PABI Plan - The Sarah Jane Brain Project

promote the integration and full inclusion of these individuals into the mainstream of American
society
• Improve information technology systems to deliver benefits and services to our younger Veteran
population who sustained a brain injury due to a blast during war before they turned 25 years of
age (while their brain is still in the developmental stage) while at the same time create additional
support systems for the families of these young, wounded warriors
• Whether it is through prevention of abusive head trauma/child abuse or helping to identify the
young adults currently in our juvenile delinquency system with an undiagnosed and untreated
brain injury, there is considerable correlation with the Department of Justice goals
At first, the only goal of ARRA we couldn’t state we would accomplish was building more roads and
bridges. However, upon further contemplation, it became clear there are many young construction
workers in America who sustain a brain injury and they are not able to go back to work. By
implementing the PABI Plan we will be able to get many of these folks back to work! Therefore, we
propose this grant will help build roads and bridges too.
The PABI Plan will also fulfill the priorities of the comparative effectiveness research and investments as
listed below:
• Potential impact: based on prevalence of condition, burden of disease, variability in outcomes,
costs
• Potential for increased patient benefits or decreased harm
• Potential to evaluate comparative effectiveness in diverse populations and patient sub-groups and
engage communities in research
• Addresses need or gap unlikely to be addressed through other organizations
• Potential for multiplicative effect (e.g., lays foundation for future CER such as data infrastructure
and methods development and training and generating additional investment outside government)
In order to begin fully implementing the PABI Plan, the funding of the enclosed grant proposal would be
a two-year commitment of $930 million distributed directly to the 52 State Lead Centers. Since no single
Department has complete jurisdiction over the scope of this proposal, we do not expect the funds to come
from any single Department but from a consortium of these Departments plus the Federal Coordinating
Council for Comparative Effectiveness Research.
Upon reviewing the enclosed grant proposal, I am confident you will have the same level of excitement at
the unique opportunity we have today to address this current health crisis facing our nation called
Pediatric Acquired Brain Injury. We look forward to working with you and your representatives to
implement the PABI Plan and fundamentally change the lives of millions of fellow Americans.
On behalf of our National Advisory Board and the millions of PABI families across our country, we
greatly appreciate your consideration and thank you in advance for funding this critical initiative.
All the best,
Patrick B. Donohue, Esq.
Founder, The Sarah Jane Brain Foundation
Father, Sarah Jane Donohue