PABI Plan - The Sarah Jane Brain Project

The National Pediatric Acquired Brain Injury Plan Grant Proposal
Developed by the National Advisory Board of
The Sarah Jane Brain Foundation
TABLE OF CONTENTS
Foreword by Sarah Jane Donohue…….………………………………………………. 2
Executive Summary ……………………………………………….………………… 5
Two-year Milestones………………………………………………………………….. 10
Chapter 1: Analysis of Pediatric Acquired Brain Injury Today………………………. 11
Chapter 2: The TBI Model System and the PA/TBI Model System………………….. 18
Chapter 3: Category of Care – Prevention ………………………...…………………. 21
Chapter 4: Category of Care – Acute Period of Care ……………...……...…...……… 23
Chapter 5: Category of Care – Mild TBI Identification, Assessment and Treatment….. 31
Chapter 6: Categories of Care – Reintegration/Long-Term Care……………………..… 37
Chapter 7: Categories of Care –Adult Transition……………………………………...… 50
Chapter 8: Category of Care – Rural/Tele-Health ……………………………………. 58
Chapter 9: Category of Care – The Virtual SJBF Center (registry and database) …… 68
Chapter 10: Organizational Structure……………………………………………. …… 74
Chapter 11: Financing the PABI Plan……………………………………………..…… 82
Chapter 12: Assumptions and Overall Budget……….……………………………..…… 85
Chapter 13: State Lead Center Profiles and Individual Budgets.…………………..…… 88
References ……………………………………………………………………………… 571