Exploring patient participation in reducing health-care-related safety risks

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Exploring patient participation in reducing health-care-related safety risks 152 (a) ensure that complaints, criticisms or suggestions made by patients or their representatives are taken seriously and handled appropriately; (b) ensure that patients are immediately informed of an adverse event and of any events entered into the patient’s medical file; (c) ensure that patients that have been harmed by a patient safety incident are entitled to receive financial compensation; (d) ensure the presence of an efficient and sufficiently capable supervisory system to identify and manage cases of malpractice; (e) take into consideration the fact that any incident can have multiple legal consequences, depending on the nature and severity of the incident and the causal relationship between the process of care and an adverse event. J.4. It may appear difficult to establish a patient safety reporting system without compromising patients’ rights. However, if the public is ready to accept the presence of a confidential, anonymous, non-punitive reporting system, the public must be assured that their legal and financial rights will be protected. The existence of a fair and open complaints system, a just and adequate compensation system and an efficient and reliable supervisory system will certainly make the process easier and politically more acceptable. Promoting a “no-blame” culture is not intended to diminish the effective legal protection of patients. 2 – Council of the European Union, Recommendation of 9 June 2009 From the preamble (9) Patients should be informed and empowered by involving them in the patient safety process. They should be informed of patient safety standards, best practices and/or safety measures in place and how they can find accessible and comprehensible information on complaints and redress systems. From the recommendations (3) Support the establishment or strengthening of blame-free reporting and learning systems on adverse events that: (a) provide information on the extent, types and causes of errors, adverse events and near misses; (b) encourage HCWs to report actively through the establishment of a reporting environment which is open, fair and non-punitive; this reporting should be differentiated from Member States’ disciplinary systems and procedures for HCWs and, where necessary, the legal issues surrounding HCWs’ liability should be clarified; (c) provide, as appropriate, opportunities for patients, their relatives and other informal caregivers to report their experiences. 3 – WHO draft guidelines for adverse event reporting and learning systems (1) Adverse event reporting and learning systems should have as their main objective the improvement of patient safety through the identification of errors and hazards which may warrant further analysis and investigation in order to identify underlying systems factors.
(2) When designing adverse event reporting and learning systems, the responsible parties should clearly set out: • the objectives of the system • who should report • what gets reported – mechanisms for receiving reports and managing data • sources of expertise for analysis • the response to reports • methods for classifying and making sense of reported events • ways to disseminate findings • technical infrastructure and data security. (3) HCWs and organizations should be encouraged to report a wide range of safety information and events. (4) HCWs that report adverse events, near misses and other safety concerns should not be punished as a result of reporting. (5) Reporting systems should be independent of any authority with power to punish the reporter. Quotations from international legislation 153
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Exploring patient participation in
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ABSTRACT Patients’ rights have be
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iv Patient information: the link be
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vi LIST OF TABLES, FIGURES AND BOXE
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ACKNOWLEDGEMENTS The editors would
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LIST OF ABBREVIATIONS ABHR alcohol-
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FOREWORD Health is a social value a
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ChApTER 1. pATIENTS’ RIGhTS AND p
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Box 1 .1 . contd Reporting and Lear
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The causal mechanisms through which
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» be involved in routine monitorin
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elationships within the complex env
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ChApTER 2. pATIENTS’ RIGhTS AND p
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CoE Recommendation 2006/7 of the Co
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The 2005 United States act on patie
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The right to participate in policy-
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The right to participate in quality
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» engaging with patient representa
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hampered by the written and spoken
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prevents misunderstandings and shap
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Health care providers should nevert
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Recommendation 7 - Encourage the av
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20. Constitution of the World Healt
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ChApTER 3. pATIENT pARTICIpATION IN
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awareness of the sociomedical burde
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Patient participation in hand hygie
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Blood transfusion safety in France:
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Box 4 .1 . Definitions of adverse e
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Fig . 4 .4 . Distribution of advers
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The heterogeneity of situations and
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Fig . 4 .12 . Patients’ response
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Patient safety, rights and medicati
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Fig . 5 .3 . Frequency with which d
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ChApTER 6. pATIENT pARTICIpATION IN
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Patient participation in elective s
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e desirable to have a special statu
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Patient participation in elective s
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Page 135 and 136: Other studies on patient attitudes
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Page 141 and 142: Adverse events Respondents from the
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Page 147 and 148: care professionals’ and patients
Page 149 and 150: group recommends that patient invol
Page 151 and 152: 13. Hibbard JH et al. Can patients
Page 153 and 154: 52. Triemstra M et al. Measuring cl
Page 155 and 156: 2009 (http://www.bradfordresearch.n
Page 157 and 158: of a small-scale patient survey add
Page 159 and 160: Box 8 .2 . Curricula and CME Chapte
Page 161 and 162: is provided through interaction of
Page 163 and 164: Box 8 .4 . Patient education Chapte
Page 165: ANNEX 1. QUOTATIONS FROM INTERNATIO
Page 169 and 170: 17) If yes, do you think this was m
Page 171 and 172: Box A3 .1 . Reporting procedure Pat
Page 173 and 174: Box A3 .2 . contd Haemosiderosis Ha
Page 175 and 176: ANNEX 4. pATIENT QUESTIONNAIRE ABOU
Page 177 and 178: ANNEX 6. WhO pATIENT SAFETY pROGRAM
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Page 181 and 182: ANNEX 7. hANDOVER pROjECT Paul Bara
Page 183 and 184: (a) Provide new insight into the ro
Page 185 and 186: Johnson J, Barach P. Handovers of p
Page 187 and 188: Enhancing the patients’ role in p
Page 189 and 190: Enhancing the patients’ role in p
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Exploring patient participation in reducing health-care-related safety risks

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