Nutrition Interventions for Children with Special Health Care Needs

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Chapter 22 - Ketogenic Diet for Seizure Disorders 15. Gasch AT. Use of the traditional ketogenic diet for treatment of intractable epilepsy. J Am Diet Assoc. 1990; 90(10):1433-1434. 16. Edelstein SF, Chisholm M. Management of intractable childhood seizures using the non-MCT oil ketogenic diet in 20 patients. J Am Diet Assoc. 1996; 96(11):1181-1182. Additional Resources Charlie Foundation Jim and Nancy Abrahams, Charlie’s Parents 1223 Wilshire Blvd., #815 Santa Monica, CA 90403-5406 800/3675386 www.charliefoundation.org The Charlie Foundation is an education resource for the ketogenic diet. The Foundation was established by Jim and Nancy Abrahams, whose son Charlie had become seizure free on the ketogenic diet. The Foundation provides several videotapes free of charge for education purposes. Epilepsy Foundation of America National Office 4351 Garden City Drive Landover, MD 207852267 800/3321000 http:www.efa.org This is a national organization that provides information about epilepsy to professionals and persons with epilepsy. Families can obtain information about local resources and supports. The foundation also offers research and training grants. Nutricia North America This is the website sponsored by Nutricia North America. Subscription is free to dietitians that work in centers that use the Ketogenic Diet as a therapy for seizure control. Parents may have access to this program by starting the diet through a center that uses the ketocalculator and by obtaining online access to their personal account. Parents and professionals can sign up for a quarterly newsletter. There is also specific information for dietitians, as well as current research which is updated on a regular basis. 260 Nutrition Interventions for Children With Special Health Care Needs
Ketogenic Diet Ketocalculator http://www.ketocalculator.com http://www.myketocal.com Stanford Ketogenic Calculator Section 3 - Condition Specific Nutrition Interventions Families or professionals may download this calculator. It is in an excel spreadsheet format. This is a free resource, but its calculations are not as exact as the Ketocalculator. http://www.stanford.edu/group/ketodiet. Books The Ketogenic Diet: A Treatment for Children and Others with Epilepsy Freeman, J. et al. Demos Medical Publishing, 2006. 386 Park Ave. South, Suite 210 New York, NY 10076 800.532.8663 This is a good basic book for professionals and families alike who are interested in learning more about the diet. This following is a link to read an excerpt of the book online. To read an excerpt from the book, go to the Amazon.com website, under department, select books, and type in Ketogenic Diet. Keto Kid: Helping Your Child Succeed on the Ketogenic Diet Snyder, D, Freeman, J. et al. Demos Medical Publishing, 2006. 386 Park Ave. South, Suite 210 New York, NY 10076 800.532.8663 This book was written by a family physician whose child is on the Ketogenic Diet. It provides recipes, as well as helpful hints for families to promote success while on the diet. To read an excerpt from the book, go to the Amazon.com website, under department, select books, and type in Ketogenic Diet. Nutrition Interventions for Children With Special Health Care Needs 261
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Nutrition Interventions for Childre
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Kay Kopp, OTR/L Occupational Therap
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Appendices Appendix A Sample Screen
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ii Nutrition Interventions for Chil
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Population “Children with special
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vi Nutrition Interventions for Chil
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Chapter 1 - Nutrition Screening and
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Chapter 2 - Anthropometricss needs,
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Chapter 2 - Anthropometricss Statur
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Chapter 2 - Anthropometricss Techni
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Chapter 2 - Anthropometricss paraly
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Chapter 2 - Anthropometricss time a
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Chapter 2 - Anthropometricss measur
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Chapter 2 - Anthropometricss Mild m
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Chapter 2 - Anthropometricss 9. Re-
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Chapter 2 - Anthropometricss 5. Per
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Chapter 2 - Anthropometrics Table 2
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Chapter 2 - Anthropometricss Refere
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Chapter 2 - Anthropometricss 26. Kr
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Chapter 3 - Physical Activity for C
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Chapter 4 - Breastfeeding recommend
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Chapter 4 - Breastfeeding Table 4-1
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Chapter 4 - Breastfeeding Assessmen
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Chapter 4 - Breastfeeding 58 Nutrit
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Chapter 5 - Medication-Nutrient Int
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Chapter 6 - Nutrition Interventions
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Chapter 8 - Oral-Motor Feeding Prob
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Chapter 9 - Behavior Issues Related
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Chapter 10 - Enteral Feeding Other
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Chapter 10 - Enteral Feeding Table
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Chapter 10 - Enteral Feeding Table
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Chapter 10 - Enteral Feeding Refere
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Chapter 11 - Community Monitoring o
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Chapter 12 - Accommodating Special
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Chapter 13 - Nutrition Intervention
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Page 226 and 227: Chapter 18 - Nutrition Intervention
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Page 292 and 293: Appendix A Please list any other nu
Page 294 and 295: Appendix A Baby formula What kind o
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Page 298 and 299: Appendix C 282 Nutrition Interventi
Page 300 and 301: Appendix D 284 Nutrition Interventi
Page 308 and 309: Appendix E 292 Nutrition Interventi
Page 314 and 315: Appendix E Table 3: Parent-Specific
Page 316 and 317: Appendix F Percentiles of Upper Arm
Page 318 and 319: Appendix F 302 Nutrition Interventi
Page 320 and 321: Appendix G 304 Nutrition Interventi
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Appendix G 310 Nutrition Interventi
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Appendix H 312 Nutrition Interventi
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Appendix I 320 Nutrition Interventi
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Appendix J 328 Nutrition Interventi
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Appendix K 336 Nutrition Interventi
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Appendix K 338 Nutrition Interventi
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Appendix L 340 Nutrition Interventi
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Appendix M 342 Nutrition Interventi
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Appendix M 344 Nutrition Interventi
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Appendix N Gastrostomy Tube Feeding
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Appendix N activities. When feeding
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Appendix N Feeding Sets/Extensions
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Appendix N Fluid and Electrolytes W
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Appendix N osmolality of full-stren
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Appendix N Modular Products Modular
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Appendix N his family, and the home
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Appendix N • The feeding tube may
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Appendix N equipment. The Special S
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Appendix N Table N-2: Common Compli
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Appendix N Complication Possible Ca
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Appendix N 368 Nutrition Interventi
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Appendix O Some conditions increase
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Appendix O Table O-3: Recommended P
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Appendix O 374 Nutrition Interventi
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Appendix P Diet Prescription for Me
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Appendix Q Goals Considerations for
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Appendix R Condition Description Nu
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Appendix R Condition Description Nu
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Appendix R References 1. Ekvall SW
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Appendix S Table S-1: Infant Formul
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Appendix S Comments Osmolality (mOs
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Appendix S Table S-2: Pediatric For
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Appendix S Table S-3: Modular Produ
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Appendix S Comments Energy (kcal) P
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Appendix S Contact Information Abbo
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Appendix T Powdered Formulas Accura
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Appendix T Table T-1: Liquid Concen
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Appendix T 402 Nutrition Interventi
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Appendix U Nutrition Strategies for
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Appendix U ADA Pocket Guide to Nutr
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Glossary Autism Spectrum Disorders
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Glossary Early intervention service
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Glossary Length (recumbent length)
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Glossary Stadiometer moveable headb
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Index specialist 98 target 108 Bink
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Index elemental formula 348 elimina
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Index I ICF. See International Clas
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Index risk indicators 4 screening 1
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Index suppositories 72, 77 Surmonti
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