Nutrition Interventions for Children with Special Health Care Needs

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Chapter 3 - Physical Activity for CSHCN City of Seattle Parks & Recreation & Special Populations Programs, www.seattle.gov/ parks/specialpops/index.HTM Healthy People 2010, www.healthypeople.gov/ King County Specialized Recreation, http://www.metrokc.gov/parks/ the newer site is at http://www.kingcounty.gov/healthservices/health/chronic/ getactive/activities/disabilities.aspx The National Center on Physical Activity and Disability, www.ncpad.org Office of Disease Prevention and Health Promotion, http://odphp.osophs.dhhs.gov/ Outdoors for All, www.outdoorsforall.org President’s Council on Physical Fitness and Sports, www.fitness.gov/ Special Olympics, www.specialolympics.org Special Olympics of Washington, www.sowa.org Summer Camps and Programs for Children with Special Needs (WA State), www.cshcn.org Surgeon General of the United States, www.surgeongeneral.gov/ United States Dept. of Health and Human Services – “ I Can Do It, You Can Do It!” Nation-wide initiative supporting physical activity for children with disabilities; includes on-line mentoring program with 50 organizations participating. www.hhs.gov/od/physicalfitness.html The Kid’s Activity Pyramid, Penn State College of Agricultural Sciences Publications, http://pubs.cas.psu.edu/freepubs/pdfs/uk076.pdf The Kid’s Activity Pyramid, International Diabetes Center, Park Nicollet HealthSource, http://www.parknicollet.com/healthinnovations/search/search.cfm 50 Nutrition Interventions for Children With Special Health Care Needs
Chapter 4 Section 2 - Problem-Based Nutrition Interventions Breastfeeding for the Child with Special health Care Needs Robin P. Glass, MS, OTR, IBCLC and Lynn S. Wolf, MOT, OTR, IBCLC The nutritional benefits of breastfeeding and breast milk for the typically developing infant are undisputed (1). These benefits are also important for the infant with special health care needs (2). However these babies may reap additional benefits from breast milk due to their initial medical problems. The anti-infective properties found in breast milk often play a crucial role in the baby’s recovery from medical complications and support their health in the early months of infancy. For the typically developing infant, exclusive breastfeeding is considered to be getting all nutrition at the breast. For the infant with special health care needs, a broader definition should be considered. Breastfeeding can be seen on a continuum from full nutrition directly from the breast through receiving breast milk either fully or partially from a bottle or tube feeding. For this reason, attention to the adequacy of the mother’s milk supply is crucial. In particular, the first few weeks of life will be vital to the mother’s ability to provide her baby with enough breast milk for growth over the next six to twelve months. For all infants who are receiving mother’s milk recommended supplements include a single shot of Vitamin K at birth, use of a Vitamin D supplement started within a few days of birth, and a supplement of iron introduced in the first few months of life. If the infant is not able to feed at the breast within two hours after birth, the mother should be assisted to begin pumping using a hospital grade pump. The first two weeks after birth are a crucial time for the establishment of a full milk supply (3). Encourage the mother to ideally pump a minimum of eight times per day, spaced at 2-3 hour intervals during the day with a break of no longer than 4-5 hours at night. The aim is to produce at least 16 oz or more of breast milk per day at two weeks after birth. Pumped expressed breast milk can be stored for five days in the back of the refrigerator or frozen and kept for 3-6 months in the freezer of a refrigerator with a separate door for the freezer. If the mother is struggling with her milk supply even though she is pumping regularly, a referral to a lactation consultant (LC) is indicated. The LC, in conjunction with the mother’s primary medical doctor, (PMD) might Nutrition Interventions for Children With Special Health Care Needs 51
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Nutrition Interventions for Childre
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Kay Kopp, OTR/L Occupational Therap
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Appendices Appendix A Sample Screen
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ii Nutrition Interventions for Chil
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Population “Children with special
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Chapter 8 - Oral-Motor Feeding Prob
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Chapter 9 - Behavior Issues Related
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Chapter 10 - Enteral Feeding Other
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Chapter 10 - Enteral Feeding Table
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Chapter 10 - Enteral Feeding Table
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Chapter 10 - Enteral Feeding Refere
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Chapter 11 - Community Monitoring o
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Chapter 12 - Accommodating Special
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Chapter 13 - Nutrition Intervention
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Chapter 22 - Ketogenic Diet for Sei
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Appendix A Please list any other nu
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Appendix A Baby formula What kind o
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Appendix B Manufacturer Description
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Appendix C 282 Nutrition Interventi
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Appendix D 284 Nutrition Interventi
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Appendix E 292 Nutrition Interventi
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Appendix E Table 3: Parent-Specific
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Appendix F Percentiles of Upper Arm
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Appendix F 302 Nutrition Interventi
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Appendix G 304 Nutrition Interventi
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Appendix H 312 Nutrition Interventi
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Appendix I 320 Nutrition Interventi
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Appendix J 328 Nutrition Interventi
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Appendix K 336 Nutrition Interventi
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Appendix K 338 Nutrition Interventi
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Appendix L 340 Nutrition Interventi
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Appendix M 342 Nutrition Interventi
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Appendix M 344 Nutrition Interventi
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Appendix N Gastrostomy Tube Feeding
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Appendix N activities. When feeding
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Appendix N Feeding Sets/Extensions
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Appendix N Fluid and Electrolytes W
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Appendix N osmolality of full-stren
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Appendix N Modular Products Modular
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Appendix N his family, and the home
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Appendix N • The feeding tube may
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Appendix N equipment. The Special S
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Appendix N Table N-2: Common Compli
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Appendix N Complication Possible Ca
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Appendix N 368 Nutrition Interventi
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Appendix O Some conditions increase
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Appendix O Table O-3: Recommended P
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Appendix O 374 Nutrition Interventi
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Appendix P Diet Prescription for Me
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Appendix Q Goals Considerations for
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Appendix R Condition Description Nu
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Appendix R Condition Description Nu
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Appendix R References 1. Ekvall SW
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Appendix S Table S-1: Infant Formul
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Appendix S Comments Osmolality (mOs
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Appendix S Table S-2: Pediatric For
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Appendix S Table S-3: Modular Produ
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Appendix S Comments Energy (kcal) P
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Appendix S Contact Information Abbo
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Appendix T Powdered Formulas Accura
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Appendix T Table T-1: Liquid Concen
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Appendix U Nutrition Strategies for
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Appendix U ADA Pocket Guide to Nutr
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Glossary Autism Spectrum Disorders
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Glossary Early intervention service
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Glossary Length (recumbent length)
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Glossary Stadiometer moveable headb
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Index specialist 98 target 108 Bink
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Index elemental formula 348 elimina
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Index I ICF. See International Clas
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Index risk indicators 4 screening 1
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Index suppositories 72, 77 Surmonti
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Nutrition Interventions for Children with Special Health Care Needs

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