Exploring patient participation in reducing health-care-related safety risks

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Exploring patient participation in reducing health-care-related safety risks xii NHS National Health Service [Portugal, United Kingdom (England)] NRC−HAI National Reference Centre for Nosocomial Infections [Bulgaria] OECD Organisation for Economic Co-operation and Development OR odds ratio OTC over-the-counter [drugs] PDI post-donation information PHC primary health care RAR recipient adverse reaction RCMADR Regional Centre for Monitoring of Adverse Drug Reactions [Poland] SDM shared decision-making SG State Gazette [Bulgaria] SINAS Sistema Nacional de Avaliação em Saúde [National System of Health Evaluation] [Portugal] SSI surgical site infection TACO transfusion-associated cardiac overload TRALI transfusion-associated acute lung injury TRIP Transfusion Reactions in Patients [the Netherlands] UTI urinary tract infection
FOREWORD Health is a social value and an individual right. It generates economic benefits for countries and is a prerequisite for national development and individual well-being. Member States of the WHO European Region are addressing major health challenges posed by demographic and epidemiological change, widening socioeconomic disparities, limited resources, technological developments and rising public expectations. Evidence continues to show that addressing the quality and safety of care is one of the main entry points to strengthening health services and contributing to wider population access and coverage. Regulation and targeted interventions focused on health service redesign are necessary, but not sufficient, to ensuring increased quality, better compliance with safety standards and a well-trained health workforce. Health technology assessments provide evidence of the clinical and cost−effectiveness of new operational tools and a wealth of information on health and health-related interventions and technologies is currently available for policy-makers, health professionals and the general public. Accurate understanding of this information can help patients and providers to prevent and cure disease through increasing treatment compliance and enabling recognition of safety failures in systems. The new WHO European policy framework, Health 2020, supports action across government and society for health and well-being and emphasizes the role of good health in ensuring economic and social development. The capacity of each individual to contribute to improving his or her health status should drive effective dialogue with health professionals and create mechanisms for increasing safety and improving compliance with prevention and care interventions. The WHO Regional Office for Europe is committed to supporting investment in health to address current and future challenges in maintaining and increasing the health status of populations, working in collaboration with national and international partners within the WHO global patient safety strategic framework. In this context, participation of the healthliterate patient is seen as being at the core of the whole-of-society approach to better health that we encourage and promote. Zsuzsanna Jakab WHO Regional Director for Europe xiii
Page 1 and 2: Exploring patient participation in
Page 3 and 4: ABSTRACT Patients’ rights have be
Page 5 and 6: iv Patient information: the link be
Page 7 and 8: vi LIST OF TABLES, FIGURES AND BOXE
Page 9 and 10: ACKNOWLEDGEMENTS The editors would
Page 11: LIST OF ABBREVIATIONS ABHR alcohol-
Page 15 and 16: ChApTER 1. pATIENTS’ RIGhTS AND p
Page 17 and 18: Box 1 .1 . contd Reporting and Lear
Page 19 and 20: The causal mechanisms through which
Page 21 and 22: » be involved in routine monitorin
Page 23 and 24: elationships within the complex env
Page 25 and 26: ChApTER 2. pATIENTS’ RIGhTS AND p
Page 27 and 28: CoE Recommendation 2006/7 of the Co
Page 29 and 30: The 2005 United States act on patie
Page 31 and 32: The right to participate in policy-
Page 33 and 34: The right to participate in quality
Page 35 and 36: » engaging with patient representa
Page 37 and 38: hampered by the written and spoken
Page 39 and 40: prevents misunderstandings and shap
Page 41 and 42: Health care providers should nevert
Page 43 and 44: Recommendation 7 - Encourage the av
Page 45 and 46: 20. Constitution of the World Healt
Page 47 and 48: ChApTER 3. pATIENT pARTICIpATION IN
Page 49 and 50: awareness of the sociomedical burde
Page 51 and 52: Patient participation in hand hygie
Page 61 and 62: Blood transfusion safety in France:
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Blood transfusion safety in France:
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Box 4 .1 . Definitions of adverse e
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Fig . 4 .4 . Distribution of advers
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The heterogeneity of situations and
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Fig . 4 .12 . Patients’ response
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Patient safety, rights and medicati
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Fig . 5 .3 . Frequency with which d
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ChApTER 6. pATIENT pARTICIpATION IN
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Patient participation in elective s
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e desirable to have a special statu
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inspections of surgical services to
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» being involved in monitoring and
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Other studies on patient attitudes
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Information about patients’ exper
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available evidence suggests that in
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Adverse events Respondents from the
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Feeling safe Five per cent of hospi
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probability proportional to populat
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care professionals’ and patients
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group recommends that patient invol
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13. Hibbard JH et al. Can patients
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52. Triemstra M et al. Measuring cl
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2009 (http://www.bradfordresearch.n
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of a small-scale patient survey add
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Box 8 .2 . Curricula and CME Chapte
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is provided through interaction of
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Box 8 .4 . Patient education Chapte
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ANNEX 1. QUOTATIONS FROM INTERNATIO
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(2) When designing adverse event re
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17) If yes, do you think this was m
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Box A3 .1 . Reporting procedure Pat
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Box A3 .2 . contd Haemosiderosis Ha
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ANNEX 4. pATIENT QUESTIONNAIRE ABOU
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ANNEX 6. WhO pATIENT SAFETY pROGRAM
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especially those in intensive care.
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ANNEX 7. hANDOVER pROjECT Paul Bara
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(a) Provide new insight into the ro
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Johnson J, Barach P. Handovers of p
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Enhancing the patients’ role in p
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Enhancing the patients’ role in p
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