nonetheless useful,<br />

community-based <strong><strong>an</strong>d</strong> primary care studies on mental disorders have already<br />

been undertaken in m<strong>an</strong>y low-income countries (Institute of Medicine 2001).<br />

Identifying needs <strong><strong>an</strong>d</strong> mapping service availability<br />

Data from household <strong><strong>an</strong>d</strong> service-user surveys (at various levels in the service),<br />

routine data on patients, service inputs <strong><strong>an</strong>d</strong> processes c<strong>an</strong> also play a vital role.<br />

Again, there are limitations in existing <strong>health</strong> information systems which often<br />

focus largely on routine data collection of hospital admissions, consultations<br />

<strong><strong>an</strong>d</strong> discharges. They may gather little information on specialist outpatient<br />

clinics, less still on consultations in primary care or the community, <strong><strong>an</strong>d</strong> nothing<br />

at all on population rates of illness. They sometimes include mortality data,<br />

but they hardly ever include <strong>health</strong> or social outcomes – although efforts to<br />

introduce routine mental <strong>health</strong> outcome measurements have grown (Jenkins<br />

1990; Wing et al. 1998). There have been developments, for inst<strong>an</strong>ce in Engl<strong><strong>an</strong>d</strong>,<br />

with the introduction of the mental <strong>health</strong> minimum data set, which aimed<br />

to bring together data covering m<strong>an</strong>y aspects of individual patients’ personal<br />

characteristics, problems <strong><strong>an</strong>d</strong> care (Glover <strong><strong>an</strong>d</strong> Sinclair-Smith 2000).<br />

Timing <strong><strong>an</strong>d</strong> access to this information is also import<strong>an</strong>t. In some countries<br />

these data are often collected <strong><strong>an</strong>d</strong> published much too late to be useful in<br />

<strong>health</strong> pl<strong>an</strong>ning <strong><strong>an</strong>d</strong> decision-making (Smith 1989). They may not be sufficiently<br />

synthesized with qualitative information so as to be easily interpreted<br />

by decision-makers. Moreover, information <strong><strong>an</strong>d</strong> evidence may not always be<br />

accessible outside the narrow confines of the specific governmental department<br />

in which it was produced (e.g. the prison service).<br />

Obtaining different perspectives on what constitutes<br />

evidence of effectiveness<br />

While discussion occurs over what type of evidence should be used to inform<br />

<strong>policy</strong>-making <strong><strong>an</strong>d</strong> <strong>practice</strong>, much less is said about who decides what evidence<br />

should be used or which sources of evidence should be given priority. Evidence<br />

generated by service users traditionally has had little impact in the development

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