Exploring patient participation in reducing health-care-related safety risks

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Exploring patient participation in reducing health-care-related safety risks 174 The gaps in developing the role of the patient/consumer in patient safety are visible in: » the current organization of care (insufficiently transparent and reliable); » lack of insight into the values, knowledge, attitudes, needs, ideas and readiness of patients/consumers to play a role in patient safety; and » insufficient attention being given to the communication and health literacy skills of professionals and patients/consumers. Motivating professionals is a guiding principle for supporting and encouraging patients/ consumers to play a role in patient safety. Conclusion The relationship between the health care professional and the patient/consumer is the key to developing the role of the latter in patient safety. The first prerequisite is shared awareness of the fact that a role for the patient/consumer is possible, accompanied by the motivation and skills to enable the activation of this role. A number of themes affect the relationship between the professional and the patient/consumer and are important for developing the integrated approach required: » professionalization and facilitation of patient/consumer collectives (councils and representatives) so that they can fulfil a role in care policy and primary care process redesign; » research into the effect and importance of, and the interaction between, the five context factors on which the fulfilment of the role of the patient/consumer depends: 1. the specific patient (knowledge and opinions) 2. the illness (phase and characteristics) 3. the professional (knowledge, opinions and “inviting” behaviour) 4. the setting 5. the type of safety behaviour the client exhibits; » research into existing initiatives (interventions) in terms of their effects, including development, innovation and extending them to other settings; » developing a national information and knowledge centre for all parties involved in health care, with public information, tools and education packages to give substance to the role of the patient/consumer in patient safety; » setting up a training programme (such as a patient safety officer programme) for health care organizations, focusing on leadership, culture and structure; » evaluating and optimizing the legislation and regulations relating to the role of the patient/consumer; and » involving the insight of the client in guidelines, indicators and standards of care and making health care options clear and understandable to the patient/consumer. In the long term, it is essential that patients’ perspectives be incorporated at four levels: 1. the individual care process and organizations 2. the national health care organizations 3. the national health care system 4. laws and regulations.
Enhancing the patients’ role in patient safety in the Netherlands This is only possible when initiatives are based on the relationship between patients and health care professionals to create an active dialogue about safety. This integrated approach is expected to make sustainable implementation of the role of the patient/ consumer in patient safety possible. Reference 1. Van der Schrieck-de Loos E, Posma E, Salfischberger Y. The role of the client in patient safety. A necessity, not a desirability. Utrecht, CBO (ZonMW), 2009 (http:// www.cbo.nl/en/Patient-Safety/Patient-engagement-empowerment/, accessed 1 May 2012). 175
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Exploring patient participation in
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ABSTRACT Patients’ rights have be
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iv Patient information: the link be
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vi LIST OF TABLES, FIGURES AND BOXE
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ACKNOWLEDGEMENTS The editors would
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LIST OF ABBREVIATIONS ABHR alcohol-
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FOREWORD Health is a social value a
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ChApTER 1. pATIENTS’ RIGhTS AND p
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Box 1 .1 . contd Reporting and Lear
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The causal mechanisms through which
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» be involved in routine monitorin
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elationships within the complex env
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ChApTER 2. pATIENTS’ RIGhTS AND p
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CoE Recommendation 2006/7 of the Co
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The 2005 United States act on patie
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The right to participate in policy-
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The right to participate in quality
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» engaging with patient representa
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hampered by the written and spoken
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prevents misunderstandings and shap
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Health care providers should nevert
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Recommendation 7 - Encourage the av
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20. Constitution of the World Healt
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ChApTER 3. pATIENT pARTICIpATION IN
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awareness of the sociomedical burde
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Patient participation in hand hygie
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Blood transfusion safety in France:
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Box 4 .1 . Definitions of adverse e
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Fig . 4 .4 . Distribution of advers
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The heterogeneity of situations and
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Fig . 4 .12 . Patients’ response
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Patient safety, rights and medicati
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Fig . 5 .3 . Frequency with which d
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ChApTER 6. pATIENT pARTICIpATION IN
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Patient participation in elective s
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e desirable to have a special statu
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inspections of surgical services to
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» being involved in monitoring and
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Other studies on patient attitudes
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Page 141 and 142: Adverse events Respondents from the
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Page 151 and 152: 13. Hibbard JH et al. Can patients
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Page 165 and 166: ANNEX 1. QUOTATIONS FROM INTERNATIO
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Page 173 and 174: Box A3 .2 . contd Haemosiderosis Ha
Page 175 and 176: ANNEX 4. pATIENT QUESTIONNAIRE ABOU
Page 177 and 178: ANNEX 6. WhO pATIENT SAFETY pROGRAM
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Page 181 and 182: ANNEX 7. hANDOVER pROjECT Paul Bara
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