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MAGICAL MEDICINE: HOW TO MAKE AN ILLNESS ... - Invest in ME

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207<br />

“Just because one is blessed with a keen m<strong>in</strong>d and is granted a position of importance, it very obviously does not<br />

preclude the psychopaths, the bigots, the narrow m<strong>in</strong>ded or just pla<strong>in</strong> xenophobic from tak<strong>in</strong>g control of areas of public<br />

office that have great bear<strong>in</strong>g upon everyone’s lives. And then there is Straus – who fits the bill for all of the above –<br />

and of course he carried the child‐like characteristic of be<strong>in</strong>g unable to accept that he was wrong…It is just a shame that<br />

people have to die for those with <strong>ME</strong>/CFS to get an answer. And by that I mean that people such as Straus should step<br />

out of the way when they have no answer. Wessely should. White should. Sharpe should”.<br />

In a reply to someone who wrote to him on 12 th November 2009 ask<strong>in</strong>g for his response to the XMRV<br />

f<strong>in</strong>d<strong>in</strong>gs, Wessely replied: “Could be a real breakthrough, even if I still don’t understand how they made the leap<br />

from prostate cancer to CFS”, which seems to <strong>in</strong>dicate that Wessely rema<strong>in</strong>s ignorant of or else does not<br />

understand what Judy Mikovits et al said: “both are l<strong>in</strong>ked to alterations <strong>in</strong> the antiviral enzyme RNase L”,<br />

a l<strong>in</strong>k that was clearly expla<strong>in</strong>ed by David Bell <strong>in</strong> his Lyndonville News, volume 6, number 2, October 2009:<br />

“XMRV was first l<strong>in</strong>ked to human disease by Robert Silverman PhD at the Cleveland Cl<strong>in</strong>ic <strong>in</strong> patients<br />

with prostate cancer who also had a defect <strong>in</strong> the RNase L antiviral pathway. As this pathway has been<br />

known to be abnormal <strong>in</strong> CFS, it was reasonable to search for the virus <strong>in</strong> CFS”. Wessely then seemed to<br />

deny the association with XMRV and cancer: “I am worried that 20% of the CFS patients seem to have lymphoma<br />

(ie cancer), which might be fasc<strong>in</strong>at<strong>in</strong>g for our knowledge of cancer but really isn’t relevant for CFS”. Apparently<br />

adopt<strong>in</strong>g the same stance as Bill Reeves <strong>in</strong> the US, Wessely cont<strong>in</strong>ued: “I would be very surprised <strong>in</strong>deed if<br />

others f<strong>in</strong>d rates of XMRV at the same level as this paper” (Co‐Cure ACT: 12 th November 2009).<br />

There is <strong>in</strong>ternational recognition that Wessely “is employed by the M<strong>in</strong>istry of Defence and NA<strong>TO</strong> (he chaired a<br />

committee on psychological responses to WMD – weapons of mass destruction) and heavily backed by corporate<br />

<strong>in</strong>terests to deny the reality of chronic illnesses such as <strong>ME</strong>/CFS, Gulf War Illness, Lyme Disease, Multiple Chemical<br />

Sensitivity and others…Wessely’s name is known to the thousands of sufferers of chronic illnesses <strong>in</strong> Brita<strong>in</strong><br />

and abroad who have been hurt by his philosophy…For years Wessely has been the outspoken proponent of<br />

the view that chronic physical conditions such as Gulf War Illness, <strong>ME</strong>/CFS, fibromyalgia, Lyme Disease,<br />

MCS and others are simply ‘all <strong>in</strong> the head’ of the sufferer. This view has received great support from the<br />

Government and from the Army, both here and <strong>in</strong> America. It has also been enthusiastically promoted by<br />

<strong>in</strong>surance companies and the Department for Work and Pensions. Millions of public research funds have gone<br />

<strong>in</strong>to the pockets of psychiatrists follow<strong>in</strong>g the Wessely school of thought. The result: seriously ill patients<br />

have been denied recognition and treatment, disability benefits and dignity. They have been ridiculed by<br />

doctors and vilified <strong>in</strong> the press. Stigmatised by Wessely and his followers as mal<strong>in</strong>gerers, hypochondriacs,<br />

or simply ‘mad’, sufferers of chronic physical illnesses have been left untreated for years, sometimes end<strong>in</strong>g<br />

up paralysed, amnesic or even dy<strong>in</strong>g. Some commit suicide under the pressure of isolation and never‐end<strong>in</strong>g pa<strong>in</strong>.<br />

Provid<strong>in</strong>g no evidence base for his conclusions, Wessely nevertheless rides roughshod over published<br />

medical studies l<strong>in</strong>k<strong>in</strong>g vacc<strong>in</strong>e damage, chemical exposure etc with Gulf War Illness (and) toxic chemical<br />

exposure (and) viruses with fatigu<strong>in</strong>g illnesses. He does not disprove the evidence of physical causes for<br />

these diseases – he just ignores it” (http://www.<strong>in</strong>dymedia.org.uk/en/2006/01/331967.html).<br />

As long ago as 1998, <strong>in</strong> his article “Dr Simon Wessely: Prophet or Profit?”, Dr Ken Jolly, a GP <strong>in</strong> New<br />

Zealand who had to give up his medical practice because of <strong>ME</strong>/CFS, published his concern that Wessely et<br />

al had come to dom<strong>in</strong>ate th<strong>in</strong>k<strong>in</strong>g about <strong>ME</strong>/CFS even <strong>in</strong> New Zealand, say<strong>in</strong>g that they had achieved such<br />

<strong>in</strong>fluence by produc<strong>in</strong>g vast volumes of papers on CFS and obta<strong>in</strong><strong>in</strong>g fund<strong>in</strong>g for their own work. Jolly was<br />

forthright:<br />

“I feel it is time sufferers <strong>in</strong> NZ became aware of his grow<strong>in</strong>g <strong>in</strong>fluence. The existence of this <strong>in</strong>fluence is no new to UK<br />

sufferers and it has affected how they are be<strong>in</strong>g treated, as well as their accessibility to aid and f<strong>in</strong>ancial assistance.<br />

Cl<strong>in</strong>icians with oppos<strong>in</strong>g views are be<strong>in</strong>g sidel<strong>in</strong>ed by most of the prestigious medical journals. Why this is so is<br />

unclear. Simon Wessely is very politically astute (and) has been able to sway many to his way of th<strong>in</strong>k<strong>in</strong>g. He has also<br />

developed a ‘patter’ which he uses to conv<strong>in</strong>ce patients of the rightness of his model. In reality, this is a smokescreen<br />

which effectively covers his true underly<strong>in</strong>g beliefs. But ‘the cl<strong>in</strong>cher’ for conv<strong>in</strong>c<strong>in</strong>g many medical scientists of<br />

any theory is to back it up with reliable research data. He and his colleagues have ‘appeared’ to do this,<br />

almost putt<strong>in</strong>g an end to the oppositional cries from the physical camp. However, these trials have been

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