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MAGICAL MEDICINE: HOW TO MAKE AN ILLNESS ... - Invest in ME

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70<br />

Speakers <strong>in</strong>cluded Professor Mansel Aylward CB, MD, FRCP and Aylward’s successor at the DWP, Chief<br />

Medical Advisor Dr Bill Gunnyeon.<br />

It must be remembered that Mansel Aylward is a member of the MRC PACE Trial Steer<strong>in</strong>g Committee.<br />

Appendix III shows how the way may have been paved for the MRC PACE Trial and how it seems to be a<br />

vehicle for the implementation of UNUMProvident’s policies.<br />

The quotations <strong>in</strong> Appendix III illustrate just how impregnable is the meticulously constructed bastion<br />

of the biopsychosocial model of illness that seems to reduce organic disease to the category of myth by<br />

manipulat<strong>in</strong>g the concept of medical care to noth<strong>in</strong>g more than corporate profit and wealth‐earn<strong>in</strong>g<br />

potential for the benefit of commercial bodies and the State.<br />

Backed by UNUMProvident and the Woodstock Group that, like the PACE Trial, was sponsored by the<br />

Department for Work and Pensions (where, it will be recalled, Peter White is the lead advisor on<br />

“CFS/<strong>ME</strong>”), it can hardly be denied that the Wessely School’s efforts to eradicate <strong>ME</strong> and to re‐categorise<br />

CFS as a mental disorder have been successful with<strong>in</strong> the UK and far beyond.<br />

Despite the then‐Health M<strong>in</strong>ister, Lord Warner, hav<strong>in</strong>g confirmed <strong>in</strong> writ<strong>in</strong>g on 11 th February 2004 that the<br />

Department of Health accepts that the correct classification for <strong>ME</strong>/CFS is WHO ICD‐10 G93.3 (ie.<br />

neurological), <strong>in</strong> practical matters his letter seems <strong>in</strong>consequential, because the “<strong>in</strong>dependent” agencies of<br />

State (the NHS, NHS Plus, the Centre for Reviews and Dissem<strong>in</strong>ation (CRD), the DoH, the DWP, NICE and<br />

the MRC) all regard and treat CFS/<strong>ME</strong> as a functional somatic (behavioural) syndrome, and CFS/<strong>ME</strong><br />

rema<strong>in</strong>s on the NHS mental health m<strong>in</strong>imum dataset, to which all NHS personnel must adhere.<br />

In 2007 the Centre for Reviews and Dissem<strong>in</strong>ation produced a further updated systemic review of the<br />

treatment and management of adults and children with CFS/<strong>ME</strong> (CRD Report 35; University of York, July<br />

2007) which asserted that there was: “evidence support<strong>in</strong>g the effectiveness of CBT and GET <strong>in</strong> reduc<strong>in</strong>g symptoms<br />

and improv<strong>in</strong>g physical function<strong>in</strong>g”. That systemic review was supportive of the broad criteria for<br />

“CFS/<strong>ME</strong>”: “The criteria <strong>in</strong>clusion for both the outcomes and <strong>in</strong>terventions were broad, which was<br />

appropriate and allowed for a more comprehensive over‐view of the available evidence”, with the CRD’s<br />

own comment: “This was a well‐conducted and clearly reported review…conclusions are likely to be<br />

reliable”.<br />

Sadly, the conclusions are not likely to be reliable, because the patients studied <strong>in</strong> the review trials were<br />

not tightly def<strong>in</strong>ed, so could have <strong>in</strong>cluded anyone who felt a bit tired.<br />

Clearly <strong>ME</strong>/CFS sufferers seem to be battl<strong>in</strong>g not only a devastat<strong>in</strong>g disease and their ru<strong>in</strong>ed lives, but<br />

also a powerful and very extensive body of vested <strong>in</strong>terests which works tirelessly to ensure that no‐one<br />

will challenge the currently popular psychiatric paradigm (ie. that “CFS/<strong>ME</strong>” is a behavioural disorder).<br />

That psychiatric paradigm, however, is believed by many to be wrong‐headed; they believe it is<br />

unethical to “manage” patients with <strong>ME</strong>/CFS <strong>in</strong> the UK by means of <strong>in</strong>effective and potentially harmful,<br />

non‐evidence‐based “rehabilitation” therapies that have apparently been discarded by ma<strong>in</strong>stream<br />

<strong>in</strong>ternational medic<strong>in</strong>e and to offer noth<strong>in</strong>g else, thereby abandon<strong>in</strong>g large numbers of extremely sick<br />

people. The plight of people with <strong>ME</strong>/CFS <strong>in</strong> the UK is a travesty.<br />

What is so appall<strong>in</strong>g is that <strong>in</strong> 21 st century Brita<strong>in</strong>, people suffer<strong>in</strong>g from a devastat<strong>in</strong>g organic disease<br />

have evidence to show that they are denigrated, derided, mocked, bullied, harassed, coerced, threatened,<br />

deceived, overtly and covertly videoed, abused, subjected to <strong>in</strong>justice, denied their human rights, and<br />

effectively abandoned by the State to the extent that no appropriate <strong>in</strong>vestigations that might confirm<br />

their disease are permitted, all with the approval of the UK Government but at the apparent behest of a<br />

mammoth <strong>in</strong>surance <strong>in</strong>dustry whose objective is to maximise their profits.

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