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How does the operation of PHARMAC's 'Community Exceptional ...

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QALY utilitarian test (Hadorn, 2006) Hadorn acknowledged that <strong>the</strong>se Rule <strong>of</strong><br />

Rescue appeals are difficult for agencies to refuse because <strong>of</strong> <strong>the</strong> public and<br />

political pressure which ultimately result. <strong>How</strong>ever, acquiescing to such<br />

pressure contravenes <strong>the</strong> basic utilitarian assumption that <strong>the</strong> greatest good<br />

should be provided for <strong>the</strong> greatest number. Such an equation is purported to<br />

be possible using <strong>the</strong> QALY calculation.<br />

Hadorn (2006) also argued that <strong>the</strong> QALY equation should not be <strong>the</strong> only<br />

rational or moral basis for distributing resources. This is because QALYs do not<br />

measure <strong>the</strong> need to distribute resources, <strong>the</strong> consequences <strong>of</strong> doing so or <strong>the</strong><br />

overall justice <strong>of</strong> including or excluding individuals from access to <strong>the</strong>se<br />

resources (Hadorn, 2006).<br />

The International Attempts to Ration<br />

A celebrated attempt to explicitly ration health services occurred in <strong>the</strong> state <strong>of</strong><br />

Oregon in 1989 when <strong>the</strong> State government tried to define which services<br />

should be publicly funded and which should not. A Health Services<br />

Commission was established to draw up a comprehensive list <strong>of</strong> conditions and<br />

treatments which would be funded by <strong>the</strong> state insurance provider, Medicaid<br />

(Klein, 1995; Oregon Government, 2007). The Commission consulted <strong>the</strong><br />

public widely and used research evidence and <strong>the</strong> judgment <strong>of</strong> pr<strong>of</strong>essional<br />

people to construct a list <strong>of</strong> medical conditions to be publicly funded. This<br />

became known as <strong>the</strong> ‘Oregon List’. The Commission was careful to avoid<br />

discrimination against disabled people in implementing <strong>the</strong> radical Oregon<br />

Health Plan. The list was justified by describing <strong>the</strong> clinical effectiveness <strong>of</strong><br />

health treatments and calculating <strong>the</strong> ‘net benefit’ <strong>of</strong> treatments. A line was<br />

drawn to indicate which treatments demonstrated to <strong>the</strong> health plan governors<br />

both clinical effectiveness and net benefit. Treatments below <strong>the</strong> line were not<br />

covered by <strong>the</strong> Oregon Health Plan (Oberlander, 2006).<br />

The list has been expanded to include new treatments and from time to time<br />

various treatments are moved up and down <strong>the</strong> priority ladder. For example,<br />

cosmetic dental procedures are near <strong>the</strong> bottom <strong>of</strong> <strong>the</strong> list <strong>of</strong> funded priorities,<br />

whereas severe head injury and loss <strong>of</strong> consciousness is <strong>the</strong> top priority<br />

(Oregon Government, 2007). There were inconsistencies in <strong>the</strong> ranking. For<br />

example, dental caps for pulp or near pulp exposure were ranked higher than<br />

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