PABI Plan - The Sarah Jane Brain Project

State Data Manager: primary responsibility will be to assist the State Lead Center employees
with integration of data with The Virtual SJBF Center as well as overall help desk for general
computer problems.
State Public Policy Manager: primary responsibility will be to monitor all local and state rules,
regulations, laws and judicial decisions affecting PABI families, including but not limited to
Medicaid, school IEP procedures and health insurance regulations.
State Community Relations Manager: primary responsibility will be to connect the mission of
SJBP to the communities-at-large by making presentations, ?????
State Administrative Support: general office clerical and administrative support services.
Charity care: each State Lead Center will be able to provide certain services to populations who
have very limited resources or access to these services; decisions about the type of service will
be made by each State Lead Center based on the needs of their state.
Human Resources Support: each State Lead Center will be screening and hiring applicants as
well as processing their benefits; we allocated $1,000 per employee which each State Lead
Center determining the best method for implementing (i.e., some State Lead Centers will handle
this within their primary institutions while some will hire HR personnel).
Training Support: we allocated $250 per employee for orientation and training for new
employees.
Other costs associated with each State Lead Center included in the itemized budget are:
State Lead Center Office Space Cost; State Lead Center Transportation/Travel; State Lead
Center Office Equipment/Communications; State Lead Center Supplies; Annual and Regional
Conferences
State Brain Injury Association Pediatric Programs: each State Lead Center is allocated an
amount to be directed to their respective state Brain Injury Association to develop programs for
the pediatric brain injury community (for those states where a Brain Injury Association does not
exist, the funds will be used to establish one with an emphasis on the pediatric brain injury
community)
STAFFING FOR REGIONAL/NATIONAL CATEGORY OF CARE RESPONSIBILITY
Each State Lead Center will be responsible for continuity and standardization of translational
data collection, dissemination of education/training and monitoring basic science research for
ONE Category of Care for their region (one State Lead Center will also serve as the National
Lead Center for each specific Category of Care)
National Category Director: this person will be responsible for leading the collaboration with
all their respective Category of Care State Lead Centers to make final decisions about the
translational data collected, the standardization of education and training surrounding the
Category of Care and monitoring, encouraging and creating scientific investigative research for
their Category of Care; (this position will only be in the seven National Lead Centers)
National Category Epidemiologist: this person will be responsible for leading the collaboration
with all their respective Category of Care State Lead Centers to implement the collection of
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