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How does the operation of PHARMAC's 'Community Exceptional ...

How does the operation of PHARMAC's 'Community Exceptional ...

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discuss how (or if) PHARMAC meets <strong>the</strong> needs <strong>of</strong> those who are described as<br />

exceptional.<br />

Starting with PHARMAC’s first purpose, as a Crown Entity it must provide<br />

access to <strong>the</strong> public for an adequate range <strong>of</strong> affordable pharmaceuticals. This<br />

focuses on <strong>the</strong> PHARMAC Board and staff having a system <strong>of</strong> identifying which<br />

medicines will meet <strong>the</strong> clinical needs <strong>of</strong> New Zealanders. This is done by<br />

PHARMAC operating an analytical system for deciding how to effectively meet<br />

<strong>the</strong>se needs. Singer and colleagues (Singer, Martin, Giacomini, & Purdy, 2000)<br />

stated that <strong>the</strong> first step in deciding what should be done to make such<br />

decisions legitimate and fair, is to understand how groups such as PHARMAC<br />

make <strong>the</strong>se allocative decisions.<br />

At <strong>the</strong> meso-level, PHARMAC is required to implement <strong>the</strong> government’s stated<br />

health strategies. PHARMAC has at its disposal <strong>the</strong> District Accountability<br />

Plans which are conducted by <strong>the</strong> 21 DHBs. PHARMAC also has access to <strong>the</strong><br />

knowledge and experience <strong>of</strong> expert committees <strong>of</strong> medical specialists who are<br />

recognised as leading practitioners and academics in <strong>the</strong>ir clinical fields. They<br />

make assessments <strong>of</strong> <strong>the</strong> clinical effectiveness <strong>of</strong> medicines based on<br />

internationally available research and <strong>the</strong>ir own clinical judgment. To not do so,<br />

opens PHARMAC up to <strong>the</strong> possibility <strong>of</strong> spending tax payers’ money on<br />

ineffectual treatments that only promise to add to a person’s capability (Moodie,<br />

2008). PHARMAC’s approach comes down to quantifiable evidence <strong>of</strong> likely<br />

benefit verses a promise <strong>of</strong> benefit.<br />

This is little comfort however to unsuccessful Community <strong>Exceptional</strong><br />

Circumstances claimants whose applications have been ruled ei<strong>the</strong>r unlikely to<br />

provide significant clinical benefit, or, medicines which come at too high a cost.<br />

At <strong>the</strong> micro-level, having decided on <strong>the</strong> effectiveness <strong>of</strong> meeting particular<br />

health needs with pharmaceuticals, PHARMAC <strong>the</strong>n engages in <strong>the</strong> cost-utility<br />

analysis to see if <strong>the</strong> cost <strong>of</strong> <strong>the</strong> drug is affordable within <strong>the</strong> resources<br />

allocated to it. Theme 4, ‘PHARMAC - No Stated Philosophy’ demonstrated<br />

233

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