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Exploring patient participation in reducing health-care-related safety risks

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prevents misunderstand<strong>in</strong>gs and shapes expectations. It goes beyond the scope of this<br />

report to present an extensive analysis of this theme, but a brief outl<strong>in</strong>e of some of the<br />

general issues <strong>in</strong>volved <strong>in</strong> relation to national or regional government, <strong>health</strong> <strong>in</strong>surance<br />

companies, <strong>health</strong> <strong>in</strong>stitutions, <strong>health</strong> professionals and the <strong>patient</strong> and family is<br />

presented <strong>in</strong> the sections below. 3<br />

National or regional government<br />

The ma<strong>in</strong> responsibility of government, based on <strong>in</strong>ternational human rights standards<br />

and/or national constitutions or bills of rights, is to create a <strong>health</strong> <strong>care</strong> system that is<br />

fair, accessible and of good quality. The realization and implementation of every citizen’s<br />

right to <strong>health</strong> depends to a large extent on the normative, organizational and f<strong>in</strong>ancial<br />

preconditions created by national or regional governments. The actual <strong>in</strong>volvement of<br />

the government <strong>in</strong> the <strong>health</strong> <strong>care</strong> system varies from country to country, rang<strong>in</strong>g from<br />

national <strong>health</strong> systems under government control, to entirely privatized <strong>health</strong> systems,<br />

to a mixture of these models.<br />

Either way, a strong orientation at governmental level towards <strong>in</strong>ternationally accepted<br />

standards and values on the right to <strong>health</strong> <strong>care</strong> is <strong>in</strong>strumental <strong>in</strong> turn<strong>in</strong>g this right <strong>in</strong>to<br />

a reality. It requires sufficient f<strong>in</strong>ancial resource allocation (which may be problematic<br />

due to demographic and/or economic situations) and a broad range of additional policy<br />

measures, <strong>in</strong>clud<strong>in</strong>g (but not limited to):<br />

» <strong>in</strong>troduc<strong>in</strong>g legislation on <strong>patient</strong>s’ rights;<br />

» <strong>in</strong>itiat<strong>in</strong>g a monitor<strong>in</strong>g or supervisory system;<br />

» promot<strong>in</strong>g the development and dissem<strong>in</strong>ation of standards and systems on the<br />

quality and <strong>safety</strong> of <strong>care</strong>; and<br />

» regulat<strong>in</strong>g <strong>health</strong> professional tra<strong>in</strong><strong>in</strong>g and registration.<br />

Importantly, government should assume responsibility for undertak<strong>in</strong>g or promot<strong>in</strong>g<br />

activities such as collect<strong>in</strong>g and analys<strong>in</strong>g <strong>patient</strong> <strong>safety</strong> data 4 and output <strong>in</strong>dicators at<br />

national level, mak<strong>in</strong>g the aggregated results available for comparison and improvement<br />

activity.<br />

Health <strong>in</strong>surance companies<br />

Health <strong>in</strong>surance companies’ role varies from country to country. It will be limited (or<br />

even nonexistent) <strong>in</strong> countries with a government-oriented national <strong>health</strong> system, but<br />

private <strong>health</strong> <strong>in</strong>surance companies <strong>in</strong> systems that are more market-driven can play a<br />

dom<strong>in</strong>ant role <strong>in</strong> ensur<strong>in</strong>g <strong>in</strong>sured citizens’ entitlements are met.<br />

Traditionally, <strong>health</strong> <strong>in</strong>surance companies tend to focus more on the availability and<br />

price of <strong>health</strong> <strong>care</strong> they supply and less on the quality and <strong>safety</strong> of <strong>health</strong> <strong>care</strong> they<br />

contract. Quality and <strong>safety</strong> may profit from <strong>health</strong> <strong>in</strong>surance companies’ proactive<br />

policies <strong>in</strong> <strong>health</strong> systems <strong>in</strong> which they deliver or contract services; this may <strong>in</strong>clude<br />

3 Several other relevant parties can be identified, such as <strong>patient</strong> organizations, nongovernmental organizations and the wider<br />

<strong>in</strong>dustry; they may play an important role <strong>in</strong> enhanc<strong>in</strong>g <strong>patient</strong>s’ rights and <strong>safety</strong> <strong>in</strong> a number of countries.<br />

4 See, for <strong>in</strong>stance, the Danish act on <strong>patient</strong> <strong>safety</strong> <strong>in</strong> the <strong>health</strong> <strong>care</strong> system which came <strong>in</strong>to force <strong>in</strong> 2004 (briefly described<br />

<strong>in</strong> the section on national legislation above) (17).<br />

Patients’ rights and <strong>patient</strong> <strong>safety</strong><br />

25

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