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Nutrition Interventions for Children with Special Health Care Needs

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CHAPTER 19<br />

Section 3 - Condition-Specific <strong>Nutrition</strong> <strong>Interventions</strong><br />

<strong>Nutrition</strong> <strong>Interventions</strong> <strong>for</strong> Chronic<br />

Kidney Disease<br />

Linda Astrom, MS, RD, CSP, CD; Lori Brizee, MS, RD, CSP, LD and<br />

Tracy Sutherland, MS, RD<br />

Updated by Lori Brizee, MS, RD, CSP, LD and Peggy Solan, RD, CD<br />

Chronic kidney disease (CKD) in children may be due to congenital anatomical<br />

defects (e.g., urologic mal<strong>for</strong>mations, or dysplastic kidneys), inherited disease<br />

(e.g., autosomal recessive polycystic kidney disease), or metabolic disorders<br />

which eventually result in renal failure (e.g., cystinosis or methylmalonic aciduria).<br />

CKD may also be due to acquired causes such as untreated kidney infections,<br />

physical trauma to kidneys, exposure to nephrotoxic chemicals (including some<br />

medications), or illnesses that damage the kidneys (e.g., hemolytic uremic syndrome<br />

or glomerulonephritis). CKD is a progressive disorder, which may lead to End Stage<br />

Renal Disease (ESRD) which is less than 5 10% renal function. ESRD requires some<br />

type of renal replacement therapy (dialysis or kidney transplant). Depending on the<br />

cause of CKD, a child may be polyuric or oligo/anuric. The child <strong>with</strong> polyuria may<br />

“waste” electrolytes (sodium, potassium), while the child <strong>with</strong> oligo/anuria may<br />

retain electrolytes. Many children <strong>with</strong> CKD have other concurrent medical problems<br />

(e.g., heart, lung, or liver problems). The <strong>for</strong>mer premature infant <strong>with</strong> CKD may<br />

have lung disease and be on steroids and diuretics. In all cases, treatment must be<br />

individualized depending on weight gain, growth, laboratory values, hydration status,<br />

and other patient specific issues.<br />

Poor weight gain and growth are major issues <strong>for</strong> most children <strong>with</strong> CKD. These<br />

problems are caused by a variety of factors: (1-6)<br />

• Anorexia, resulting in inadequate nutrient intake<br />

• Uremia<br />

• Renal osteodystrophy (bone disease)<br />

• Electrolyte and mineral imbalances (sodium, potassium, calcium, phosphorus)<br />

• Metabolic acidosis<br />

• Anemia<br />

• Abnormal growth hormone metabolism<br />

• Nutrient losses on dialysis<br />

• Psychosocial factors resulting in poor nutritional intake<br />

<strong>Nutrition</strong> <strong>Interventions</strong> <strong>for</strong> <strong>Children</strong> With <strong>Special</strong> <strong>Health</strong> <strong>Care</strong> <strong>Needs</strong> 215

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