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MAGICAL MEDICINE: HOW TO MAKE AN ILLNESS ... - Invest in ME

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Professor Janet Darbyshire, OBE<br />

294<br />

Professor Darbyshire is Chair of the PACE Trial Steer<strong>in</strong>g Committee, which <strong>in</strong>cludes Professor Jenny Butler<br />

(an occupational therapist), Professor Patrick Doherty (a physiotherapist) and Professor Tom Sensky (a<br />

liaison psychiatrist and CBT therapist). Previous members <strong>in</strong>clude Professor Clair Chilvers. Observers<br />

<strong>in</strong>clude Professor Mansel Aylward (see above and Appendix V).<br />

Professor Darbyshire is an epidemiologist and science adm<strong>in</strong>istrator who jo<strong>in</strong>ed the MRC <strong>in</strong> 1974; she is the<br />

Head of the MRC Cl<strong>in</strong>ical Trials Unit and Jo<strong>in</strong>t Director of the UK Cl<strong>in</strong>ical Research Network (UKCRN) Co‐<br />

ord<strong>in</strong>at<strong>in</strong>g Centre, which is one of the key components of the UK Cl<strong>in</strong>ical Research Collaboration (UKCRC),<br />

the latter be<strong>in</strong>g a partnership of organisations work<strong>in</strong>g to establish the UK as a world leader <strong>in</strong> cl<strong>in</strong>ical<br />

research by harness<strong>in</strong>g the power of the NHS.<br />

Professor Jenny Butler<br />

Professor Butler is a member of the College of Occupational Therapists (of which she was Head from 2004 –<br />

2006) and a member of the British Psychological Society. Her first degree was <strong>in</strong> applied psychology at the<br />

University of Wales. She was made Honorary Fellow of the University of Cardiff <strong>in</strong> 2005 (where Professor<br />

Mansel Aylward now works). She was Chair of one of the three NHS research ethics committees <strong>in</strong> Oxford<br />

for over five years and was part of the <strong>in</strong>augural committee for the Association of Research Ethics<br />

Committees (UK). She is on record <strong>in</strong> the M<strong>in</strong>utes of the jo<strong>in</strong>t meet<strong>in</strong>g of the TSC and Data Monitor<strong>in</strong>g and<br />

Ethics Committee on 27 th September 2004 as stat<strong>in</strong>g that she was “very impressed” with the CBT Therapists’<br />

Manual, which <strong>in</strong>cluded recommendations advised by Professor Tom Sensky (see below for his views on<br />

<strong>ME</strong>/CFS).<br />

Professor Patrick Doherty<br />

Professor Doherty is a physiotherapist who now holds the Chair of Rehabilitation at York St John<br />

University. He is Cl<strong>in</strong>ical Specialist <strong>in</strong> Cardiac Rehabilitation at York Hospitals NHS Foundation Trust and<br />

is a member of the Department of Health’s dual tariff group for cardiac surgery and rehabilitation. He is<br />

also President of the British Association for Cardiac Rehabilitation and is National Cl<strong>in</strong>ical Lead for Cardiac<br />

Rehabilitation (NHS Heart Improvement).<br />

(Professor Doherty’s expertise <strong>in</strong> cardiac issues thus ought to have placed him <strong>in</strong> an advantageous position<br />

<strong>in</strong> relation to the cardiac problems <strong>in</strong> <strong>ME</strong>/CFS).<br />

Professor Tom Sensky<br />

Professor Sensky from the Division of Neurosciences and Mental Health, Imperial College, London is, like<br />

Simon Wessely, a liaison psychiatrist and he practices cognitive behavioural therapy.<br />

At the launch of The Psychological Medic<strong>in</strong>e Network (established to “facilitate knowledge and <strong>in</strong>formation<br />

shar<strong>in</strong>g among staff provid<strong>in</strong>g psychiatric and psychological care for medical patients <strong>in</strong> London”, whose aim is “to<br />

identify and unify those work<strong>in</strong>g <strong>in</strong> psychological medic<strong>in</strong>e <strong>in</strong> London <strong>in</strong> order to create better network<strong>in</strong>g<br />

opportunities between <strong>in</strong>dividuals and services” and to “dissem<strong>in</strong>ate examples of good practice”) on 10 th December<br />

2004 at Regent’s Park College, Sensky’s presentation was entitled “Somatisation and Primary Care”, <strong>in</strong> which<br />

he made some disturb<strong>in</strong>g statements (backed by his PowerPo<strong>in</strong>t slides, some of which have now been<br />

removed from the <strong>in</strong>ternet) about patients with medically unexpla<strong>in</strong>ed symptoms (MUS) <strong>in</strong> which he<br />

<strong>in</strong>cludes CFS patients.<br />

In addition to numerous cartoons that denigrate sick people (one of which shows a woman sobb<strong>in</strong>g <strong>in</strong> front<br />

of a doctor, with the caption “Madam, this is a consultation, not an audition”), Sensky’s slides state, for<br />

example, that:

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