Exploring patient participation in reducing health-care-related safety risks

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CONTENTS ACKNOWLEDGEMENTS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ix LIST OF ABBREVIATIONS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . xi FOREWORD . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . xiii PREFACE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . xv Chapter 1 . PATIENTS’ RIGHTS AND PATIENT SAFETY: INTRODUCTION . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 Introduction .................................................. 1 Conceptual framework .......................................... 4 How can patients contribute to safety management? ................... 6 Definition of the main concepts ................................... 7 Content of this report ........................................... 9 References. ................................................... 9 Chapter 2 . PATIENTS’ RIGHTS AND PATIENT SAFETY . . . . . . . . . . . . . . 11 Introduction .................................................. 11 Content of this chapter .......................................... 12 Normative guidelines from international bodies ....................... 12 National legislation ............................................. 14 Patients’ rights in the area of patient safety ........................... 15 Additional aspects. ............................................. 21 Recommendations. ............................................. 27 References. ................................................... 29 Chapter 3 . PATIENT PARTICIPATION IN HAND HYGIENE IN BULGARIAN HEALTH CARE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 33 Introduction .................................................. 33 Content of this chapter .......................................... 33 Bulgarian data on HAI-related morbidity and the role of hand hygiene .... 34 Bulgarian legal and regulatory framework on preventing HAI and involving patients .............................................. 35 Prevention of HAI: the Bulgarian context ........................... 36 Survey of patients’ knowledge and intention to support strengthening of hand hygiene in hospitals ........................................ 38 Recommendations. ............................................. 43 References. ................................................... 44 Chapter 4 . BLOOD TRANSFUSION SAFETY IN FRANCE: DEVELOPING TOOLS TO SUPPORT PATIENTS . . . . . . . . . . . . . . . . . . . . 46 Introduction .................................................. 46 Content of this chapter .......................................... 48 Blood transfusion and patient safety in France ........................ 48 Regulatory aspects and legal tools supporting patient safety and the right to safety in France .............................................. 55 iii
iv Patient information: the link between legislation, medical practice and recipients’ safety ............................................ 58 Case study – the example of one blood transfusion service: qualitative and quantitative interviews of recipients ............................. 65 Recommendations. ............................................. 68 References. ................................................... 71 Bibliography .................................................. 74 Chapter 5 . PATIENT SAFETY, RIGHTS AND MEDICATION SAFETY IN PRIMARY CARE IN POLAND . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 77 Introduction .................................................. 77 Project description ............................................. 79 Content of this chapter .......................................... 79 Legal dimension and patient education ............................. 79 Focused pilot survey: “patient safety rights and medication safety”. ........ 80 Report from the RCMADR in Kraków (1 January 2004–31 December 2010) ............................................... 87 Recommendations. ............................................. 88 References. ................................................... 90 Bibliography .................................................. 91 Chapter 6 . PATIENT PARTICIPATION IN ELECTIVE SURGERY SAFETY IN PORTUGAL . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 93 Introduction .................................................. 93 Content of this chapter .......................................... 94 Morbidity related to surgical care .................................. 94 National legal and regulatory framework on surgery safety and patient engagement. .................................................. 96 HCWs and patient engagement ................................... 101 Patient engagement and surgical safety. ............................. 104 Health promotion/health literacy-related campaigns ................... 105 Recommendations. ............................................. 107 References. ................................................... 109 Chapter 7 . PATIENTS’ EXPERIENCES AND PATIENT SAFETY . . . . . . . 118 Introduction .................................................. 118 Content of this chapter .......................................... 118 Method ...................................................... 119 Results of the literature review .................................... 120 Measuring patient experiences .................................... 122 Results of screening patient experience questionnaires .................. 125 Recommendations. ............................................. 135 References. ................................................... 136 Chapter 8 . CONCLUSIONS AND RECOMMENDATIONS . . . . . . . . . . . . 142 Introduction .................................................. 142 Macro level ................................................... 143
Page 1 and 2: Exploring patient participation in
Page 3: ABSTRACT Patients’ rights have be
Page 7 and 8: vi LIST OF TABLES, FIGURES AND BOXE
Page 9 and 10: ACKNOWLEDGEMENTS The editors would
Page 11 and 12: LIST OF ABBREVIATIONS ABHR alcohol-
Page 13 and 14: FOREWORD Health is a social value a
Page 15 and 16: ChApTER 1. pATIENTS’ RIGhTS AND p
Page 17 and 18: Box 1 .1 . contd Reporting and Lear
Page 19 and 20: The causal mechanisms through which
Page 21 and 22: » be involved in routine monitorin
Page 23 and 24: elationships within the complex env
Page 25 and 26: ChApTER 2. pATIENTS’ RIGhTS AND p
Page 27 and 28: CoE Recommendation 2006/7 of the Co
Page 29 and 30: The 2005 United States act on patie
Page 31 and 32: The right to participate in policy-
Page 33 and 34: The right to participate in quality
Page 35 and 36: » engaging with patient representa
Page 37 and 38: hampered by the written and spoken
Page 39 and 40: prevents misunderstandings and shap
Page 41 and 42: Health care providers should nevert
Page 43 and 44: Recommendation 7 - Encourage the av
Page 45 and 46: 20. Constitution of the World Healt
Page 47 and 48: ChApTER 3. pATIENT pARTICIpATION IN
Page 49 and 50: awareness of the sociomedical burde
Page 51 and 52: Patient participation in hand hygie
Page 53 and 54: Patient participation in hand hygie
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Patient participation in hand hygie
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Blood transfusion safety in France:
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Box 4 .1 . Definitions of adverse e
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Fig . 4 .4 . Distribution of advers
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The heterogeneity of situations and
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Fig . 4 .12 . Patients’ response
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Patient safety, rights and medicati
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Fig . 5 .3 . Frequency with which d
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ChApTER 6. pATIENT pARTICIpATION IN
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Patient participation in elective s
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e desirable to have a special statu
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inspections of surgical services to
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» being involved in monitoring and
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Other studies on patient attitudes
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Information about patients’ exper
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available evidence suggests that in
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Adverse events Respondents from the
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Feeling safe Five per cent of hospi
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probability proportional to populat
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care professionals’ and patients
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group recommends that patient invol
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13. Hibbard JH et al. Can patients
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52. Triemstra M et al. Measuring cl
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2009 (http://www.bradfordresearch.n
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of a small-scale patient survey add
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Box 8 .2 . Curricula and CME Chapte
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is provided through interaction of
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Box 8 .4 . Patient education Chapte
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ANNEX 1. QUOTATIONS FROM INTERNATIO
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(2) When designing adverse event re
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17) If yes, do you think this was m
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Box A3 .1 . Reporting procedure Pat
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Box A3 .2 . contd Haemosiderosis Ha
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ANNEX 4. pATIENT QUESTIONNAIRE ABOU
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ANNEX 6. WhO pATIENT SAFETY pROGRAM
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especially those in intensive care.
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ANNEX 7. hANDOVER pROjECT Paul Bara
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(a) Provide new insight into the ro
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Johnson J, Barach P. Handovers of p
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Enhancing the patients’ role in p
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Enhancing the patients’ role in p
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