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Exploring patient participation in reducing health-care-related safety risks

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17) If yes, do you th<strong>in</strong>k this was ma<strong>in</strong>ly<br />

due to:<br />

18) Have you been worried about be<strong>in</strong>g<br />

given a blood transfusion?<br />

19) Do you trust doctors to make the<br />

transfusion decision?<br />

20) Were you accompanied by a relative<br />

dur<strong>in</strong>g your hospitalization?<br />

21) If yes, did they help you to<br />

understand the <strong>in</strong>formation given on<br />

blood transfusion?<br />

22) Before be<strong>in</strong>g discharged from<br />

hospital, did you get an <strong>in</strong>formation<br />

sheet concern<strong>in</strong>g transfusion?<br />

a vocabulary<br />

problem (too<br />

complex) – oral<br />

or written form<br />

a problem of<br />

<strong>in</strong>formation<br />

format<br />

Yes No<br />

Yes No<br />

Yes No<br />

Yes No<br />

23) If yes, did you keep it? Yes No<br />

IV. Suggestions<br />

24) How would you like to be <strong>in</strong>formed on<br />

blood transfusion?<br />

25) Other suggestions:<br />

26) Do you th<strong>in</strong>k it is useful to give<br />

<strong>in</strong>formation on transfusion to a wider<br />

public than only transfused <strong>patient</strong>s?<br />

27) Would you like to play a more<br />

significant role <strong>in</strong> the blood<br />

transfusion process?<br />

28) If yes, at what stage(s) of the blood<br />

transfusion process would you be<br />

prepared to get more <strong>in</strong>volved?<br />

29) Specify how you would be prepared<br />

to get further <strong>in</strong>volved:<br />

30) Other suggestions:<br />

a lack of oral<br />

<strong>in</strong>formation to<br />

complement<br />

the written<br />

<strong>in</strong>formation<br />

Yes No I don’t know<br />

In writ<strong>in</strong>g Orally<br />

Yes No<br />

Yes No<br />

Before<br />

transfusion<br />

by ask<strong>in</strong>g<br />

questions of<br />

doctors (e.g.<br />

on <strong>risks</strong>, etc.)<br />

Dur<strong>in</strong>g<br />

transfusion<br />

by help<strong>in</strong>g<br />

<strong>health</strong> <strong>care</strong><br />

professionals<br />

dur<strong>in</strong>g the last<br />

compatibility<br />

control before<br />

transfusion<br />

After<br />

transfusion<br />

by report<strong>in</strong>g<br />

to <strong>health</strong> <strong>care</strong><br />

professionals<br />

any<br />

unexpected<br />

symptom<br />

appear<strong>in</strong>g<br />

after<br />

transfusion<br />

by carry<strong>in</strong>g<br />

out posttransfusion<br />

follow-up<br />

tests 3<br />

months after<br />

transfusion<br />

Patient questionnaire on blood transfusion<br />

155

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