MAGICAL MEDICINE: HOW TO MAKE AN ILLNESS ... - Invest in ME
MAGICAL MEDICINE: HOW TO MAKE AN ILLNESS ... - Invest in ME
MAGICAL MEDICINE: HOW TO MAKE AN ILLNESS ... - Invest in ME
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105<br />
illness (and) these biases have <strong>in</strong>filtrated the media. The traditional healthcare system often refuses to<br />
treat people with <strong>ME</strong>. When treatment is offered, all too frequently social service personnel will refer people<br />
with <strong>ME</strong> to psychiatric services. The patients of ‘Lost Voices’ and their carers are heroes <strong>in</strong> the best sense of the<br />
term”.<br />
Fourteen years earlier, <strong>in</strong> his Eliot Slater Memorial Lecture <strong>in</strong> May 1994 referred to above, Simon Wessely<br />
said: “Organic diseases lose their credibility as their psychological causes are recognised”. Despite<br />
Wessely’s confident assertion, it has not been possible to f<strong>in</strong>d an example of an organic disorder los<strong>in</strong>g<br />
its organic status when its psychological cause was recognised.<br />
The Wessely School has ensured that virtually no biomedical research has been allowed to challenge their<br />
steadfast belief that <strong>ME</strong> is a primary psychiatric disorder, and the result is the harrow<strong>in</strong>g human suffer<strong>in</strong>g<br />
revealed <strong>in</strong> ‘Lost Voices’.<br />
Wessely did not mention that psychiatrists have a long track record of medical misattribution: the literature<br />
is replete with examples of diseases with (then) “unexpla<strong>in</strong>ed” symptoms that psychiatrists claimed – with<br />
absolute certa<strong>in</strong>ty – as psychosomatic. These diseases <strong>in</strong>clude diabetes mellitus; epilepsy; multiple sclerosis,<br />
Graves’ disease; pernicious anaemia; myasthenia gravis; Park<strong>in</strong>son’s Disease; gastric ulcer; migra<strong>in</strong>e;<br />
Dupuytren’s contracture; gout; glaucoma; asthma; ang<strong>in</strong>a; ulcerative colitis and hay fever (Case Histories <strong>in</strong><br />
Psychosomatic Medic<strong>in</strong>e. Miles HHW, Cobb S and Shands HC (eds); 1959; WW Norton & Co Inc., New<br />
York).<br />
As noted by George Davey‐Smith, Professor of Cl<strong>in</strong>ical Epidemiology at Bristol, a further example is that <strong>in</strong><br />
1948 – long before H‐Pylori was discovered <strong>in</strong> 1989‐‐ doctors <strong>in</strong> Mount S<strong>in</strong>ai Hospital advocated antibiotics<br />
for peptic ulcers, a treatment they knew was successful. A patent for an antibiotic formulation was issued <strong>in</strong><br />
1961, but the “stress model” served to block people from build<strong>in</strong>g on this and mov<strong>in</strong>g towards an answer<br />
that would have led to a treatment that could have dramatically improved the quality of life for millions of<br />
people. Various psychological <strong>in</strong>terventions for peptic ulcer were advocated and large numbers of people<br />
were subjected to them. The usual claims for dramatic success were made, but properly conducted<br />
randomised controlled trials demonstrated no benefit. The conclusion of one well‐conducted trial was that<br />
“our study demonstrates a need for humility about the degree to which psychological <strong>in</strong>terventions can effect powerful<br />
biological processes”. Sick people were directed away from a treatment for peptic ulcers that really worked –<br />
antibiotics – to ones that did not work, and the answer that could have led to an effective treatment was<br />
missed because of a particular model ‐‐‐ essentially the BPS (biopsychosocial) model ‐‐‐ and the m<strong>in</strong>dset that<br />
it generated (Biopsychosocial Medic<strong>in</strong>e, OUP 2005; ed. Peter White).<br />
Davey‐Smith is the one dissent<strong>in</strong>g voice <strong>in</strong> Biopsychosocial Medic<strong>in</strong>e: his contribution (“The<br />
biopsychosocial approach: a note of caution”) carries the torch for <strong>in</strong>tellectual <strong>in</strong>tegrity.<br />
Davey‐Smith showed that bias can generate spurious f<strong>in</strong>d<strong>in</strong>gs and that when <strong>in</strong>terventional studies to<br />
exam<strong>in</strong>e the efficacy of a psychosocial approach have been used, the results have been disappo<strong>in</strong>t<strong>in</strong>g. To<br />
quote from Davey Smith’s contribution: “Over the past 50 years many psychosocial factors have been proposed and<br />
accepted as important aetiological agents for particular diseases and then they have quietly been dropped from<br />
consideration and discussion”. The illustrations he cited <strong>in</strong>cluded cholera, pellagra, asthma and peptic ulcer.<br />
Davey‐Smith went on to quote Susan Sontag’s well‐known dictum: “Theories that diseases are caused by mental<br />
state and can be cured by willpower are always an <strong>in</strong>dex of how much is not understood about the physical basis of the<br />
disease” (Illness as a metaphor. Random House; New York. 1978).<br />
In his book “The Greatest Benefit to Mank<strong>in</strong>d” (Harper Coll<strong>in</strong>s, London, 1997) the late Roy Porter noted that<br />
it was the biomedical model (not the psychosocial model) that has provided advances <strong>in</strong> the understand<strong>in</strong>g<br />
‐‐ and thus <strong>in</strong> the treatment and prevention ‐‐ of disease processes.