01.12.2012 Views

MAGICAL MEDICINE: HOW TO MAKE AN ILLNESS ... - Invest in ME

MAGICAL MEDICINE: HOW TO MAKE AN ILLNESS ... - Invest in ME

MAGICAL MEDICINE: HOW TO MAKE AN ILLNESS ... - Invest in ME

SHOW MORE
SHOW LESS

You also want an ePaper? Increase the reach of your titles

YUMPU automatically turns print PDFs into web optimized ePapers that Google loves.

33<br />

warn<strong>in</strong>g about dependence be<strong>in</strong>g encouraged and expectation of recovery be<strong>in</strong>g damaged by the message that is given <strong>in</strong><br />

this recommendation?” (http://t<strong>in</strong>yurl.com/2fpjxc ). NICE, however, rejected White’s recommendation.<br />

Despite documented concerns about his unproven beliefs, <strong>in</strong>clud<strong>in</strong>g serious concerns about his irrefutable<br />

conflicts of <strong>in</strong>terest set out <strong>in</strong> November 2006 <strong>in</strong> the Report of the Gibson Inquiry by parliamentarians (see<br />

below), Peter White is lead advisor on “CFS/<strong>ME</strong>” to the Department for Work and Pensions.<br />

In June 2004 Peter White was awarded an OBE for his work on “CFS”. The citation was: “For services to<br />

medical education”. Notices circulat<strong>in</strong>g at the time proclaimed him as lead<strong>in</strong>g the research <strong>in</strong>to CFS/<strong>ME</strong> and<br />

said his OBE was a “well‐deserved honour and acknowledgement of his contribution to work on CFS/<strong>ME</strong>”.<br />

For someone to receive such an honour seems surpris<strong>in</strong>g if the person so honoured is apparently ignorant of<br />

the established facts perta<strong>in</strong><strong>in</strong>g to the subject of his research <strong>in</strong>terest for which he was honoured.<br />

Professor Michael Sharpe believes that there is no pathology <strong>in</strong> <strong>ME</strong>/CFS. He describes patients who suffer<br />

from it as “the undeserv<strong>in</strong>g sick of our society and our health service” (lecture given <strong>in</strong> October 1999 hosted by<br />

the University of Strathclyde) and asserts: “The label of CFS avoids the connotations of pseudo‐disease diagnoses<br />

such as <strong>ME</strong>” (Occup Med 1997:47:4:217‐227).<br />

His view is that: “It is apparent that the attitude of patients suffer<strong>in</strong>g from this chronic state must be changed – the<br />

knowledge that experience has shown that certa<strong>in</strong> sensations have resulted from certa<strong>in</strong> activities must be replaced by a<br />

conviction that these efforts may be made without harm” (The Science of the Art of Medic<strong>in</strong>e. Inaugural Lecture,<br />

University of Ed<strong>in</strong>burgh, 12 th May 2005, this be<strong>in</strong>g national <strong>ME</strong> Awareness Day). In his lecture, Sharpe<br />

spoke on how to treat diseases with “no pathology” (but he seems to dismiss the symptoms that are a<br />

manifestation of pathology) and he highlighted what he referred to as medic<strong>in</strong>e’s “bl<strong>in</strong>d spot” <strong>in</strong> deal<strong>in</strong>g<br />

with symptoms that “are not expressions of disease”.<br />

Together with Simon Wessely, Michael Sharpe contributed chapter 5 (Chronic Fatigue and Neurasthenia) <strong>in</strong><br />

a book entitled “Somatoform Disorders”, Volume 9, edited by Mario Maj (John Wiley & Sons, Chichester,<br />

2005). Although their chapter title refers to “Chronic Fatigue”, it starts by stat<strong>in</strong>g: “This chapter reviews<br />

current knowledge about chronic fatigue syndrome (CFS) and neurasthenia”, which immediately reveals not only a<br />

tell<strong>in</strong>g lack of scientific rigour but also the underly<strong>in</strong>g agenda of the Wessely School.<br />

In their chapter, Sharpe and Wessely state: “The term CFS subsumed a multitude of previous terms (which)<br />

<strong>in</strong>clude myalgic encephalomyelitis and post‐viral fatigue syndrome, as well as neurasthenia” (a patently untrue<br />

assertion, accord<strong>in</strong>g to the WHO).<br />

“Many but not all patients with CFS can be given a psychiatric diagnosis…Where there is considerable concern about<br />

concepts such as immune dysfunction (and) viral persistence, there may be greater likelihood of symptom<br />

persistence…CFS is a disorder of effort perception….The belief that activity is damag<strong>in</strong>g may be a critical<br />

psychological target for effective rehabilitation”.<br />

Given the extent of the <strong>in</strong>ternational literature on <strong>ME</strong>/CFS, Sharpe and Wessely’s pre‐supposition and<br />

apparently elective lack of knowledge about the disorder seem <strong>in</strong>explicable.<br />

Sharpe’s beliefs about <strong>ME</strong>/CFS <strong>in</strong>clude the follow<strong>in</strong>g:<br />

“When symptoms are found not to result from ‘genu<strong>in</strong>e physical illness’, they are often attributed to mental<br />

illness…Evidence for the superiority of new ways of th<strong>in</strong>k<strong>in</strong>g about and manag<strong>in</strong>g such patients is grow<strong>in</strong>g”<br />

(BMJ:1997:315:561‐562).

Hooray! Your file is uploaded and ready to be published.

Saved successfully!

Ooh no, something went wrong!