PABI Plan - The Sarah Jane Brain Project

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RESEARCH FUNDING Current Support: Idaho Traumatic Brain Injury Implementation Partnership Grant No. H21MC07735 (Principal Investigator). The Specific goals are to: establish a trust fund; solidify the statewide TBI advisory council ; provide a support system to families of returning soldiers, and monitor the aged/disabled waiver and trauma registry. Funding is through HHS- Health Resource and Services Administration, Maternal and Child Health Bureau. 4/2/09-3/31/2013 Idaho Real Choices Person-Centered Hospital Discharge Planning Grant No. 1L0CMS030308/01. (Co-Principal Investigator w/Debra Larsen Ph.D). The goals of this project include developing a sustainable person-centered Hospital discharge model for rural and underserved areas and enhancing systems of information exchange statewide. Funding is through the Centers for Medicaid and Medicaid Services 9/30/08 -9/30/2011 Previous Support: Idaho Traumatic Brain Injury Implementation Partnership Grant No. 1-H21-08-050 (Project Director, Beth Stamm Ph.D. - PI) The purpose of this project is to move forward Idaho’s community-based system of sustainable, comprehensive, coordinated support for individuals with a Traumatic Brain Injury (TBI) and their families through an annual needs/resource assessment, enhancing Idaho’s TBI virtual program center, moving the advisory council forward, advancing virtual grand rounds, and by monitoring implementation of the State’s Trauma registry and use of it’s Medicaid waiver. Idaho Traumatic Brain Injury Implementation Grant No. 1-H21-MC00068-01 (Project Director, Beth Stamm Ph.D- PI.) Develop a sustainable, comprehensive community-based system of support through a distributed, state-wide expert decision support Virtual Program Center. Funded by DHHS/HRSA Maternal and Child Health through the Idaho Department of Health and Welfare 4/1/03 – 3/31/06. Idaho Traumatic Brain Injury Planning Grant, (Project Director, Beth H. Stamm Ph.D-PI ) .Statewide needs assessment and implementation plan development for people with TBI’s and their family members. Funded by DHHS/HRSA Maternal and Child Health through Idaho Department of Health and Welfare 3/2000-3/2003. Systems Change Real Choices (Co-Project Manager). Combined anti-stigma, economic analysis, and effectiveness study to examine support community integration for people with disabilities (developmental, physical, mental, and age-related) in accord with the Olmstead decision. 12/2001-12/2003. Infrastructure Grant (Stamm B.H. Hern. M.H. Spearman, R.C) Brain Injury Association of Idaho, through Idaho Governors Council on Developmental Disabilities, 10/2000 Robert Wood Johnson Foundation, University of New Hampshire, Self-Determination planning grant for persons with developmental disabilities in Idaho. 1998 fiscal year. U.S. Department of Education, State Systems for Transition Services for Youth with Disabilities Program; Idaho Transition Partnership Project, Five Year Systems Change Grant. 1989-1994 U.S. Department of Education, State Systems for Transition Services for youth with Disabilities Program; Idaho Comprehensive School and Community Transition Services, Five Year Systems Change Grant. FY 94. U.S. Department of Health and Human Services, Administration on Developmental Disabilities, National Home of Your Own Alliance; Idaho's Home of Your Own Initiative, One Year Technical Assistance Grant. FY 95. Federal Home Loan Bank of Seattle, Affordable Housing Program, Down Payment Assistance For Persons with Developmental Disabilities FY 95-96. Technical editor in FY 98-99. State of Idaho HOME Program, Idaho Housing Agency; Down Payment/Closing Cost Assistance For Persons with Developmental Disabilities FY95-96. Technical editor in HOME in FY 98. Special Projects and Demonstrations for Providing Supported Employment Services, Five Year Statewide Systems Change Grant Applications to States; Division of Vocational Rehabilitation. Spearman, Russell, C Approximate Award $1,500,000 $800,000 $600,000 $215,000 $1,102,148 $10,000 $15,000 $495,000 $495,831 $50,000 $117,000 $140, 400 $520,000 $453,300 PHS 398 (Rev. 4/98) (Form Page 6) Page _16__ Number pages consecutively at the bottom throughout the application. Do not use suffixes such as 3a, 3b. FF
Sarah Jane Brain Family State Lead Center of Excellence For the state of Illinois University of Illinois Chicago www.uic.edu REGION: Midcentral CATEGORY OF CARE: Rural/Tele‐health (National Lead) Program Director: Deborah Little, Ph.D. Position Title: Assistant Professor of Neurology and Rehabilitation Department: Center for Stroke Research Address: 1645 W. Jackson, suite 400, Chicago, IL 60612 Phone: 312‐355‐5405 Email: little@uic.edu Level 1 Center(s): Chicago (UIC and Comer Children's Hospital), Rockford (Rockford Memorial), Springfield (St. John's Hospital), Urbana (Carle Foundation Hospital), Oak Lawn (Advocate Christ Hospital), Maywood (Loyola University Medical Center) Level 2 Center(s): Chicago Public School District, Elgin School District, Rockford School District, Indian Prarie School District Level 3 Center(s): Chicago (La Rabita Childrens Hospital), Peoria (OSFT St. Francis), Park Ridge (Advocate Lutheran General Hospital), Evanston (Evanston Hospital), Chicago (Stroger Hospital of Cook County), Chicago (Sinai Hospital) Number of jobs PABI Grant creates in Illinois: 184 Budget Overview for State Lead Center State Lead Center Management Sub‐total: $ 8,417,025 Category of Care Management Sub‐total: $ 14,091,916 Case Management Sub‐total: $ 15,789,201 State Lead Center Sub‐total: $ 38,330,142 Indirect Cost to Institution (20%): $ 7,666,028 Administrative Cost to SJBF (2%): $ 766,603 SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 46,762,774
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The Honorable Kathleen Sebelius Sec
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promote the integration and full in
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The National Pediatric Acquired Bra
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Phase Three consisted of having the
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the fact that their brains are stil
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methods developed by the SJBP to sh
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Two-Year Milestones Quarter 1: •
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Figure 2: CDC figures for death and
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PA/TBI and their families, delivere
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appropriately in the care of the ch
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CHAPTER 2: The TBI Model System and
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2. States need to “buy” into id
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implications of shaking a baby; and
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service was developed for children
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a. There is a lack of evidence for
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8. In addition, ongoing education a
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While there are often significant i
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are largely unknown. In particular,
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Family Perspective: Without early i
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4. Improve the specific identificat
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unemployment, public-assisted housi
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REFERRAL FROM ACUTE CARE, REHABILIT
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understanding determinants of long-
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Research - Increase capacity of loc
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Alternatively, indirect effects on
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Specific questions regarding tracki
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CHAPTER 7: Categories of Care: Tran
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care of syndromes associated with a
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Social Opportunities The services a
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Finally, a third area of problem af
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CHAPTER 8: Category of Care: Rural/
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• Lack of public transportation
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• Provide consequences for wastin
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Rural / Tele-health issues during A
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educated and thus are less aware of
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Chapter 9: Category of Care: The Vi
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"To improve the quality of our heal
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Registry technology has been used a
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CHAPTER 10: Organizational Structur
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Northeast Region: New York Mid-Atla
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State IT Manager: primary responsib
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translational data for their Catego
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CHAPTER 11: Financing the PABI Plan
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projects, a smaller state will have
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Summary of PABI Grant Proposal cont
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Sarah Jane Brain Family State Lead
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The University of Alabama at Birmin
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h Principal Investigator/Program Di
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The Children's Hospital at Providen
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Barrow Neurological Institute / St.
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Employment Education Postgraduate T
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Certifications Neuroscience Grand R
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UAMS/Arkansas Children's Hospital R
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Program Director/Principal Investig
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C. Research Support Ongoing Researc
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Mattel Children's Hospital UCLA Pro
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BIOGRAPHICAL SKETCH Provide the fol
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17. Madikians A and Giza CC. A Clin
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The Children's Hospital Profile con
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CURRICULUM VITAE JEANNE E. DISE, Ph
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Curriculum Vitae Jeanne E. Dise Pag
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Yale‐New Haven Children's Hospita
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Yale‐New Haven Children's Hospita
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2001 - Associate Professor, Sect of
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Page 162 and 163: Nemours / Alfred I. duPont Hospital
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Page 196 and 197: Jean L. Johnson, DrPH April 19, 200
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Page 204 and 205: NAME RUSSELL C. SPEARMAN BIOGRAPHIC
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Page 230 and 231: NAME Lindgren, Scott D. eRA COMMONS
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Page 246 and 247: Joseph A. Iocono, M.D. Curriculum V
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Joseph A. Iocono, M.D. Curriculum V
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Joseph A. Iocono, M.D Curriculum Vi
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Louisiana Health Care Quality Forum
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Shannon Robshaw, MSW is the Executi
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Maine Institute of Human Genetics a
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Maine Institute of Human Genetics a
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Principal Investigator/Program Dire
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Kennedy Krieger Institute Profile c
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Kennedy Krieger Institute Profile c
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Children's Hospital of Boston and H
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Date Updated: November 5, 2008 CURR
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2001- Member, Advisory Committee Ha
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underway to best direct prevention
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2. Mooney DP, Lewis JE, Connors RH,
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40. Waltzman M, Baskin M, Wypij D,
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19. Downard C and Mooney DP. Pediat
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47. Kangas KK, Lee LK, Forbes P, Os
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29. Kansas Trauma Conference, Wichi
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Date Prepared: January 5, 2009 Name
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Regional 2006- Vice President of Ma
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Honors and Prizes Year Name of Hono
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2000 Pediatric Spine Injuries Singl
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2006 Infant Skull Deformities Pedia
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2002 Management of Sports-related C
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Clinical Innovations I have been ab
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10. Dunn IF, Proctor MR, Day AL. Lu
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Trauma Surgery, Neurology, Neuropsy
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Michigan Public Health Institute an
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Michigan Public Health Institute an
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Vonderheid, S.C., Pohl, J. M., Tann
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Mayo Clinic Profile continued Title
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Mayo Clinic Profile continued Title
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LICENSURE Minnesota HONORS/AWARDS S
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Spina Bifida in Adulthood Physical
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Sherilyn W. Driscoll, MD Page 6 of
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-Implementation of new pediatric wh
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BIBLIOGRAPHY Peer-reviewed Articles
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Children's Rehabilitation Services
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Curriculum Vitae Shannon Janine Smi
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Shannon Janine Smith, MD Page 2 Hon
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Center, Pediatric Grand Rounds Shan
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Saint Louis Children's Hospital Pro
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Saint Louis Children's Hospital Pro
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Completed Research Support Principa
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Montana State University Billings /
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Montana State University Billings /
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• Region IV Paraeducator Summer I
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Madonna Rehabilitation Hospital Pro
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Madonna Rehabilitation Hospital Pro
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Staff Occupational Therapist: 1997-
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Sunrise Children's Hospital Profile
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Sunrise Children's Hospital Profile
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Dartmouth Medical School Profile co
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BIOGRAPHICAL SKETCH NAME POSITION T
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Brain Injury Association of New Jer
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Biographical Sketch Barbara Geiger-
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University of New Mexico School of
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Mount Sinai Medical Center Profile
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The Clinical Center for the Study o
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NAME Stephen R. Hooper eRA COMMONS
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Hooper, S.R., Hatton, D., Schaaf, J
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Still pending Profile continued Tit
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Cincinnati Children's Hospital Medi
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Oklahoma State University / Center
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CURRICULUM VITAE NAME Stanley E. Gr
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Courtesy Staff, 1990-1998 Leave of
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OSU-CHS International Medicine Club
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ViroPharma Protocol 637-303: Princi
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Media presentations: Medical Minute
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Teaching Research Institute and Wes
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BIOGRAPHICAL SKETCH NAME POSITION T
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Voss, J., Stevens, T., Glang, A., &
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Children's Hospital of Pittsburgh o
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BIOGRAPHICAL SKETCH Provide the fol
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C. Research Support. List selected
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Puerto Rico Medical Center / Univer
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Puerto Rico Medical Center / Univer
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LICENCE TO PRACTICE MEDICINE: (plac
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REFERENCES Dr. Nathan Rifkinson, UP
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Hasbro Children's Hospital Child Pr
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Hasbro Children's Hospital Child Pr
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1990-1996 Director of Medical Progr
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infant death and suspected physical
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Medical University of South Carolin
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Medical University of South Carolin
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Role: PI Principal Investigator/Pro
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Center for Disabilities / Sanford S
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Center for Disabilities / Sanford S
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• February 2004 - May 2005: Indep
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• September 2008: Presentation at
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• Coordinator for LEND (The South
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University of Tennessee Profile con
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University of Tennessee Profile con
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4. Johnson, R. K., Hough, M. S., Ki
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Center for BrainHealth / The Univer
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Center for BrainHealth / The Univer
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McCauley, S.R., McDaniel, M.A., Ped
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Levin, H. S., Mendelsohn, D. B., Li
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University of Utah Profile continue
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University of Utah Profile continue
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5. Statler KD, Jenkins LW, Dixon CE
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F. Invited Presentations Internatio
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The Vermont Center for Children, Yo
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The Vermont Center for Children, Yo
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2006-Present Chairman of the Child
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Abdellaoui A, Bartels M, Hudziak JJ
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UVA Children's Hospital and Kluge's
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UVA Children's Hospital and Kluge's
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B. Selected peer-reviewed publicati
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University of Washington / Harborvi
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University of Washington / Harborvi
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West Virginia Brain Injury Associat
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West Virginia Brain Injury Associat
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Phone: (304) 345-7757 405 Capitol S
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Children's Hospital of Wisconsin Pr
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Children's Hospital of Wisconsin Pr
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Brain Injury Association of Wyoming
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EDUCATION Dorothy Worrell 2302 Sage
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of Developmental Disabilities; assi
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PUBLICATIONS Member of VISIONS Admi
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n/a Profile continued Title/Descrip
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References 1. Adelson, P.D. (2008).
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30. Centers for Disease Control and
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62. Haddon, W. (1973). Energy damag
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96. Perel, P., Yanagawa, T., Bunn,
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PABI Plan - The Sarah Jane Brain Project

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