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MAGICAL MEDICINE: HOW TO MAKE AN ILLNESS ... - Invest in ME

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295<br />

• “People who present with somatisation disorders are often difficult to manage (and) may arose (sic) strong<br />

feel<strong>in</strong>gs <strong>in</strong> cl<strong>in</strong>icians”<br />

• patients with a “rat<strong>in</strong>g as ‘difficult’ (are) strongly associated with functional disorders”<br />

• “Difficulties <strong>in</strong> Doctor – Patient Relationship: Correlations with Number of Somatoform Symptoms (extent<br />

of frustration with patient’s symptoms; perception that patient is manipulative)”<br />

• “Correlations with GP Cl<strong>in</strong>ical Grad<strong>in</strong>g of Somatisation (helpless behaviour of patient; tiresome patient;<br />

difficult patient)”<br />

• “Attitudes of GPs toward patients with medically unexpla<strong>in</strong>ed symptoms (they are difficult to manage; they<br />

have personality problems; they have a psychiatric illness)”.<br />

In his slide “GPs’ Views: irritable bowel and CFS compared”, Sensky states that IBS patients have an<br />

anatomical or physiological basis for their symptoms but there is no such basis <strong>in</strong> CFS; that IBS patients<br />

do not have a low threshold for symptoms but that CFS patients do have a low threshold for symptoms;<br />

that IBS patients do not lack stoicism but that CFS patients do lack stoicism, and that IBS patients do not<br />

transgress the obligations of the sick role but CFS patients do transgress it.<br />

Sensky ma<strong>in</strong>ta<strong>in</strong>s that GPs make “<strong>in</strong>appropriate referrals” for patients with medically unexpla<strong>in</strong>ed symptoms<br />

(MUS) and teaches that GPs should make “persuasive statements” to patients with MUS <strong>in</strong> the form of<br />

“Provision of a ‘non‐disease’ explanation of the patient’s symptoms”.<br />

His slides state that: “medical tests are logically ambiguous”; that <strong>in</strong>terventions for somatoform disorders<br />

should <strong>in</strong>clude “reattribution” of the patient’s present<strong>in</strong>g symptoms and he gives as an example: “I feel my<br />

heart pound<strong>in</strong>g <strong>in</strong> my chest”, which he dismisses as somatic (he makes no mention of the possibility of<br />

autoimmune thyroiditis or of dysautonomia, both of which could cause a pound<strong>in</strong>g heart and both of which<br />

are documented <strong>in</strong> the literature as occurr<strong>in</strong>g <strong>in</strong> <strong>ME</strong>/CFS).<br />

Why is someone hold<strong>in</strong>g such views about <strong>ME</strong>/CFS as Professor Sensky a member of the PACE Trial<br />

Steer<strong>in</strong>g Committee? Who approved his membership of the TSC?<br />

It seems that he shares many of the same views about <strong>ME</strong>/CFS as Professor Simon Wessely so, as someone<br />

who seems to share Professor Wessely’s views about <strong>ME</strong>/CFS, perhaps it is unsurpris<strong>in</strong>g that he is <strong>in</strong>volved<br />

with the Wessely School’s PACE Trial.<br />

Perhaps it is also unsurpris<strong>in</strong>g that the authors of the PACE Trial Manuals repeatedly pa<strong>in</strong>t a picture of<br />

widespread <strong>in</strong>stitutionalised prejudice and contempt for <strong>ME</strong>/CFS patients from other professionals. Who,<br />

apart from Professor White, approved them?<br />

Professor Clair Chilvers<br />

Professor Chilvers has had an immensely dist<strong>in</strong>guished career. A former pupil of Cheltenham Ladies’<br />

College, <strong>in</strong> March 2009 she was aged 63. She went to Nott<strong>in</strong>gham <strong>in</strong> 1990 as Professor of Epidemiology, and<br />

from 1996 she was Dean of the Graduate School. She was appo<strong>in</strong>ted Regional Director of Research and<br />

Development (R&D) <strong>in</strong> the Department of Health at NHS Executive Trent <strong>in</strong> October 1999. She has been<br />

Head of R&D <strong>in</strong> the Midlands and East of England Directorate of Health and Social Care. She was Chair of<br />

Nott<strong>in</strong>ghamshire Healthcare NHS Trust, which is one of the largest providers of mental health services <strong>in</strong><br />

England. She has been a member of the Department of Health Committee on Carc<strong>in</strong>ogenicity of Food,<br />

Consumer Products and the Environment from 1993 to 2000 and a member of the Royal Commission on<br />

Environmental Pollution from 1994 to 1998. Her research work at the Institute of Cancer Research <strong>in</strong><br />

London <strong>in</strong>volved studies on both breast and testicular cancer. She also has a degree <strong>in</strong> statistics and a

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