PABI Plan - The Sarah Jane Brain Project

PABI Plan is being fulfilled by providing support and advice to the State Director who will be
responsible for the day-to-day management of the State Lead Center. The staffing organization
is broken up into the three main responsibilities for each center: developing a Statewide Master
Plan and Statewide Coordination, the Category of Care Responsibility and Case Management
Responsibility.
STAFFING FOR STATEWIDE COORDINATION
Each State Lead Center will be developing and implementing a Statewide Master Plan to create a
seamless, standardized, evidenced-based system of care universally accessible for all
children/young adults and their families regardless of where they live in their state.
Program Director: primary role in overseeing the operation of the State Lead Center and
ensuring the mission of the PABI Plan is being fulfilled by providing support and advice to the
State Director; will be responsible for reporting to CSS Committee of SJBP about activities and
accomplishments of the State Lead Center
Program Director Assistant: full-time administrative support for the Program Director
State Director: responsible for day-to-day management, operations and performance of the State
Lead Center reporting to the Program Director including
Associate State Director: assist State Director in maintaining budget, creating and editing
reports to Program Director and CSS Committee on State Director’s behalf.
State Epidemiologist: primary task will be to integrate the acquisition and analysis of critical
observational data elements relevant for pediatric acquired brain injury characterization and
outcome determination across entire continuum of care as determined by each Category of Care
Epidemiologists; these types of data will potentially include physiological variables, laboratory
studies, genetic profiles, neuroimaging, patient symptom lists, neuropsychological test results,
global outcome measures and patient/caregiver questionnaires and be centered on accurate and
detailed description of the injury and functional recovery, rather than on any predetermined
hypothesis; these data will require new methods of selection, acquisition, validation and analysis
and will benefit from large numbers of participants throughout the national network;
State Epidemiologist Assistant: graduate student studying epidemiology or similar field to
assist the State Epidemiologist
State Scientific Investigation Research Coordinator: primary responsibility will be to
facilitate interaction and exchange of clinical, translational (bench-to-bedside) and basic science
research ideas and protocols between centers and disciplines across entire continuum of care.
Research areas would include but not be limited to emergency and critical care, clinical
neuroscience, translational, basic neurobiology, biomechanics, neuroengineering and
nanotechnology, epidemiology and biobehavioral.
State Scientific Investigation Research Assistant: graduate student studying scientific
investigation methods to assist the State Scientific Investigation Research Coordinator
State Education/Training Coordinator (plus materials): primary responsibility will be to
oversee programs designed to improve educational services and training to improve the capacity
of community agencies to provide services and support to children/young adults and their
families including working with all of their state’s Field Specialists; they will have an additional
budget based upon the population of their state to implement these services and programs
State General Counsel: definition of general counsel; HIPAA and state and federal regulations
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