Clinical Trials and Preclinical Infrastructure Asset Map - Life Sciences

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288 BRITISH COLUMBIA Networks In Which B.C.’s Clinical Investigators Play a Pivotal Role (cont’d) Network Description Canadian Alliance of Pediatric Rheumatology Investigators (CAPRI) (www.icaare.ca/index.phpoption=com_content&tas k=view&id=44&Itemid=80) International Network investigating childhood arthritis in Canada. Obtained CIHR funding for “Determinants of Risk and Outcome in Inflammatory Arthritis”, REACCH OUT (quality of life and outcomes in juvenile arthritis), and BBOP (Biologically Based Outcome Predictors) in Juvenile Idiopathic Arthritis. CFRI’s David Cabral is a member of the interim steering committee; and Lori Tucker is a PI on REACCH OUT. American Bronchology Association (www.aabronchology.org) Promoties excellence in clinical care, education, and research in the rapidly expanding fields of Bronchoscopy, Interventional Pulmonology, and Interventional Bronchoscopy. VCHRI’s Stephen Lam is past Director. Canadian Pharmacogenomics Network for Drug Safety A joint initiative of POPi and CMMT (CFRI), Vancouver B.C. One of only two active adverse drug reaction (ADR) surveillance networks in the world. Brings together leading scientists from many disciplines within industry, government, universities, hospitals, and research institutes to better understand and prevent severe ADRs. Currently recruiting patients to a trial on adverse drug reactions in children (ClinicalTrials.gov identifier: NCT00414115) and adults in Canada, US, Mexico, Europe. Childhood Arthritis & Rheumatism Research Alliance (CARRA) (www.carragroup.info; www.arthritis.org/carra.php) Integrative Analysis of Longitudinal Studies of Aging (IALSA) Research Network (http://lifelab.tss.oregonstate.edu/) International Photodynamic Association (IPA) (http://sites. pcmd.ac.uk/ipa/index.php) North American organization of pediatric rheumatologists who are building a multi-centre network of pediatric rheumatology research centres across the continent that will work together on clinical trials and research. CFRI’s David Cabral and Lori Tucker are co-founders. Co-directed by Scott Hofer, Victoria B.C. smhofer@uvic.ca. Collaborative research infrastructure for coordinated interdisciplinary, cross-national research aimed at replicating and extending research findings from a within-person perspective. The network is currently comprised of over 25 longitudinal studies on aging, spanning eight countries, with a combined sample size of approximately 70,000 individuals. Promotes study of diagnosis and treatment using light and photosensitizers, disseminates such information to members of IPA, the medical community and the general public. Membership consists of the most prominent international clinicians and scientists involved in performing and researching photodynamic therapy (PDT) and photodiagnosis (PD). VCHRI’s Stephen Lam is a past President. National Core for Neuroethics (www.neuroethics.ubc.ca) Based at UBC in Vancouver B.C. The permanent home for the International Neuroethics Network.
CLINICAL TRIALS AND PRECLINICAL INFRASTRUCTURE ASSET MAP 289 Networks In Which B.C.’s Clinical Investigators Are Members (Examples of National and International Networks) Network Description Cardiology National Canadian Heart Failure Network (www.chfn.ca) Established in 1999 to improve the current management of heart failure, implement new proven therapies in a timely manner, and collaborate in innovative research approaches to optimize patient management. Has five B.C. members: Abbotsford Heart Failure Clinic, Central Okanagan Association for Cardiac Function Office (Kelowna), Penticton Regional Hospital, Surrey Memorial Hospital, St. Paul’s Hospital. Western Canadian Children’s Heart Network (www.westernchildrensheartnetwork.ca) International Network of pediatric cardiac care providers from the four western provinces – B.C., Alberta, Saskatchewan, and Manitoba. Pediatric cardiac surgery is performed at two centres - Stollery Children's Hospital in Edmonton and B.C. Children's Hospital. Network follows standard diagnostic, investigation, and referral protocols. Congenital Heart Surgeons Society (www.chss.org) Not-for-profit charitable corporation based in the US that sponsors and oversees multi-institutional clinical studies; links and educates investigators; and encourages and stimulates investigation and study that will increase the knowledge of congenital cardiac physiology, pathology and therapy, and to correlate and disseminate such knowledge. Pediatric & Congenital Electrophysiology Society (www.pediatricepsociety.org) International group of physicians and allied professionals dedicated to improving the care of children and young adults with cardiac rhythm disturbances. The group's primary mission is to foster high-quality collaborative research and exchange of ideas on arrhythmia topics that are particularly relevant to infants and children. BCCH’s Shubhayan Sanatani is a member. Pediatric Heart Network (www.pediatricheartnetwork.com) Part of the US’ National Heart, Blood and Lung Institute of the NIH. Conducts trials to improve outcomes and quality of life in children who are born with or acquire heart disease. CNS National Canadian Pediatric Epilepsy Network (see http://cjns.metapress.com/app/home/contribution.aspreferrer=parent&bac kto=issue,11,20;journal,47,70;linkingpublicationresults,1:30 0307,1) Network of scientists and health care professionals in partnership with organizations which provide education and support to children with epilepsy. Objective is to gain a better understanding of childhood epilepsy through collaborative research conducted with doctors, psychologists, nurses, social workers, educators and scientists across Canada. Canadian Pediatric Neuromuscular Group N/A Canadian Consortium of Clinical Cognitive Research Centres Nationwide network of 35 clinics that evaluates and treats individuals with dementia and cognitive disorders. (C5R) (www.c5r.ca) Canadian Movement Disorder Group (www.cmdg.org) Canadian clinicians and scientists with an interest and expertise in the study and care of patients with movement disorders. Canadian Pediatric Demyelinating Network (no URL) Consists of 22 pediatric care facilities across Canada.
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