Exploring patient participation in reducing health-care-related safety risks

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Exploring patient participation in reducing health-care-related safety risks 150 References 1. Nys H, Goffin T. Mapping national practices and strategies relating to patients’ rights. In: Wismar L et al., eds. Cross-border health care in the European Union. Mapping and analysing practices and policies. Copenhagen, WHO Regional Office for Europe on behalf of the European Observatory on Health Systems and Policies, 2011:159–216 (http://www.euro.who.int/__data/assets/pdf_file/0004/135994/ e94875.pdf, accessed 1 May 2012). 2. Legemaate J. Integrating health law and health policy: a European perspective. Health Policy, 2002, 60:101–110. 3. Recommendation No. R (2000)5 of the Committee of Ministers to Member States on the development of structures for citizen and patient participation in the decision-making process affecting health care. (Adopted by the Committee of Ministers on 24 February 2000 at the 699th meeting of the Ministers’ Deputies.) Strasbourg, Council of Europe, 2000 (https://wcd.coe.int/ViewDoc.jsp?id=340437&Site=CM, accessed 1 May 2012). 4. Recommendation Rec(2005)5 of the Committee of Ministers to Member States on the Council of Europe action plan to promote the rights and full participation of people with disabilities in society: improving the quality of life of people with disabilities in Europe 2006–2015. (Adopted by the Committee of Ministers on 5 April 2006 at the 961st meeting of the Ministers’ Deputies.) Strasbourg, Council of Europe, 2006 (https:// wcd.coe.int/ViewDoc.jsp?id=986865, accessed 1 May 2012). 5. Recommendation Rec(2006)7 of the Committee of Ministers to Member States on management of patient safety and prevention of adverse events in health care. (Adopted by the Committee of Ministers on 24 May 2006 at the 965th meeting of the Ministers’ Deputies.) Strasbourg, Council of Europe, 2006 (https://wcd.coe.int/ViewDoc. jsp?id=1005439&Site=CM, accessed 1 May 2012). 6. Health 2020: a European policy framework supporting action across government and society for health and well-being. Copenhagen, WHO Regional Office for Europe, 2012 (http://www.euro.who.int/en/who-we-are/governance/regional-committeefor-europe/sixty-second-session/documentation/working-documents/eurrc629health-2020-a-european-policy-framework-supporting-action-across-governmentand-society-for-health-and-well-being, accessed 20 November 2012).
ANNEX 1. QUOTATIONS FROM INTERNATIONAL LEGISLATION 1 – Council of Europe, Recommendation 2006/7 From the recommendation Recommends that governments of Member States, according to their competencies: (i) ensure that patient safety is the cornerstone of all relevant health policies, in particular policies to improve quality; […] (iii) promote the development of a reporting system for patient safety incidents in order to enhance patient safety by learning from such incidents; this system should: (a) be non-punitive and fair in purpose; (b) be independent of other regulatory processes; (c) be designed in such a way as to encourage health care providers and health care personnel to report safety incidents (for instance, wherever possible, reporting should be voluntary, anonymous and confidential); (d) set out a system for collecting and analysing reports of adverse events locally and, when the need arises, aggregated at a regional or national level, with the aim of improving patient safety – for this purpose, resources must be specifically allocated; (e) involve both private and public sectors; (f ) facilitate the involvement of patients, their relatives and all other informal caregivers in all aspects of activities relating to patient safety, including reporting of patient safety incidents; (iv) review the role of other existing data sources, such as patient complaints and compensation systems, clinical databases and monitoring systems as a complementary source of information on patient safety (…) From the appendix to the recommendation D.1.2. Incident reporting systems are not intended to identify and punish the individual staff members involved in patient safety incidents. D.1.11. When designing patient safety incident reporting systems it may be an advantage to have in place a complaints system, a patient compensation system and a supervisory body for health professionals. These should complement the patient safety incident reporting system, and together these systems would form an overall integrated system for managing risks – both “clinical” and “non-clinical”. J.3. Legal approaches regarding patients’ rights should: Quotations from international legislation 151
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Exploring patient participation in
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ABSTRACT Patients’ rights have be
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iv Patient information: the link be
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vi LIST OF TABLES, FIGURES AND BOXE
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ACKNOWLEDGEMENTS The editors would
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LIST OF ABBREVIATIONS ABHR alcohol-
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FOREWORD Health is a social value a
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ChApTER 1. pATIENTS’ RIGhTS AND p
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Box 1 .1 . contd Reporting and Lear
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The causal mechanisms through which
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» be involved in routine monitorin
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elationships within the complex env
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ChApTER 2. pATIENTS’ RIGhTS AND p
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CoE Recommendation 2006/7 of the Co
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The 2005 United States act on patie
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The right to participate in policy-
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The right to participate in quality
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» engaging with patient representa
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hampered by the written and spoken
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prevents misunderstandings and shap
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Health care providers should nevert
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Recommendation 7 - Encourage the av
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20. Constitution of the World Healt
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ChApTER 3. pATIENT pARTICIpATION IN
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awareness of the sociomedical burde
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Patient participation in hand hygie
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Blood transfusion safety in France:
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Box 4 .1 . Definitions of adverse e
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Fig . 4 .4 . Distribution of advers
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The heterogeneity of situations and
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Fig . 4 .12 . Patients’ response
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Patient safety, rights and medicati
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Fig . 5 .3 . Frequency with which d
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ChApTER 6. pATIENT pARTICIpATION IN
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Patient participation in elective s
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e desirable to have a special statu
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Page 135 and 136: Other studies on patient attitudes
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Page 141 and 142: Adverse events Respondents from the
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Page 147 and 148: care professionals’ and patients
Page 149 and 150: group recommends that patient invol
Page 151 and 152: 13. Hibbard JH et al. Can patients
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Page 155 and 156: 2009 (http://www.bradfordresearch.n
Page 157 and 158: of a small-scale patient survey add
Page 159 and 160: Box 8 .2 . Curricula and CME Chapte
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Page 169 and 170: 17) If yes, do you think this was m
Page 171 and 172: Box A3 .1 . Reporting procedure Pat
Page 173 and 174: Box A3 .2 . contd Haemosiderosis Ha
Page 175 and 176: ANNEX 4. pATIENT QUESTIONNAIRE ABOU
Page 177 and 178: ANNEX 6. WhO pATIENT SAFETY pROGRAM
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Page 181 and 182: ANNEX 7. hANDOVER pROjECT Paul Bara
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Page 185 and 186: Johnson J, Barach P. Handovers of p
Page 187 and 188: Enhancing the patients’ role in p
Page 189 and 190: Enhancing the patients’ role in p
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