PABI Plan - The Sarah Jane Brain Project

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Curriculum Vitae Jeanne E. Dise Page 3 HONORS AND AWARDS: Federal TBI Program’s Most Popular State Agency Grant Product Award: “ABI in Children and Adolescents. HRSA: April 2008 Appointed Board Member, The Colorado Traumatic Brain Injury Trust Fund Board 2002-2009 Chair, The Colorado Traumatic Brain Injury Advisory Board, 2002-2005 Member, The Colorado Traumatic Brain Injury Advisory Board, 2000-2006 The Children’s Choice Award for Outstanding Teamwork, 1998 Phi Delta Kappa Honor Society, 1977 Graduated Magna Cum Laude, 1975 Dean’s List 1971-1975 Alpha Sigma Nu Honor Society, 1974 Psi Chi Honor Society, 1974 National Merit Scholarship, 1971 National Honor Society, 1968-1971 INVITED COMMITTEES AND SERVICE RESPONSIBILITIES: National: Co-Author, Position Paper on Children and Youth with Traumatic Brain Injuries TBI Technical Assistance Center at NASHIA 2007-8 Invited Participant: Seventh Annual Galveston Brain Injury Conference (Moody Invitational) Galveston, TX April 25-28, 2007 Invited Participant: Evaluation of the HRSA Traumatic Brain Injury Program, Spring 2006 Invited Participant: Sixth Annual Galveston Brain Injury Conference (Moody Invitational) Galveston, TX May 4-6, 2006 Invited Participant: Children and Youth Work Group TBI Technical Assistance Center at NASHIA Denver, CO July 5 and 6, 2005 Invited Participant: National Center for Injury Control and Prevention Focus Group Atlanta, GA November 3, 2004 Invited Participant: Health Resources and Services Administration’s (HRSA) Maternal and Child Health Bureau / Brain Injury Association of America Taskforce on Children and Adolescents with TBI Member: Health Resources and Services Administration’s (HRSA) Maternal and Child Health Bureau / Brain Injury Association of America Special Workgroup on Children and Adolescents with TBI Invited Participant: Symposium on TBI in Children and Youth: II Brain Injury Association Washington, DC December 2000
Curriculum Vitae Jeanne E. Dise Page 4 Invited Participant: Surveillance of Children and Youth with Traumatic Brain Injury Centers for Disease Control and Prevention Atlanta, Georgia October 26-27 2000 Invited Participant: Health Resources and Services Administration’s (HRSA) Maternal and Child Health Bureau / Brain Injury Association of America Taskforce on Children and Adolescents with TBI Member: Health Resources and Services Administration’s (HRSA) Maternal and Child Health Bureau / Brain Injury Association of America Special Workgroup on Children and Adolescents with TBI Invited Participant: Traumatic Brain Injury in Children and Youth: Visioning Process to Prepare for the Future Brain Injury Association; Washington, DC November 1999 Group Leader: Western Region Faculty Institute for Training University of Colorado Health Sciences Center Denver, CO June 7-8, 1996 State: Board Member: The Colorado Traumatic Brain Injury Trust Fund 2002-2009. Chair, The Colorado Traumatic Brain Injury Advisory Board, 2002-2005. Member, The Colorado Traumatic Brain Injury Advisory Board, 2000-present Program Committee, Second Collaborative Conference on TBI, Denver, CO, 9/2005. Program Committee, First Collaborative Conference on TBI, Denver, CO, 9/20-21/2003. BIAC website Development Committee, CO TBI Implementation Grant, 2004. Chair, The Colorado Traumatic Brain Injury Advisory Board, 2002-2004 Member, Colorado Advisory Board for Brain Injury: Child and Adolescent Needs and Resources Committee, 1999-present. Steering Committee, Statewide Resources for Child and Adolescent Brain Injury (Colorado TBI Network Teams), 2000-present. Community: Secretary, International Baccalaureate Program Parent Committee, George Washington High School, Denver Public Schools, Denver CO, 9/2002-9/2007 Member, Cory Elementary School Collaborative Decision Making Board: 2000-02. Member, Board of Directors, Montview Community Preschool and Kindergarten, Denver, CO: 1990, 1991, 1994, 1995, 1996. Chair, Arts Committee, Montclair School, 1995-1996. Hospital Based: The Children's Hospital Leadership Team 2006-present The Children's Hospital Staff Transition Team 2005-present Electronic Medical Records Team Leader 2004-present The Children’s Hospital Department of Physical Medicine and Rehabilitation Inpatient Program Continuing Education Committee 2001-present Rehabilitation Managers 1990-present Rehabilitation Outcomes Data Committee 1992-96 Family-Centered Care Committee 1993-95 The Children’s Hospital Psychiatry and Behavioral Sciences Department Psychology Internship Training Committee 1990-present
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The Honorable Kathleen Sebelius Sec
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promote the integration and full in
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The National Pediatric Acquired Bra
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Phase Three consisted of having the
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the fact that their brains are stil
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methods developed by the SJBP to sh
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Two-Year Milestones Quarter 1: •
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Figure 2: CDC figures for death and
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PA/TBI and their families, delivere
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appropriately in the care of the ch
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CHAPTER 2: The TBI Model System and
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2. States need to “buy” into id
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implications of shaking a baby; and
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service was developed for children
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a. There is a lack of evidence for
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8. In addition, ongoing education a
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While there are often significant i
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are largely unknown. In particular,
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Family Perspective: Without early i
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4. Improve the specific identificat
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unemployment, public-assisted housi
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REFERRAL FROM ACUTE CARE, REHABILIT
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understanding determinants of long-
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Research - Increase capacity of loc
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Alternatively, indirect effects on
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Specific questions regarding tracki
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CHAPTER 7: Categories of Care: Tran
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care of syndromes associated with a
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Social Opportunities The services a
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Finally, a third area of problem af
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CHAPTER 8: Category of Care: Rural/
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• Lack of public transportation
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• Provide consequences for wastin
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Rural / Tele-health issues during A
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educated and thus are less aware of
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Chapter 9: Category of Care: The Vi
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"To improve the quality of our heal
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Registry technology has been used a
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CHAPTER 10: Organizational Structur
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Northeast Region: New York Mid-Atla
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FF Principal Investigator/Program D
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Huang TT, He D, Kleiner G, Kuluz J.
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Children's Healthcare of Atlanta Pr
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Children's Healthcare of Atlanta Pr
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Principal Investigator: Haarbauer-K
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Sarah Jane Brain Family State Lead
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Center on Disability Studies at The
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Jean L. Johnson, DrPH April 19, 200
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Jeffrey K. Okamoto M.D. Curriculum
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Idaho State University / Institute
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NAME RUSSELL C. SPEARMAN BIOGRAPHIC
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Spearman, Russell, C Spearman, R.C.
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RESEARCH FUNDING Current Support: I
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University of Illinois Chicago Prof
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University of Illinois Chicago Prof
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1997 Margaret Faust Thesis Award, S
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James Whitcomb Riley Hospital for C
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PROGRAM DIRECTOR: Jodi L. Smith, Ph
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American Association of Anatomists
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IU Faculty Steering Committee ‐ 7
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University of Iowa Children's Hospi
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NAME Lindgren, Scott D. eRA COMMONS
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Arroyos-Jurado, E., Paulsen, J.S.,
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Center for Child Health and Develop
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Center for Child Health and Develop
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Tyler 2 Glang, A., Dise-Lewis, J.,
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Tyler 4 DePompei, R., Glang, A., &
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University of Kentucky Hospital Pro
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University of Kentucky Hospital Pro
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Joseph A. Iocono, M.D. Curriculum V
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Joseph A. Iocono, M.D Curriculum Vi
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Louisiana Health Care Quality Forum
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Shannon Robshaw, MSW is the Executi
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Maine Institute of Human Genetics a
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Maine Institute of Human Genetics a
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Principal Investigator/Program Dire
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Kennedy Krieger Institute Profile c
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Kennedy Krieger Institute Profile c
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Program Director/Principal Investig
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Children's Hospital of Boston and H
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Date Updated: November 5, 2008 CURR
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2001- Member, Advisory Committee Ha
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underway to best direct prevention
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2. Mooney DP, Lewis JE, Connors RH,
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40. Waltzman M, Baskin M, Wypij D,
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19. Downard C and Mooney DP. Pediat
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47. Kangas KK, Lee LK, Forbes P, Os
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29. Kansas Trauma Conference, Wichi
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Date Prepared: January 5, 2009 Name
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Regional 2006- Vice President of Ma
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Honors and Prizes Year Name of Hono
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2000 Pediatric Spine Injuries Singl
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2006 Infant Skull Deformities Pedia
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2002 Management of Sports-related C
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Clinical Innovations I have been ab
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10. Dunn IF, Proctor MR, Day AL. Lu
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Trauma Surgery, Neurology, Neuropsy
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Michigan Public Health Institute an
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Michigan Public Health Institute an
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Vonderheid, S.C., Pohl, J. M., Tann
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Mayo Clinic Profile continued Title
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Mayo Clinic Profile continued Title
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LICENSURE Minnesota HONORS/AWARDS S
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Spina Bifida in Adulthood Physical
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Sherilyn W. Driscoll, MD Page 6 of
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-Implementation of new pediatric wh
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BIBLIOGRAPHY Peer-reviewed Articles
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Program Director/Principal Investig
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Children's Rehabilitation Services
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Curriculum Vitae Shannon Janine Smi
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Shannon Janine Smith, MD Page 2 Hon
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Center, Pediatric Grand Rounds Shan
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Saint Louis Children's Hospital Pro
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Saint Louis Children's Hospital Pro
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Completed Research Support Principa
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Montana State University Billings /
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Montana State University Billings /
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• Region IV Paraeducator Summer I
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Madonna Rehabilitation Hospital Pro
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Madonna Rehabilitation Hospital Pro
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Staff Occupational Therapist: 1997-
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Sunrise Children's Hospital Profile
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Sunrise Children's Hospital Profile
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Dartmouth Medical School Profile co
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BIOGRAPHICAL SKETCH NAME POSITION T
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Brain Injury Association of New Jer
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Biographical Sketch Barbara Geiger-
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University of New Mexico School of
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Mount Sinai Medical Center Profile
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The Clinical Center for the Study o
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NAME Stephen R. Hooper eRA COMMONS
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Hooper, S.R., Hatton, D., Schaaf, J
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Still pending Profile continued Tit
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Cincinnati Children's Hospital Medi
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Oklahoma State University / Center
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CURRICULUM VITAE NAME Stanley E. Gr
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Courtesy Staff, 1990-1998 Leave of
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OSU-CHS International Medicine Club
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ViroPharma Protocol 637-303: Princi
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Media presentations: Medical Minute
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Teaching Research Institute and Wes
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BIOGRAPHICAL SKETCH NAME POSITION T
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Voss, J., Stevens, T., Glang, A., &
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Children's Hospital of Pittsburgh o
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BIOGRAPHICAL SKETCH Provide the fol
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C. Research Support. List selected
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Puerto Rico Medical Center / Univer
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Puerto Rico Medical Center / Univer
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LICENCE TO PRACTICE MEDICINE: (plac
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REFERENCES Dr. Nathan Rifkinson, UP
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Hasbro Children's Hospital Child Pr
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Hasbro Children's Hospital Child Pr
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1990-1996 Director of Medical Progr
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infant death and suspected physical
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Medical University of South Carolin
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Medical University of South Carolin
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Role: PI Principal Investigator/Pro
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Center for Disabilities / Sanford S
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Center for Disabilities / Sanford S
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• February 2004 - May 2005: Indep
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• September 2008: Presentation at
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• Coordinator for LEND (The South
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University of Tennessee Profile con
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University of Tennessee Profile con
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4. Johnson, R. K., Hough, M. S., Ki
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Center for BrainHealth / The Univer
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Center for BrainHealth / The Univer
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McCauley, S.R., McDaniel, M.A., Ped
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Levin, H. S., Mendelsohn, D. B., Li
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University of Utah Profile continue
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University of Utah Profile continue
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5. Statler KD, Jenkins LW, Dixon CE
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F. Invited Presentations Internatio
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The Vermont Center for Children, Yo
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The Vermont Center for Children, Yo
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2006-Present Chairman of the Child
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Abdellaoui A, Bartels M, Hudziak JJ
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UVA Children's Hospital and Kluge's
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UVA Children's Hospital and Kluge's
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B. Selected peer-reviewed publicati
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University of Washington / Harborvi
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University of Washington / Harborvi
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West Virginia Brain Injury Associat
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West Virginia Brain Injury Associat
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Phone: (304) 345-7757 405 Capitol S
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Children's Hospital of Wisconsin Pr
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Children's Hospital of Wisconsin Pr
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Brain Injury Association of Wyoming
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EDUCATION Dorothy Worrell 2302 Sage
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of Developmental Disabilities; assi
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PUBLICATIONS Member of VISIONS Admi
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n/a Profile continued Title/Descrip
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References 1. Adelson, P.D. (2008).
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30. Centers for Disease Control and
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62. Haddon, W. (1973). Energy damag
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96. Perel, P., Yanagawa, T., Bunn,
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