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Nutrition Interventions for Children with Special Health Care Needs

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Chapter 17 - <strong>Nutrition</strong> <strong>Interventions</strong> <strong>for</strong> Cystic Fibrosis<br />

Assessment Intervention Evaluation/Outcome<br />

Clinical<br />

Assess <strong>for</strong><br />

Fewer stools (2/day) and normal<br />

consistency<br />

Fewer stomach aches<br />

Adjust pancreatic enzyme dose to achieve optimal<br />

absorption and prevent constipation <strong>with</strong>out<br />

the risk of fibrosing colonopathy (sometimes<br />

associated <strong>with</strong> an excessive dose or abrupt<br />

discontinuation of pancreatic enzymes).<br />

No rectal prolapse<br />

• stool (frequency, consistency, size, and color)<br />

• abdominal cramping or pain<br />

• use of pancreatic enzymes (product name, dose, and<br />

frequency)<br />

• use of over-the-counter medications as alternative<br />

nutrition therapies<br />

Re-evaluate pancreatic enzyme<br />

dosage at each clinic visit.<br />

Rule out distal intestinal obstruction syndrome<br />

(DIOS), which has similar symptoms to<br />

obstipation or constipation. (Patient needs to be<br />

seen in a CF center.) 10<br />

Rule out dehydration.<br />

Medication-nutrient interactions<br />

are identified and addressed.<br />

Address medication-nutrient interactions. (See<br />

Chapter 5)<br />

Identify possible medication-nutrient interactions, including<br />

nausea, vomiting, or diarrhea, possibly attributed to<br />

antibiotic therapy.<br />

Therapy does not interfere <strong>with</strong><br />

adequate intake.<br />

If chest physio-therapy causes vomiting, complete<br />

meals at least 1 hour be<strong>for</strong>e therapy or delay<br />

Assess effects of chest physio-therapy on intake (can cause<br />

vomiting).<br />

meals until ½ hour after.<br />

Consider energy-dense liquid supplement. Difficulty <strong>with</strong> breathing does not<br />

interfere <strong>with</strong> adequate energy<br />

intake.<br />

Patient is tolerating a<br />

nutritionally adequate<br />

diet <strong>with</strong>out experiencing<br />

gastrointestinal symptoms.<br />

Assess effects of difficulty <strong>with</strong> breathing on energy intake<br />

(difficult breathing can interfere <strong>with</strong> ability to chew and<br />

swallow).<br />

<strong>Nutrition</strong><br />

Assess intake by diet history. Determine intake of energy,<br />

protein, carbohydrate, fat, vitamins, and minerals <strong>with</strong> 24<br />

hour recall or food record. Specific guidelines are provided<br />

below.<br />

Determine use of supplements, enteral products, calorie<br />

additives, vitamins, and minerals. Identify product name,<br />

amount, and frequency. Obtain exact <strong>for</strong>mula recipe used by<br />

the family.<br />

196 <strong>Nutrition</strong> <strong>Interventions</strong> <strong>for</strong> <strong>Children</strong> With <strong>Special</strong> <strong>Health</strong> <strong>Care</strong> <strong>Needs</strong><br />

Provide recommendations <strong>for</strong> adequate nutrient<br />

intake. Specific guidelines are provided below.<br />

Diet should have no limitations <strong>for</strong> fat,<br />

carbohydrate, or protein.

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