PABI Plan - The Sarah Jane Brain Project

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Sherilyn W. Driscoll, MD Page 6 of 10 Outcomes of Treatment in Adolescent Autonomic Dysfunction Lai CCH, Graner KK, Risher JL, Driscoll SW, Brands CK, Porter CJ, Fischer PR 17th International Symposium on the Autonomic Nervous System Puerto Rico Normal reference ranges for orthostatic changes in heart rate and blood pressure in adolescents Skinner J, Driscoll S, Fischerr P, Brands C, Kuntz N, Pianosi P, Nelson D, Porter C, Burkhardt B 18th International Symposium on the Autonomic Nerrvous System and 2nd Joint Meeting of the ERAS ans AAS Vienna, Austria National Carotid-Cavernous Fistulas in the Head Injured: Two Case Reports American Academy of Physical Medicine and Rehabilitation Osteomalacia in High Quadriplegia: A Case Report American Spinal Injury Association Dizziness in a pediatric and adolescent referral population. Marsh AM, Fischer PR, Brands CK, Billings ML, Mack KJ, Porter CJ, Driscoll SW, Fisher JL, Grothe RM, Kuntz NL Pediatric Academic Societies Washington, District of Columbia Regional Female Urinary Incontinence Minnesota Physiatric Society Scientific Session Adolescent autonomic dysfunction and chronic fatigue, pain, dizziness and nausea Fischer PR, Brands CK, Porterr CJ, Pittock ST, Mack KJ, Kuntz NL, Fisherr JL, Grothe RM, Driscoll SW, Lai DD, Whiteside SP, Graner KK, Wilder RT, Harbeck-Weber CS, marsh AM, Risma JM, Antiel RM, Nelson DE, Yim PJ Mayo Clinic Clinical Research Appreciation Month Poster Presentation Events and Clinical Research Conference Rochester and Minneapolis, Minnesota Standing Up Together for Patient Safety for Pediatric Patients in Wheelchairs McKeeman R, Driscoll SW, McGarry K One Voice Leadership Forum Rochester, Minnesota INVITED PRESENTATIONS AND VISITING PROFESSORSHIPS Invited Presentations Chronic Pain Management in Adolescents Pediatric Days Rochester, Minnesota Spina Bifida Pediatric Grand Rounds Mayo School of Graduate Medical Education Rochester, Minnesota 11/2006 10/2007 11/1992 05/1993 05/2005 10/1992 08/2006 11/2008 09/2002 03/2004
Sherilyn W. Driscoll, MD Page 7 of 10 Pediatric Rehab-Who, What, When, Where, and Why? Pediatric Grand Rounds Mayo School of Graduate Medical Education Cerebral Palsy in Adulthood: Special Children Grow Up Mayo Clinic Alumni Meeting Ponte Vedra, Florida Wee FIM Pediatric Multiple Sclerosis Meeting in Department of Pediatric Neurology Rochester, Minnesota Postural Orthostatic Tachycardia in Adolescents. American Academy of Physical Medicine and Rehabilitation Annual Assembly Honolulu, Hawaii Spina Bifida/Cerebral Palsy Pediatric Days Washington DC Pediatric PM&R Rehab Unit Advisory Council Rochester, Minnesota CLINICAL PRACTICE, INTERESTS, AND ACCOMPLISHMENTS Clinical practice accomplishments since 2003: 05/2005 10/2005 11/2006 11/2006 08/2007 03/2008 -Consolidation of disparate pediatric therapy practices into single unified inpatient and single unified outpatient practices -Development of annual pediatric rehabilitation strategic plan -Initiation of a monthly pediatric rehabilitation "practice committee" to address the needs of our patients and practice -Obtained the "STARscanner" 3-D laser data acquisition system to bring our plagiocephaly evaluations and treatment plan to state of the art level -CARF accreditation for Pediatric Family Centered Rehabilitation Program (first ever) -Advancement of pediatric rehabilitation research projects and including collaboration with other pediataric departments -Participation in the design and practice planning related to the Mayo 16 multispeciality pediatric project -Development of marketing strategy, particularly related to plagiocephaly evaluations and treatment -Facilitation of patient population growth -Development of pediatric rehabilitation website -Development and/or review of dozens of patient education pieces relevant to pediatric PM&R -Development and initiation of Pediatric Rehabilitation Medicine Fellowship
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The Honorable Kathleen Sebelius Sec
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promote the integration and full in
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The National Pediatric Acquired Bra
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Phase Three consisted of having the
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the fact that their brains are stil
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methods developed by the SJBP to sh
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Two-Year Milestones Quarter 1: •
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Figure 2: CDC figures for death and
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PA/TBI and their families, delivere
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appropriately in the care of the ch
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CHAPTER 2: The TBI Model System and
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2. States need to “buy” into id
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implications of shaking a baby; and
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service was developed for children
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a. There is a lack of evidence for
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8. In addition, ongoing education a
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While there are often significant i
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are largely unknown. In particular,
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Family Perspective: Without early i
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4. Improve the specific identificat
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unemployment, public-assisted housi
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REFERRAL FROM ACUTE CARE, REHABILIT
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understanding determinants of long-
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Research - Increase capacity of loc
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Alternatively, indirect effects on
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Specific questions regarding tracki
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CHAPTER 7: Categories of Care: Tran
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care of syndromes associated with a
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Social Opportunities The services a
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Finally, a third area of problem af
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CHAPTER 8: Category of Care: Rural/
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• Lack of public transportation
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• Provide consequences for wastin
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Rural / Tele-health issues during A
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educated and thus are less aware of
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Chapter 9: Category of Care: The Vi
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"To improve the quality of our heal
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Registry technology has been used a
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CHAPTER 10: Organizational Structur
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Northeast Region: New York Mid-Atla
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State IT Manager: primary responsib
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translational data for their Catego
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CHAPTER 11: Financing the PABI Plan
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projects, a smaller state will have
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Summary of PABI Grant Proposal cont
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Sarah Jane Brain Family State Lead
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The University of Alabama at Birmin
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h Principal Investigator/Program Di
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The Children's Hospital at Providen
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Barrow Neurological Institute / St.
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Employment Education Postgraduate T
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Certifications Neuroscience Grand R
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UAMS/Arkansas Children's Hospital R
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Program Director/Principal Investig
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C. Research Support Ongoing Researc
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Mattel Children's Hospital UCLA Pro
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BIOGRAPHICAL SKETCH Provide the fol
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17. Madikians A and Giza CC. A Clin
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The Children's Hospital Profile con
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CURRICULUM VITAE JEANNE E. DISE, Ph
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Curriculum Vitae Jeanne E. Dise Pag
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Yale‐New Haven Children's Hospita
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Yale‐New Haven Children's Hospita
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2001 - Associate Professor, Sect of
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Major goal: to provide education in
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Nemours / Alfred I. duPont Hospital
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First Name: Michael MI: A Last Name
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Children's National Medical Center
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University of Miami Miller School o
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FF Principal Investigator/Program D
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Huang TT, He D, Kleiner G, Kuluz J.
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Children's Healthcare of Atlanta Pr
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Children's Healthcare of Atlanta Pr
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Principal Investigator: Haarbauer-K
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Center on Disability Studies at The
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Jean L. Johnson, DrPH April 19, 200
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Jeffrey K. Okamoto M.D. Curriculum
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Idaho State University / Institute
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NAME RUSSELL C. SPEARMAN BIOGRAPHIC
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Spearman, Russell, C Spearman, R.C.
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RESEARCH FUNDING Current Support: I
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University of Illinois Chicago Prof
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University of Illinois Chicago Prof
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1997 Margaret Faust Thesis Award, S
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James Whitcomb Riley Hospital for C
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PROGRAM DIRECTOR: Jodi L. Smith, Ph
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American Association of Anatomists
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IU Faculty Steering Committee ‐ 7
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University of Iowa Children's Hospi
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NAME Lindgren, Scott D. eRA COMMONS
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Arroyos-Jurado, E., Paulsen, J.S.,
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Center for Child Health and Develop
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Center for Child Health and Develop
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Tyler 2 Glang, A., Dise-Lewis, J.,
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Tyler 4 DePompei, R., Glang, A., &
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University of Kentucky Hospital Pro
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University of Kentucky Hospital Pro
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Joseph A. Iocono, M.D. Curriculum V
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Joseph A. Iocono, M.D Curriculum Vi
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Louisiana Health Care Quality Forum
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Shannon Robshaw, MSW is the Executi
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Maine Institute of Human Genetics a
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Maine Institute of Human Genetics a
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Principal Investigator/Program Dire
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Kennedy Krieger Institute Profile c
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Kennedy Krieger Institute Profile c
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Page 294 and 295: Children's Hospital of Boston and H
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Page 312 and 313: Date Prepared: January 5, 2009 Name
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Page 340 and 341: LICENSURE Minnesota HONORS/AWARDS S
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Page 348 and 349: BIBLIOGRAPHY Peer-reviewed Articles
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Page 356 and 357: Curriculum Vitae Shannon Janine Smi
Page 358 and 359: Shannon Janine Smith, MD Page 2 Hon
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Brain Injury Association of New Jer
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Biographical Sketch Barbara Geiger-
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University of New Mexico School of
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Mount Sinai Medical Center Profile
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The Clinical Center for the Study o
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NAME Stephen R. Hooper eRA COMMONS
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Hooper, S.R., Hatton, D., Schaaf, J
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Still pending Profile continued Tit
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Cincinnati Children's Hospital Medi
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Oklahoma State University / Center
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CURRICULUM VITAE NAME Stanley E. Gr
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Courtesy Staff, 1990-1998 Leave of
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OSU-CHS International Medicine Club
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ViroPharma Protocol 637-303: Princi
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Media presentations: Medical Minute
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Teaching Research Institute and Wes
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BIOGRAPHICAL SKETCH NAME POSITION T
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Voss, J., Stevens, T., Glang, A., &
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Children's Hospital of Pittsburgh o
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BIOGRAPHICAL SKETCH Provide the fol
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C. Research Support. List selected
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Puerto Rico Medical Center / Univer
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Puerto Rico Medical Center / Univer
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LICENCE TO PRACTICE MEDICINE: (plac
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REFERENCES Dr. Nathan Rifkinson, UP
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Hasbro Children's Hospital Child Pr
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Hasbro Children's Hospital Child Pr
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1990-1996 Director of Medical Progr
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infant death and suspected physical
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Medical University of South Carolin
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Medical University of South Carolin
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Role: PI Principal Investigator/Pro
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Center for Disabilities / Sanford S
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Center for Disabilities / Sanford S
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• February 2004 - May 2005: Indep
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• September 2008: Presentation at
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• Coordinator for LEND (The South
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University of Tennessee Profile con
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University of Tennessee Profile con
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4. Johnson, R. K., Hough, M. S., Ki
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Center for BrainHealth / The Univer
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Center for BrainHealth / The Univer
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McCauley, S.R., McDaniel, M.A., Ped
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Levin, H. S., Mendelsohn, D. B., Li
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University of Utah Profile continue
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University of Utah Profile continue
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5. Statler KD, Jenkins LW, Dixon CE
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F. Invited Presentations Internatio
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The Vermont Center for Children, Yo
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The Vermont Center for Children, Yo
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2006-Present Chairman of the Child
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Abdellaoui A, Bartels M, Hudziak JJ
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UVA Children's Hospital and Kluge's
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UVA Children's Hospital and Kluge's
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B. Selected peer-reviewed publicati
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University of Washington / Harborvi
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University of Washington / Harborvi
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West Virginia Brain Injury Associat
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West Virginia Brain Injury Associat
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Phone: (304) 345-7757 405 Capitol S
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Children's Hospital of Wisconsin Pr
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Children's Hospital of Wisconsin Pr
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Brain Injury Association of Wyoming
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EDUCATION Dorothy Worrell 2302 Sage
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of Developmental Disabilities; assi
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PUBLICATIONS Member of VISIONS Admi
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n/a Profile continued Title/Descrip
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References 1. Adelson, P.D. (2008).
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30. Centers for Disease Control and
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62. Haddon, W. (1973). Energy damag
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96. Perel, P., Yanagawa, T., Bunn,
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PABI Plan - The Sarah Jane Brain Project

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