MAGICAL MEDICINE: HOW TO MAKE AN ILLNESS ... - Invest in ME
MAGICAL MEDICINE: HOW TO MAKE AN ILLNESS ... - Invest in ME
MAGICAL MEDICINE: HOW TO MAKE AN ILLNESS ... - Invest in ME
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94<br />
• Disability <strong>in</strong>surance policy requirements <strong>in</strong>creas<strong>in</strong>gly imply the requirement for a claimant to<br />
participate <strong>in</strong> a “physical rehabilitation” regime for the duration of a claim, and that disability<br />
benefits may be term<strong>in</strong>ated if a claimant refuses to take part <strong>in</strong> such (Wessely School)<br />
“rehabilitation” regimes.<br />
The UK Departments of State and the frequently‐chang<strong>in</strong>g M<strong>in</strong>isters of those Departments seem to rema<strong>in</strong><br />
either unknow<strong>in</strong>g, unperturbed or uncar<strong>in</strong>g, so people with <strong>ME</strong>/CFS cont<strong>in</strong>ue to be targeted and they<br />
rema<strong>in</strong> victims of the State which cont<strong>in</strong>ues to follow UNUMProvident’s policies <strong>in</strong> respect of <strong>ME</strong>/CFS.<br />
For more <strong>in</strong>formation about UNUMProvident’s <strong>in</strong>volvement <strong>in</strong> the UK health service and the PACE Trial,<br />
see Appendix III.<br />
The refusal of the Wessely School to heed the biomedical science is caus<strong>in</strong>g <strong>in</strong>creas<strong>in</strong>g concern.<br />
Last yearʹs w<strong>in</strong>ner of the Nobel Prize <strong>in</strong> Medic<strong>in</strong>e, Professor Luc Montagnier of France, who was one of the<br />
discoverers of the HIV (AIDS) virus, says of <strong>ME</strong>/CFS: ʺScientists have already uncovered a lot about <strong>ME</strong>,<br />
but this <strong>in</strong>formation does not reach professional healthcare personnel, and the disease is still not taken<br />
seriously. It is about time this changes” (ES<strong>ME</strong> [European Society for <strong>ME</strong>] Press Release for conference <strong>in</strong><br />
Stavanger, Norway, on 13 th June 2009: Experts launch Th<strong>in</strong>k Tank for Mystery Disease).<br />
That concern also pervades the UK. On 5 th June 2009, comment<strong>in</strong>g on a letter published <strong>in</strong> the UK Bristol<br />
Even<strong>in</strong>g Post about <strong>ME</strong>/CFS, Hilary Patten wrote:<br />
“<strong>ME</strong> has been classified as a neurological illness by the WHO s<strong>in</strong>ce 1969, and the UK Government have stated that<br />
they accept it is a physical illness. Despite this, all research and treatment fund<strong>in</strong>g has been given to the psychiatric<br />
profession who <strong>in</strong>sist, aga<strong>in</strong>st all medical evidence, that it is an ‘aberrant illness belief’. Sufferers are mixed up <strong>in</strong> CFS<br />
cl<strong>in</strong>ics with patients who have a number of different fatigue‐caus<strong>in</strong>g illnesses, <strong>in</strong>clud<strong>in</strong>g mental disorders, and given<br />
totally <strong>in</strong>appropriate psychological treatments that have been found by all patients groups to actually make them worse.<br />
This is a dreadful waste of taxpayers’ money that could have been spent on biomedical research. There have been a<br />
number of deaths from <strong>ME</strong> <strong>in</strong> which pathogens have been found <strong>in</strong> the heart, central nervous system, gut and muscles<br />
at autopsy. Recent research has found a previously undiscovered prion <strong>in</strong> these profoundly affected patients. Until the<br />
UK psychiatric profession release their stranglehold on this physical illness there will never be effective treatment for<br />
<strong>ME</strong> <strong>in</strong> the UK. <strong>ME</strong> sufferers desperately need a diagnostic test to be developed. This needs fund<strong>in</strong>g to be redirected<br />
away from the endless and useless psychiatric research and put <strong>in</strong>to biomedical research”.<br />
Ms Pattern kept up the public pressure: referr<strong>in</strong>g to reports that Conservative Member of the European<br />
Parliament Daniel Hannan made <strong>in</strong> America about the shortcom<strong>in</strong>g of the British NHS (the world’s third<br />
largest employer after Indian rail and the Ch<strong>in</strong>ese army), where Mr Hannan said he “wouldn’t wish it on<br />
anybody”, particularly its queu<strong>in</strong>g, ration<strong>in</strong>g and bureaucracy, on 16 th August 2009 she wrote to The Times:<br />
“The quarter of a million sufferers of myalgic encephalomyelitis (<strong>ME</strong>) <strong>in</strong> this country, who can access no effective NHS<br />
treatment for their physical illness, might agree with Mr Hannan <strong>in</strong> that they would not wish their NHS ‘care’ on<br />
anybody. Instead of receiv<strong>in</strong>g biomedical treatment, <strong>ME</strong> sufferers are mixed up with sufferers of other fatigue‐caus<strong>in</strong>g<br />
conditions. All UK taxpayers’ research and treatment millions have gone to the psychiatric profession that <strong>in</strong>sist,<br />
aga<strong>in</strong>st all scientific evidence, that it is an ‘abnormal illness belief’. The parliamentary Gibson report recommended<br />
that these psychiatrists be <strong>in</strong>vestigated for a possible conflict of <strong>in</strong>terest <strong>in</strong> also work<strong>in</strong>g for large <strong>in</strong>surance companies.<br />
This has never been done. Is healthcare here also, <strong>in</strong> President Obama’s words,’work<strong>in</strong>g better for the <strong>in</strong>surance<br />
companies’ than for <strong>ME</strong> sufferers?”. The answer is an unequivocal “yes”.<br />
The presentation by Catriona Courtier at the Royal Society of Medic<strong>in</strong>e meet<strong>in</strong>g <strong>in</strong> the “Medic<strong>in</strong>e and me”<br />
series on 11 th July 2009 emphasised the scandalous situation faced by <strong>ME</strong>/CFS patients <strong>in</strong> the UK: