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6th European Conference - Academic Conferences

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Shada Alsalamah et al.<br />

for Health Improvement and Audit Commission (CHIAC) (2001) revealed audit and anecdotal<br />

evidence of problems in inter-professional communication and a failure to plan care in a systematic<br />

way between the different professionals involved. Such problems have been linked with complaints<br />

and litigation (NICE, 2002). For example, GPs sometimes lose track of patients during the treatment<br />

period or become unable to discuss the diagnosis and prognosis with patients due to lack of<br />

information from consultants. Furthermore, primary personnel can be unaware that a patient has been<br />

discharged, sometimes without necessary services or equipment being arranged. It can be unclear<br />

whether the GP or consultant is responsible for patient follow-up after treatment. Furthermore, the<br />

HISs are poor in their support of day to day working arrangements, including communication,<br />

appointment systems and shared protocols (CHIAC, 2001). Indeed, even if the care team is ready to<br />

share medical information (CHIAC, 2001), the current HISs are not supporting this sharing of<br />

information (CHIAC, 2001; Skilton et al., 2009). Finally, although many trusts do not have agreed<br />

policies for the management of cancers, where policies do exist, it is unclear whether they are<br />

followed because practice is not audited (CHIAC, 2001). Furthermore, formal policies and plans<br />

cannot ensure that services are provided in a patient-centred way, without a change in the attitudes<br />

and behaviour of those working with patients (CHIAC, 2001).<br />

5. Discussion and future work<br />

These results identify the different roles of MDT members involved in the treatment of patients with<br />

breast cancer in Wales, the HISs involved, the types of health records created in these systems, and<br />

medical information stored in these different records. This information helped the development of an<br />

understanding of the emerging need for the SCE for MDT members involved in treating patients with<br />

breast cancer. For example, some of the tasks carried out as the patient proceeds through the breast<br />

cancer’s ICP show a clear redundancy in some of the information collected, including, but not limited<br />

to, a clinical assessment and patient history check. It can save time and resources if this information<br />

was available for the healthcare professional in charge at the point of treatment. In addition, data<br />

redundancy can cause data inconsistency issues and having a single shared data record (i.e. patient<br />

history) guarantees the availability of up-to-date information for all MDT members. Another example is<br />

that GPs should support patients undergoing diagnosis, treatment and follow-up leading either to cure<br />

or to eventual death. This means GPs should follow patients from the very start of the ICP. Although<br />

patients may start their ICP at different stages, the GP should have direct contact with other breast<br />

cancer MDT members treating the patient in order to be informed about all of the patient’s current<br />

relevant medical information at all times. This would enable effective consultation and follow-up. In<br />

addition, there can be different professionals playing the same role and also one professional playing<br />

different roles. Furthermore, privacy violations can be expected if all of the members can see every<br />

patient’s records (Anderson, 2008). This emphasises the need for effective SCE with systems that<br />

can ensure the availability of life-critical information about the patient’s medical condition based on the<br />

professional’s role at the time of treatment. Also, the breast cancer MDT checks 100 patients<br />

annually. Each of these patients will be following different directions in the same ICP, and in some<br />

cases, following multiple ICPs as well, if the patient suffers from more than one disease. This will be<br />

difficult to manage without the support of an HIS that considers the patient condition as a whole.<br />

Therefore, good inter-professional communication is essential to co-ordinate the activities of all those<br />

involved, and ensure effective communication between professionals working in the primary,<br />

secondary and tertiary sectors of care. For that reason, the breast care MDT must develop and<br />

implement systems that ensure rapid and effective communication between all healthcare<br />

professionals involved in each patient’s treatment management. This would facilitate the provision of<br />

adequate means for communicating information on referral, diagnosis and treatment, follow-up, and<br />

supportive/palliative care throughout the stages of the ICP.<br />

The HISs identified in this research can be studied to identify the IS issues in these systems that<br />

hinder inter-professional communication. This can be achieved by investigating the IS rules applied in<br />

these HISs to protect medical information. This is an important step to take before speaking to all<br />

involved parties in order to know their IS needs to facilitate the SCE with others involved in the<br />

treatment. This can help identify and define the best way to have persistent control over the<br />

information accessed in a distributed environment when it will be moved outside the HIS’s locally<br />

controlled environment. This can be achieved either by agreeing on a set of common rules for all<br />

involved HISs to apply in a neutral administrative domain used for the sharing process, or by<br />

changing the way they work internally by standardising the IS rules. It may be that sharing in either of<br />

these ways is not possible at this point in time. The main aim of this research at the moment is to<br />

facilitate an SCE that can support collaboration among MDT members while guaranteeing persistent<br />

283

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