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Nutrition Interventions for Children with Special Health Care Needs

Nutrition Interventions for Children with Special Health Care Needs

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Chapter 9 - Behavior Issues Related to Feeding<br />

The operant conditioning was still in place. When food refusal was well established<br />

and the child was <strong>for</strong>mally diagnosed <strong>with</strong> failure to thrive, he was referred to<br />

a feeding team <strong>with</strong> a behaviorist. At this point a long and arduous process of<br />

systematic desensitization, rein<strong>for</strong>cement, escape extinction, and careful pain<br />

management was needed to progress his oral feeding.<br />

Case: Aversive conditioning as a result of sensory and motor concerns<br />

Charlotte was a young child <strong>with</strong> sensory, physical, and environmental factors<br />

that conditioned her to avoid eating. Charlotte came from a poor socioeconomic<br />

background. She was never evaluated <strong>for</strong> developmental concerns.<br />

Because she was significantly underweight, she was referred <strong>for</strong> a behavioral<br />

feeding evaluation. The physician saw no need <strong>for</strong> a developmental or sensory<br />

evaluation because there were many foods that “she ate when she felt like it.”<br />

A comprehensive evaluation was conducted according to the policy of the<br />

feeding team. During the evaluation, Charlotte initially refused to eat. She<br />

turned her head and tried to get out of her chair. Her mother talked to her,<br />

gently encouraging her to eat and trying to play games to amuse and distract<br />

her during the feeding trial. She eventually ate several very large bites of<br />

soft foods, and then began to refuse all food again. She avoided hard and<br />

crunchy foods and smooth foods, like whipped cream and ranch dressing.<br />

She sat very straight in her chair and her fingers splayed when smooth foods<br />

were introduced. She didn’t chew very effectively and “pocketed” foods in<br />

her cheeks. Several very subtle gags were noted, as was a hypoactive gag<br />

response during an inter-oral examination.<br />

Observation during play suggested poor quality of movement. A sensory<br />

history was taken and a developmental observation was completed which<br />

revealed significant sensory processing difficulties, inability to move in<br />

flexion, and poor oral motor skills. A diagram of Charlotte’s feeding behaviors<br />

includes:<br />

food textures = discom<strong>for</strong>t<br />

swallowing = gag/panic<br />

eating = gag/panic/discom<strong>for</strong>t<br />

refusal behaviors=attention/toys/escape<br />

For Charlotte, as <strong>with</strong> many children, there were sensory and physical reasons <strong>for</strong><br />

her food refusal. At the same time, her caregivers had adapted to her behavior in a<br />

way that provided <strong>for</strong> environmental rein<strong>for</strong>cement <strong>for</strong> her food refusal. Once again,<br />

104 <strong>Nutrition</strong> <strong>Interventions</strong> <strong>for</strong> <strong>Children</strong> With <strong>Special</strong> <strong>Health</strong> <strong>Care</strong> <strong>Needs</strong>

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