Nutrition Interventions for Children with Special Health Care Needs

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Chapter 16 - Nutrition Interventions for Respiratory Diseases 12. Groothuis JR. Home oxygen promotes weight gain in infants with bronchopulmonary dysplasia. Am J Dis Child. 1987; 141:992-995. 13. Atkinson SA. Chapter 36: Nutrition for premature infants with bronchopulmonary dysplasia. In Thureen PJ, Hay WW, eds. Neonatal Nutrition and Metabolism. 2nd ed. Cambridge University Press, 2006. 14. Singer L, Martin RJ, Hawkins SW, Benson Szekely LJ, Yamashita TS, Carlo WA. Oxygen desaturation complicates feeding in infants with bronchopulmonary dysplasia after discharge. Pediatrics. 1992; 90:380-384. 15. Wolf LS, Glass RP. Special diagnostic categories. In: Wolf LS, Glass RP, eds. Feeding and Swallowing Disorders in Infancy. Tucson, Arizona: Therapy Skill Builders. 1992; 297-386. 16. Singer LT, Davillier M, Preuss L, Szekely L, Hawkins S, Yamashita T, Baley J. Feeding interactions in infants with very low birth weight and bronchopulmonary dysplasia. J Dev Behav Pediatr. 1996; 17:69-76. Additional References Guo SM, Roche AF, Fomon SJ, Nelson Se, Chumlea WC, Rogers RR, Baumgartner RN, Ziegler EE, Siervogel RM. Reference data on gains in weight and length during the first two years of life. J Pediatr. 1991;119:355-362. Moyer-Mileur L. Chapter 5: Laboratory assessment. In: Groh-Wargo S, Thompson M, Cox JH, eds. Nutritional Care for High Risk Newborns, revised ed. Chicago: Precept Press, Inc.; 2000. Krug-Wispe SK Chapter 29: Osteopenia of prematurity. In: Groh-Wargo S, Thompson M, Cox JH, eds. Nutritional Care for High Risk Newborns, revised ed. Chicago: Precept Press, Inc.; 2000. Foman S. Nutrition of Normal Infants. St. Louis: Mosby; 1993. Banks-Randall B, Ballard RA. Chapter 49: Bronchopulmonary dysplasia. In Taeusch, Ballard, and Gleason, eds. Avery’s Diseases of the Newborn 8th ed, Elsevier; 2005. 190 Nutrition Interventions for Children With Special Health Care Needs
Chapter 17 Section 3 - Condition-Specific Nutrition Interventions Nutrition Interventions for Cystic Fibrosis Susan Casey, RD, CD Cystic fibrosis (CF) is a complex, multi-system disorder characterized by abnormally thick secretions from the exocrine glands that impair the function of the lungs and digestive system. It is one of the most common genetic disorders in children. The incidence is highest among Caucasians, approximately one in 3200 persons in the Caucasian population (1). The median age of survival for persons with CF today is greater than 31 years, quite an improvement over 1950 when the average life expectancy was one year. The primary cause of morbidity and death in patients with CF is progressive pulmonary disease (2). The major clinical manifestations of CF include chronic lung disease; increased levels of sodium, potassium, and chloride in the sweat; and exocrine pancreatic insufficiency, which is a reduced or absent production of digestive enzymes and a reduced secretion of bicarbonate. The child with untreated CF may have growth failure, malnutrition, chronic pulmonary symptoms, bulky, foul-smelling stools, and abdominal cramps. Typical pulmonary symptoms are chronic cough, asthma-like symptoms, recurrent pneumonia, nasal polyps, and chronic sinusitis (3). The diagnosis of CF is confirmed by two positive sweat chloride tests (Gibson-Cook method), properly performed and interpreted. Every person with CF should have this diagnosis confirmed in a facility that is approved by the Cystic Fibrosis Foundation. The approved Cystic Fibrosis Centers are required to maintain the highest diagnostic and treatment standards. Since the gene responsible for cystic fibrosis was identified in 1989, genotyping with two identifiable alleles has also met the requirement for diagnosis in the presence of an ambiguous sweat chloride test or a quantitynot-sufficient sweat chloride test (4). Two positive genotypes for CF can also be considered diagnostic. CF Newborn Screening is available in all states. In Washington, all infants are tested for IRT (Immunoreactive Trypsinogen) at birth. Infants with two positive IRT’s are Nutrition Interventions for Children With Special Health Care Needs 191
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Nutrition Interventions for Childre
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Kay Kopp, OTR/L Occupational Therap
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Appendices Appendix A Sample Screen
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ii Nutrition Interventions for Chil
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Population “Children with special
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vi Nutrition Interventions for Chil
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Chapter 1 - Nutrition Screening and
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Chapter 2 - Anthropometricss needs,
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Chapter 2 - Anthropometricss Statur
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Chapter 2 - Anthropometricss Techni
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Chapter 2 - Anthropometricss paraly
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Chapter 2 - Anthropometricss time a
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Chapter 2 - Anthropometricss measur
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Chapter 2 - Anthropometricss Mild m
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Chapter 2 - Anthropometricss 9. Re-
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Chapter 2 - Anthropometricss 5. Per
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Chapter 2 - Anthropometrics Table 2
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Chapter 2 - Anthropometricss Refere
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Chapter 2 - Anthropometricss 26. Kr
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Chapter 3 - Physical Activity for C
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Chapter 4 - Breastfeeding recommend
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Chapter 4 - Breastfeeding Table 4-1
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Chapter 4 - Breastfeeding Assessmen
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Chapter 4 - Breastfeeding 58 Nutrit
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Chapter 5 - Medication-Nutrient Int
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Chapter 6 - Nutrition Interventions
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Chapter 8 - Oral-Motor Feeding Prob
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Chapter 9 - Behavior Issues Related
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Chapter 10 - Enteral Feeding Other
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Chapter 10 - Enteral Feeding Table
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Chapter 10 - Enteral Feeding Table
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Chapter 10 - Enteral Feeding Refere
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Chapter 11 - Community Monitoring o
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Chapter 12 - Accommodating Special
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Chapter 21 - Nutrition Intervention
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Chapter 22 - Ketogenic Diet for Sei
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Appendix A Please list any other nu
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Appendix A Baby formula What kind o
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Appendix B Manufacturer Description
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Appendix C 282 Nutrition Interventi
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Appendix D 284 Nutrition Interventi
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Appendix E 292 Nutrition Interventi
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Appendix E Table 3: Parent-Specific
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Appendix F Percentiles of Upper Arm
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Appendix F 302 Nutrition Interventi
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Appendix G 304 Nutrition Interventi
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Appendix H 312 Nutrition Interventi
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Appendix I 320 Nutrition Interventi
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Appendix J 328 Nutrition Interventi
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Appendix K 336 Nutrition Interventi
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Appendix K 338 Nutrition Interventi
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Appendix L 340 Nutrition Interventi
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Appendix M 342 Nutrition Interventi
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Appendix M 344 Nutrition Interventi
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Appendix N Gastrostomy Tube Feeding
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Appendix N activities. When feeding
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Appendix N Feeding Sets/Extensions
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Appendix N Fluid and Electrolytes W
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Appendix N osmolality of full-stren
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Appendix N Modular Products Modular
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Appendix N his family, and the home
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Appendix N • The feeding tube may
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Appendix N equipment. The Special S
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Appendix N Table N-2: Common Compli
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Appendix N Complication Possible Ca
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Appendix N 368 Nutrition Interventi
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Appendix O Some conditions increase
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Appendix O Table O-3: Recommended P
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Appendix O 374 Nutrition Interventi
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Appendix P Diet Prescription for Me
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Appendix Q Goals Considerations for
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Appendix R Condition Description Nu
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Appendix R Condition Description Nu
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Appendix R References 1. Ekvall SW
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Appendix S Table S-1: Infant Formul
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Appendix S Comments Osmolality (mOs
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Appendix S Table S-2: Pediatric For
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Appendix S Table S-3: Modular Produ
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Appendix S Comments Energy (kcal) P
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Appendix S Contact Information Abbo
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Appendix T Powdered Formulas Accura
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Appendix T Table T-1: Liquid Concen
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Appendix T 402 Nutrition Interventi
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Appendix U Nutrition Strategies for
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Appendix U ADA Pocket Guide to Nutr
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Glossary Autism Spectrum Disorders
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Glossary Early intervention service
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Glossary Length (recumbent length)
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Glossary Stadiometer moveable headb
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Index specialist 98 target 108 Bink
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Index elemental formula 348 elimina
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Index I ICF. See International Clas
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Index risk indicators 4 screening 1
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Index suppositories 72, 77 Surmonti
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Nutrition Interventions for Children with Special Health Care Needs

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