PABI Plan - The Sarah Jane Brain Project

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Principal Investigator/Program Director (Last, First, Middle): PI Name 3. Moberg-Wolff, E. Spasticity Management, Chapter Emedicine, PM&R Textbook, December 2001, 2007 4. Moberg-Wolff E, Dystonia, Chapter Emedicine, PM&R Textbook, 5. Moberg-Wolff EA, Kiesling S. Adapted Recreational and Sports Programs for Children with Disabilities: Then and Now. J of Ped Rehab Med 2008: 1(2) p.155-61. 6. Ocasio M, McBride A, Moberg-Wolff E “Cerebral Palsy Masking Spinal Muscular Atrophy: A Case Report” J of Ped Rehab Med 2008 :1(179-183) 7.Moberg-Wolff, E. The Potential Clinical Impact of Compounded vs Non-Compounded Intrathecal Baclofen. Archives of Phys Med Rehab.In press. Abstracts 1. Moberg-Wolff, E, Epner, M., McGrath, M. Welshofer, J. Kosasih, J. "Electric Stimulation in the Treatment of Chronic Pressure Ulcers" Archives of PM&R, November 1993 2. Moberg-Wolff, E. and Nussbaum,S. “Adult Onset Tay Sachs: A Case Report" Archives of PM&R September 1994 3. Moberg-Wolff, E “An Aggressive Approach to Limb Dystonia” Archives of PM&R, November 1997 4. Moberg-Wolff, E., and Stempien, L., Recurrent Tethered Cord and Myelomeningoceole” American Academy of PM&R National Meeting October 1996 5. Moberg-Wolff, E, Devries, C, Eubanks, L, Watson, T. “The Effect of Intrathecal Baclofen on Bladder Function in Children with Cerebral Origin Spasticity American Academy of PM&R National Meeting November 1999 6. Moberg-Wolff, E, and Walke, K. “Use of Botulinum Type B in the Pediatric Population” Archives of PM&R, Vol 83:1673, 2002 7. Nowacki M, Lee, M , Mani C, Moberg-Wolff E, Woeltje K. ‘An Analysis of Post Operative Baclofen Pump Infections” Association of Practitioners of Infection Control and Epidemiology. March 2003 8. Martin R, Howell E, McClain M, Miles B, Moberg-Wolff E.“Imaging Features of Intrathecal Baclofen Delivery Systems” Pediatric Radiology, Vol 33:S114, 2003 9. Moberg E, Iwin N, McGuire J “ITB and the H Reflex in Pediatric Patients with CP” October 2005 American Academy of PM&R National Meeting 10. Moberg, EIntrathecal Vancomycin in the Treatment of Meningitis in ITB Patients” American Academy of PM&R National Meetin October 2005 11. Taylor C, Irwin N, Moberg E, Klingbeil F Recovery from Rabies Encephalopathy: A Case Report” American Academy of PM&R National Meeting October 2005 12. Moberg E, Wendt C. Tolerance or non-Responder? An ITB Case Report American Academy of PM&R National Meeting Octob 13. Moberg E, To Compound or not to Compound: Intrathecal Baclofen American Academy of PM&R National Meeting October 20 14. Ocasio-Silva MA, Moberg-Wolff EA, Dillingham TR, Rice JB: Spasticity treatment services in patients with cerebral palsy in the United States. Arc Phys Med Rehabil 2007; 88: E78 15. Moberg-Wolff EA, Ocasio-Silva MA, Nelson ME: A Longitudinal look at intrathecal baclofen dosing. Arc Phys Med Rehabil 2007 E78 16. Moberg E, Ocasio M.Pediatric ITB Dosing Over Time Arc Phys Med Rehabil 2007; 88: American Academy of PM&R National 17. Ocasio M, Moberg-Wolff E. Intrathecal Baclofen and Speech in Children with Cerebral Palsy. Arch Phy Med Rehab 2008:E3 18. Moberg E, Zetley L, Urban M, BrownJ, Altstadt D, Cohn J. “Medically Fragile Child: Fostering Outcomes through Community Collaborations. Dev Med Child Neuro Sept 2009. 19. K.Kolaski, L.Krach, D.Gaebler, D.Fehlings, E.Hurvitz, M Kuroda, E.Moberg, L. Thornton, M.Msall. “Cerebral Palsy Outcomes Project” Dev Med Child Neuro, Sept 2009. (Non-Refereed Journals) 1. Moberg-Wolff, E. and Rogers, T. Taming Limb Dystonia” Advance for Directors in Rehabilitation March 1998 2. Moberg-Wolff, E“Have a ball, and a racket, and a glove..... Creating adaptive sports programs” Advance for Directors in Rehabilitation January 1999 3. Moberg-Wolff, E “Alternative Medicine Overview” “Return to School after TBI” Brain Injury Association of Georgia, Virtual Case Management Online Resource September 2003 C. Research Support. Completed “Medically Fragile Foster Child Improving Health Status through Education and Community Linkages 2008-2009 Primary Investigator, $50,000 Healthier Wisconsin Partnership Program Award Cerebral Palsy Outcomes Project – Multicenter Pilot Study Co-Investigator $50,000 funded by American Academy of Cerebral Palsy and Developmental Medicine “Special Needs Child – Medical, Therapeutic and Educational Interventions” Conference PHS 398/2590 (Rev. 09/04) Page Continuation Format Page
Principal Investigator/Program Director (Last, First, Middle): PI Name E Moberg-Wolff $10,000 funded by Allergan 2008, 2006 “Children’s Rehabilitation Program Development” R McCabe, E. Moberg-Wolff $10,000 Funded by Kiwanis “Bladder Function Alterations by Intrathecal Baclofen Administration” E. Moberg-Wolff. C. Devries, L. Eubanks $30,000, Funded by Medtronic,1998 “Special Needs Car Seat Program Development” E. Moberg-Wolff $3,500 Funded by DePuy 1999 “Rural Rehabilitation Clinic Development grant” E Moberg-Wolff, J Geer $4,000 annually Allergan/Medtronic 1999 – 2003 PHS 398/2590 (Rev. 09/04) Page Continuation Format Page
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The Honorable Kathleen Sebelius Sec
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promote the integration and full in
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The National Pediatric Acquired Bra
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Phase Three consisted of having the
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the fact that their brains are stil
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methods developed by the SJBP to sh
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Two-Year Milestones Quarter 1: •
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Figure 2: CDC figures for death and
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PA/TBI and their families, delivere
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appropriately in the care of the ch
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CHAPTER 2: The TBI Model System and
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2. States need to “buy” into id
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implications of shaking a baby; and
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service was developed for children
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a. There is a lack of evidence for
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8. In addition, ongoing education a
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While there are often significant i
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are largely unknown. In particular,
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Family Perspective: Without early i
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4. Improve the specific identificat
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unemployment, public-assisted housi
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REFERRAL FROM ACUTE CARE, REHABILIT
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understanding determinants of long-
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Research - Increase capacity of loc
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Alternatively, indirect effects on
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Specific questions regarding tracki
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CHAPTER 7: Categories of Care: Tran
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care of syndromes associated with a
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Social Opportunities The services a
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Finally, a third area of problem af
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CHAPTER 8: Category of Care: Rural/
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• Lack of public transportation
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• Provide consequences for wastin
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Rural / Tele-health issues during A
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educated and thus are less aware of
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Chapter 9: Category of Care: The Vi
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"To improve the quality of our heal
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Registry technology has been used a
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CHAPTER 10: Organizational Structur
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Northeast Region: New York Mid-Atla
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State IT Manager: primary responsib
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translational data for their Catego
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CHAPTER 11: Financing the PABI Plan
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projects, a smaller state will have
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Summary of PABI Grant Proposal cont
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Sarah Jane Brain Family State Lead
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The University of Alabama at Birmin
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h Principal Investigator/Program Di
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The Children's Hospital at Providen
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Barrow Neurological Institute / St.
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Employment Education Postgraduate T
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Certifications Neuroscience Grand R
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UAMS/Arkansas Children's Hospital R
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Program Director/Principal Investig
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C. Research Support Ongoing Researc
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Mattel Children's Hospital UCLA Pro
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BIOGRAPHICAL SKETCH Provide the fol
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17. Madikians A and Giza CC. A Clin
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The Children's Hospital Profile con
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CURRICULUM VITAE JEANNE E. DISE, Ph
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Curriculum Vitae Jeanne E. Dise Pag
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Yale‐New Haven Children's Hospita
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Yale‐New Haven Children's Hospita
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2001 - Associate Professor, Sect of
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Major goal: to provide education in
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Nemours / Alfred I. duPont Hospital
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First Name: Michael MI: A Last Name
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Children's National Medical Center
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University of Miami Miller School o
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FF Principal Investigator/Program D
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Huang TT, He D, Kleiner G, Kuluz J.
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Children's Healthcare of Atlanta Pr
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Children's Healthcare of Atlanta Pr
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Principal Investigator: Haarbauer-K
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Center on Disability Studies at The
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Jean L. Johnson, DrPH April 19, 200
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Jeffrey K. Okamoto M.D. Curriculum
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Idaho State University / Institute
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NAME RUSSELL C. SPEARMAN BIOGRAPHIC
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Spearman, Russell, C Spearman, R.C.
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RESEARCH FUNDING Current Support: I
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University of Illinois Chicago Prof
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University of Illinois Chicago Prof
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1997 Margaret Faust Thesis Award, S
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James Whitcomb Riley Hospital for C
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PROGRAM DIRECTOR: Jodi L. Smith, Ph
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American Association of Anatomists
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IU Faculty Steering Committee ‐ 7
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University of Iowa Children's Hospi
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NAME Lindgren, Scott D. eRA COMMONS
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Arroyos-Jurado, E., Paulsen, J.S.,
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Center for Child Health and Develop
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Center for Child Health and Develop
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Tyler 2 Glang, A., Dise-Lewis, J.,
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Tyler 4 DePompei, R., Glang, A., &
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University of Kentucky Hospital Pro
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University of Kentucky Hospital Pro
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Joseph A. Iocono, M.D. Curriculum V
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Joseph A. Iocono, M.D Curriculum Vi
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Louisiana Health Care Quality Forum
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Shannon Robshaw, MSW is the Executi
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Maine Institute of Human Genetics a
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Maine Institute of Human Genetics a
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Principal Investigator/Program Dire
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Kennedy Krieger Institute Profile c
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Kennedy Krieger Institute Profile c
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Children's Hospital of Boston and H
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Date Updated: November 5, 2008 CURR
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2001- Member, Advisory Committee Ha
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underway to best direct prevention
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2. Mooney DP, Lewis JE, Connors RH,
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40. Waltzman M, Baskin M, Wypij D,
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19. Downard C and Mooney DP. Pediat
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47. Kangas KK, Lee LK, Forbes P, Os
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29. Kansas Trauma Conference, Wichi
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Date Prepared: January 5, 2009 Name
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Regional 2006- Vice President of Ma
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Honors and Prizes Year Name of Hono
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2000 Pediatric Spine Injuries Singl
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2006 Infant Skull Deformities Pedia
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2002 Management of Sports-related C
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Clinical Innovations I have been ab
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10. Dunn IF, Proctor MR, Day AL. Lu
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Trauma Surgery, Neurology, Neuropsy
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Michigan Public Health Institute an
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Michigan Public Health Institute an
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Vonderheid, S.C., Pohl, J. M., Tann
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Mayo Clinic Profile continued Title
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Mayo Clinic Profile continued Title
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LICENSURE Minnesota HONORS/AWARDS S
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Spina Bifida in Adulthood Physical
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Sherilyn W. Driscoll, MD Page 6 of
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-Implementation of new pediatric wh
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BIBLIOGRAPHY Peer-reviewed Articles
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Children's Rehabilitation Services
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Curriculum Vitae Shannon Janine Smi
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Shannon Janine Smith, MD Page 2 Hon
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Center, Pediatric Grand Rounds Shan
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Saint Louis Children's Hospital Pro
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Saint Louis Children's Hospital Pro
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Completed Research Support Principa
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Montana State University Billings /
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Montana State University Billings /
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• Region IV Paraeducator Summer I
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Madonna Rehabilitation Hospital Pro
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Madonna Rehabilitation Hospital Pro
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Staff Occupational Therapist: 1997-
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Sunrise Children's Hospital Profile
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Sunrise Children's Hospital Profile
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Dartmouth Medical School Profile co
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BIOGRAPHICAL SKETCH NAME POSITION T
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Brain Injury Association of New Jer
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Biographical Sketch Barbara Geiger-
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University of New Mexico School of
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Mount Sinai Medical Center Profile
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The Clinical Center for the Study o
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NAME Stephen R. Hooper eRA COMMONS
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Hooper, S.R., Hatton, D., Schaaf, J
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Still pending Profile continued Tit
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Cincinnati Children's Hospital Medi
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Oklahoma State University / Center
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CURRICULUM VITAE NAME Stanley E. Gr
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Courtesy Staff, 1990-1998 Leave of
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OSU-CHS International Medicine Club
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ViroPharma Protocol 637-303: Princi
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Media presentations: Medical Minute
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Teaching Research Institute and Wes
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BIOGRAPHICAL SKETCH NAME POSITION T
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Voss, J., Stevens, T., Glang, A., &
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Children's Hospital of Pittsburgh o
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BIOGRAPHICAL SKETCH Provide the fol
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C. Research Support. List selected
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Puerto Rico Medical Center / Univer
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Puerto Rico Medical Center / Univer
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LICENCE TO PRACTICE MEDICINE: (plac
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REFERENCES Dr. Nathan Rifkinson, UP
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Hasbro Children's Hospital Child Pr
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Hasbro Children's Hospital Child Pr
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1990-1996 Director of Medical Progr
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infant death and suspected physical
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Medical University of South Carolin
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Medical University of South Carolin
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Role: PI Principal Investigator/Pro
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Center for Disabilities / Sanford S
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Center for Disabilities / Sanford S
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• February 2004 - May 2005: Indep
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• September 2008: Presentation at
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• Coordinator for LEND (The South
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University of Tennessee Profile con
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University of Tennessee Profile con
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4. Johnson, R. K., Hough, M. S., Ki
Page 500 and 501: Center for BrainHealth / The Univer
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Page 504 and 505: McCauley, S.R., McDaniel, M.A., Ped
Page 506 and 507: Levin, H. S., Mendelsohn, D. B., Li
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Page 528 and 529: B. Selected peer-reviewed publicati
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Page 534 and 535: Principal Investigator/Program Dire
Page 540 and 541: West Virginia Brain Injury Associat
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Page 544 and 545: Phone: (304) 345-7757 405 Capitol S
Page 546 and 547: Children's Hospital of Wisconsin Pr
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Page 552 and 553: Sarah Jane Brain Family State Lead
Page 554 and 555: Brain Injury Association of Wyoming
Page 556 and 557: EDUCATION Dorothy Worrell 2302 Sage
Page 558 and 559: of Developmental Disabilities; assi
Page 560 and 561: PUBLICATIONS Member of VISIONS Admi
Page 562 and 563: Sarah Jane Brain Family State Lead
Page 564 and 565: n/a Profile continued Title/Descrip
Page 566 and 567: References 1. Adelson, P.D. (2008).
Page 568 and 569: 30. Centers for Disease Control and
Page 570 and 571: 62. Haddon, W. (1973). Energy damag
Page 572 and 573: 96. Perel, P., Yanagawa, T., Bunn,
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