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Exploring patient participation in reducing health-care-related safety risks

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<strong>Explor<strong>in</strong>g</strong> <strong>patient</strong> <strong>participation</strong> <strong>in</strong> reduc<strong>in</strong>g <strong>health</strong>-<strong>care</strong>-<strong>related</strong> <strong>safety</strong> <strong>risks</strong><br />

122<br />

words, staff already anticipated the need to <strong>in</strong>crease hand wash<strong>in</strong>g before <strong>patient</strong>s were<br />

actually <strong>in</strong>structed to question them about hand hygiene.<br />

Patient <strong>participation</strong> <strong>in</strong> error prevention: wrong-site surgery<br />

Schwappach’s review <strong>in</strong>cludes a study by DiGiovanni et al. (20) of a preoperative<br />

<strong>in</strong>struction for surgical <strong>patient</strong>s to clearly mark the extremity that was not to be<br />

operated on to prevent wrong-site surgery. The study was conducted <strong>in</strong> a foot-and-ankle<br />

cl<strong>in</strong>ic and 100 consecutive <strong>patient</strong>s were observed. Of these, only 59% were compliant <strong>in</strong><br />

correctly mark<strong>in</strong>g the site.<br />

After Schwappach’s review was published, Bergal et al. (11) presented a study <strong>in</strong> which 200<br />

orthopaedic <strong>patient</strong>s were <strong>in</strong>structed dur<strong>in</strong>g their preoperative visit to mark the word “YES”<br />

(us<strong>in</strong>g a standard blue mark<strong>in</strong>g pen) at the site of surgery before arriv<strong>in</strong>g at the preoperative<br />

area on the day of their surgery. The purpose of the study was to evaluate factors affect<strong>in</strong>g<br />

<strong>patient</strong>s’ compliance with site mark<strong>in</strong>g to see if this could provide a useful tool to prevent<br />

wrong-site surgery. Of the 200 enrolled <strong>patient</strong>s, 135 (68.2%) made a mark, 63 made no<br />

mark and 2 were lost to follow up. Of the 135 <strong>patient</strong>s who made a mark, 2 marked the<br />

wrong site. Time between enrolment and surgery negatively affected compliance, and<br />

compliant <strong>patient</strong>s were younger and used English more often as their primary language.<br />

Other <strong>patient</strong> characteristics, such as gender or level of education, were not <strong>related</strong> to<br />

compliance. The authors conclude that “<strong>patient</strong> <strong>in</strong>volvement <strong>in</strong> surgical site mark<strong>in</strong>g is<br />

unreliable and may not help <strong>in</strong> decreas<strong>in</strong>g the chances of wrong-site surgery” (11).<br />

Patient <strong>participation</strong> <strong>in</strong> error prevention: other<br />

Schwappach describes a study by Anthony et al. (21) <strong>in</strong> which a <strong>patient</strong> <strong>safety</strong> video was<br />

shown to <strong>patient</strong>s who visited the ambulatory surgical areas of a community hospital.<br />

Patients’ knowledge and levels of comfort <strong>in</strong> talk<strong>in</strong>g to staff about <strong>safety</strong> had slightly<br />

<strong>in</strong>creased after watch<strong>in</strong>g the video. Two further studies <strong>in</strong> Schwappach’s review focused<br />

on <strong>in</strong>formation campaigns targeted at <strong>patient</strong>s <strong>in</strong> the United States (22) and Ontario,<br />

Canada (23). Only the latter study evaluated the level of <strong>patient</strong> <strong>in</strong>volvement <strong>in</strong> error<br />

prevention, only after the <strong>in</strong>troduction of the campaign, and only <strong>in</strong> convenience samples.<br />

The campaign (“Your <strong>health</strong> – be <strong>in</strong>volved”) <strong>in</strong>cluded brochures, posters and a DVD for<br />

hospital television. Hospitals implemented the campaign <strong>in</strong> various ways. The study showed<br />

that 17% of <strong>patient</strong>s <strong>in</strong>volved had heard about the campaign and that 7 out of 15 reported<br />

that they had changed their way of communicat<strong>in</strong>g with <strong>health</strong> <strong>care</strong> staff as a result.<br />

Measur<strong>in</strong>g <strong>patient</strong> experiences<br />

Background<br />

The IOM def<strong>in</strong>es quality of <strong>care</strong> <strong>in</strong> terms of six core aspects: <strong>safety</strong>, effectiveness, <strong>patient</strong><br />

centredness, timel<strong>in</strong>ess, efficiency and equity (24). There are two important sources of<br />

<strong>in</strong>formation relat<strong>in</strong>g to these aspects of quality of <strong>care</strong>: registration of cl<strong>in</strong>ical data by<br />

<strong>health</strong> <strong>care</strong> providers; and <strong>patient</strong>s’ reports, collected through surveys.<br />

Patients have specific experiential knowledge that is seen as be<strong>in</strong>g crucial for the<br />

advancement of high-quality <strong>care</strong>. Patients know what it is like to live with a specific<br />

disease and have much experience with <strong>health</strong> <strong>care</strong> providers and treatments.

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