Exploring patient participation in reducing health-care-related safety risks

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Exploring patient participation in reducing health-care-related safety risks x » Martin Elhard Bommersholdt, Danish Agency for Patient Rights and Complaints, Denmark » Charles Bruneau, French National Authority for Health, France » Ana Paula Couthino, Division of Communicable Diseases, Health Security & Environment, WHO Regional Office for Europe » Agnieszka Daval-Cichon, Directorate-General for Health and Consumers, European Commission, Belgium » Gerald Dziekan, Patient Safety Programme, WHO headquarters » Jérôme Foucaud, Département Formation et Ressources, Direction de l’Animation des Territoires et des Réseaux, National Institute for Prevention and Health Education, France » Annemarie Hellebek, Clinical Pharmacology, University of Copenhagen, Danish Society for Patient Safety, Denmark » Kaisa Immonen-Charalambous, European Patients’ Forum, Belgium » Anne Iten, Department of Infection Prevention and Control, Geneva University Hospitals, Switzerland » Eduard Kelley, Patient Safety Programme, WHO headquarters » Isuf Kalo, National Centre of Quality, Safety and Accreditation of Health Institutions, Albania » Claire Kilpatrick, National Health Service, United Kingdom » Iciar Larizgoitia Jaregui, Patient Safety Programme, WHO headquarters » Margaret Murphy, WHO Patients for Patient Safety Programme, Ireland » Piera Poletti, Research and Training Centre for Public Adminsitration, Italy » Jane Sandall, King’s Patient Safety and Service Quality Research Centre, Department of Primary Care and Public Health Sciences, United Kingdom » Mary Vasseghi, Sudden Cardiac Death in the Young Support Group, Ireland » Jan Vesseur, Netherlands Health Care Inspectorate, the Netherlands » Britt Wendelboe, Danish Society for Patient Safety, Denmark Peer reviewers » Angela Coulter, Department of Public Health, University of Oxford, United Kingdom » Kees de Joncheere, Department of Essential Medicines and Health Products, WHO headquarters » Hans Kluge, Division of Health Systems and Public Health, WHO Regional Office for Europe » Yves Longtin, Infectious Diseases Research Centre and Centre Hospitalier Universitaire de Québec, Laval University Faculty of Medicine, Canada » Jose M. Martin-Moreno, University of Valencia Faculty of Medicine, Spain The financial support of the Netherlands Government under the umbrella of the partnership agreement with the WHO Regional Office for Europe for the development of this project and resulting publication is gratefully acknowledged. Appreciation is due to Nataliya Tarasenko, Health Service Delivery Programme, for her assistance during this process. Editors: Diana Delnoij and Valentina Hafner
LIST OF ABBREVIATIONS ABHR alcohol-based hand rub ADE adverse drug event ADR adverse drug reaction AFSSAPS Agence Française de Sécurité Sanitaire des Produits de Santé [French Health Products Safety Agency] BSI bloodstream infection [bacteraemia] CAHPS Consumer Assessment of Healthcare Providers and Systems CME continuing medical education CoE Council of Europe CQC Care Quality Commission [United Kingdom (England)] CQI Consumer Quality Index CTSA Centre de Transfusion Sanguine des Armées [Armed Forces Blood Transfusion Centre] [France] DAI determination of irregular antibodies [test] DGS Direcção Geral da Saúde [Directorate General of Health] [Portugal] DUQuE Deepening our Understanding of Quality Improvement in Europe [project] ECDC European Centre for Disease Prevention and Control EFS Etablissement Français du Sang [French Blood Transfusion Organization] ERS Entidade Reguladora da Saúde [Health Regulation Authority] [Portugal] EU European Union EUNeTPaS European Network on Patient Safety FNHTR febrile non-haemolytic transfusion reaction GP general practitioner GVHD graft-versus-host disease HAI health care-associated infection(s) HAS Haute Autorité de Santé [National Authority for Health] [France] HBV hepatitis B virus HCV hepatitis C virus HCW health care worker HELiCS Hospitals in Europe Link for Infection Control through Surveillance ICT information and communications technology ICU intensive care unit IOM Institute of Medicine IPSE Improving Patient Safety in Europe [project] LBP labile blood product MARQuIS Methods of Assessing Response to Quality Improvement Strategies [project] MRSA methicillin-resistant Staphylococcus aureus NCIPD National Centre for Infectious and Parasitic Diseases [Bulgaria] List of abbreviations xi
Page 1 and 2: Exploring patient participation in
Page 3 and 4: ABSTRACT Patients’ rights have be
Page 5 and 6: iv Patient information: the link be
Page 7 and 8: vi LIST OF TABLES, FIGURES AND BOXE
Page 9: ACKNOWLEDGEMENTS The editors would
Page 13 and 14: FOREWORD Health is a social value a
Page 15 and 16: ChApTER 1. pATIENTS’ RIGhTS AND p
Page 17 and 18: Box 1 .1 . contd Reporting and Lear
Page 19 and 20: The causal mechanisms through which
Page 21 and 22: » be involved in routine monitorin
Page 23 and 24: elationships within the complex env
Page 25 and 26: ChApTER 2. pATIENTS’ RIGhTS AND p
Page 27 and 28: CoE Recommendation 2006/7 of the Co
Page 29 and 30: The 2005 United States act on patie
Page 31 and 32: The right to participate in policy-
Page 33 and 34: The right to participate in quality
Page 35 and 36: » engaging with patient representa
Page 37 and 38: hampered by the written and spoken
Page 39 and 40: prevents misunderstandings and shap
Page 41 and 42: Health care providers should nevert
Page 43 and 44: Recommendation 7 - Encourage the av
Page 45 and 46: 20. Constitution of the World Healt
Page 47 and 48: ChApTER 3. pATIENT pARTICIpATION IN
Page 49 and 50: awareness of the sociomedical burde
Page 51 and 52: Patient participation in hand hygie
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Blood transfusion safety in France:
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Box 4 .1 . Definitions of adverse e
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Fig . 4 .4 . Distribution of advers
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The heterogeneity of situations and
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Fig . 4 .12 . Patients’ response
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Patient safety, rights and medicati
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Fig . 5 .3 . Frequency with which d
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ChApTER 6. pATIENT pARTICIpATION IN
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Patient participation in elective s
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e desirable to have a special statu
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inspections of surgical services to
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» being involved in monitoring and
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Other studies on patient attitudes
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Information about patients’ exper
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available evidence suggests that in
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Adverse events Respondents from the
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Feeling safe Five per cent of hospi
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probability proportional to populat
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care professionals’ and patients
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group recommends that patient invol
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13. Hibbard JH et al. Can patients
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52. Triemstra M et al. Measuring cl
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2009 (http://www.bradfordresearch.n
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of a small-scale patient survey add
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Box 8 .2 . Curricula and CME Chapte
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is provided through interaction of
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Box 8 .4 . Patient education Chapte
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ANNEX 1. QUOTATIONS FROM INTERNATIO
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(2) When designing adverse event re
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17) If yes, do you think this was m
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Box A3 .1 . Reporting procedure Pat
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Box A3 .2 . contd Haemosiderosis Ha
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ANNEX 4. pATIENT QUESTIONNAIRE ABOU
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ANNEX 6. WhO pATIENT SAFETY pROGRAM
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especially those in intensive care.
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ANNEX 7. hANDOVER pROjECT Paul Bara
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(a) Provide new insight into the ro
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Johnson J, Barach P. Handovers of p
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Enhancing the patients’ role in p
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Enhancing the patients’ role in p
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Exploring patient participation in reducing health-care-related safety risks

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