Music as a Global Resource: - International Council for Caring ...
Music as a Global Resource: - International Council for Caring ...
Music as a Global Resource: - International Council for Caring ...
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SECTION:<br />
<strong>Music</strong> <strong>for</strong> Mental and Physical Health<br />
COUNTRY:<br />
Brazil<br />
PROJECT:<br />
SONGS TO HELP SAY GOOD-BYE: MUSIC THERAPY IN PALLIATIVE CARE<br />
DESCRIPTION:<br />
In Brazil there is a lack of knowledge related to palliative care. Consequently, residents receive very poor<br />
<strong>as</strong>sistance at the end of life. Founded in 2007, C<strong>as</strong>a do Cuidar Association addresses this need by<br />
providing education in palliative care to healthcare professionals, consultation to hospitals interested in<br />
developing palliative care <strong>as</strong>sistance and palliative care services to patients who are suffering from a<br />
serious illness.<br />
C<strong>as</strong>a do Cuidar Association seeks to ensure quality of life <strong>for</strong> patients and families coping with a serious<br />
or life-threatening illness and help them manage end of life related symptoms within a holistic<br />
framework. To achieve this mission, the Association offers “Songs to Help Say Goodbye” – a specialized<br />
music therapy program <strong>for</strong> patients and families receiving palliative care services. Sessions typically<br />
occur once a week in a home-b<strong>as</strong>ed setting. Supported and facilitated by a music therapist, patients and<br />
families compose and share songs that are meaningful <strong>for</strong> them in their process of anticipatory grief. This<br />
creative songwriting experience com<strong>for</strong>ts patients and their families on all levels, including the physical,<br />
psychological, social, and spiritual.<br />
Physical – In spite of good pain management, patients can feel uncom<strong>for</strong>table at the end of life.<br />
<strong>Music</strong> can <strong>as</strong>sist in multiple ways such <strong>as</strong> facilitating breathing and helping patients to focus on<br />
images supported by music that soothes them.<br />
Psychological – Patients are immersed in a difficult journey, searching <strong>for</strong> meaning, ways of<br />
coping and inner strength. Songs can help patients cope with difficult moments, giving them<br />
words when they cannot find the words themselves. In c<strong>as</strong>es where the patients struggles to<br />
express their feelings, music enters <strong>as</strong> a non-threatening way of reflecting about death and dying<br />
issues such <strong>as</strong> fears, unresolved situations, coping skills, and a need <strong>for</strong> hope.<br />
Social –When a patient loses his ability to communicate because of the progression of a dise<strong>as</strong>e,<br />
music enables the patient to stay connected to family and friends. Families also emph<strong>as</strong>ize how<br />
music com<strong>for</strong>ts and helps them to be present and connected to their loved ones, even after their<br />
death.<br />
Spiritual – Songs with religious messages can bring hope and support to patients and families<br />
during the transition from life to death.<br />
CURRENT STATUS:<br />
C<strong>as</strong>a do Cuidar Association is a not-<strong>for</strong>-profit organization that relies on private donations and volunteers<br />
<strong>for</strong> its funding. Since 2007, palliative care courses have been offered to health care professionals,<br />
including nurses, doctors, physical therapists, psychologists, nutritionists and music therapists, among<br />
others. “Songs to Help Say Goodbye” began in early 2010 and h<strong>as</strong> since offered music therapy services to<br />
patients and their families.<br />
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