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MAGICAL MEDICINE: HOW TO MAKE AN ILLNESS ... - Invest in ME

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406<br />

physical illness and is only an ‘aberrant belief’…The well‐<strong>in</strong>tentioned but wholly misplaced attempt to dialogue with<br />

and <strong>in</strong>fluence these corporate‐backed psychiatrists has not only failed to secure progress, it has led to the extremely<br />

dangerous situation now at hand…I would solemnly caution the M.E. community to beware of people attempt<strong>in</strong>g to<br />

persuade us not to confront…corporate‐backed psychiatrists…These people are not open to reason, they are the enemy<br />

of good science and the enemy of M.E. sufferers…The time has come to sadly disassociate with <strong>ME</strong>A, Af<strong>ME</strong> and other<br />

appeasers – they are part of the problem, not the solution…The one th<strong>in</strong>g we have on our side is that Wesselyites do not<br />

is science. It is time to expose bad science and vested <strong>in</strong>terest” (http://wp.me/p7FYk‐3a ).<br />

As one severely affected <strong>ME</strong> sufferer wrote: “When they publish the PACE ‘results’ there will be widespread<br />

suffer<strong>in</strong>g on a scale hitherto unknown” (letter to Heather Walker at Af<strong>ME</strong>, 8 th June 2007). The correspondent<br />

cont<strong>in</strong>ued: “We’ve had enough of the damage the IoP and Barts and their supporters have wreaked locally via GPs,<br />

and the endless cont<strong>in</strong>uous stress we are subjected to by their <strong>in</strong>fluence on the DWP – never m<strong>in</strong>d the research<br />

environment, which they have managed to devastate over the years…None of this has happened mysteriously.<br />

Individuals are responsible, and they tend to have names”.<br />

Disturb<strong>in</strong>gly, perhaps as a result of the Wessely School myth, the on‐go<strong>in</strong>g disda<strong>in</strong> and contempt <strong>in</strong> which<br />

extremely sick <strong>ME</strong>/CFS sufferers cont<strong>in</strong>ue to be held is reflected by contributors to “Advances <strong>in</strong> Psychiatric<br />

Treatment” 2010:16:1:doi:10.1192/apt.16.1.1. Discuss<strong>in</strong>g the forthcom<strong>in</strong>g revision and harmonisation of the<br />

two major classifications ICD and DSM, the Editor, Joe Bouch, states:<br />

“Sartorius gives a beh<strong>in</strong>d‐the‐scenes view of the revision process. There are many vested <strong>in</strong>terests: not just<br />

cl<strong>in</strong>icians, but governments, NGOs, lawyers, researchers, public health practitioners, Big Pharma and<br />

patient groups. Vast sums are at stake – everyth<strong>in</strong>g from welfare benefits and compensation claims to research<br />

budgets…Like Sartorius, Thornicroft s<strong>in</strong>gles out chronic fatigue syndrome, ‘bitterly contested <strong>in</strong> terms of its<br />

status as a physical, psychiatric or psychosomatic condition’ and viewed by healthcare staff as a ‘less<br />

deserv<strong>in</strong>g’ category”.<br />

Referr<strong>in</strong>g to ICD‐10, Sartorius (to whose 1990 book “Psychological Disorders <strong>in</strong> General Medical Sett<strong>in</strong>gs”<br />

Wessely contributed the chapter “Chronic Fatigue and Myalgia Syndromes”: see Section 1 above) himself<br />

states: “Some of the categories that one would expect to f<strong>in</strong>d <strong>in</strong> a chapter devoted to mental disorders have been placed<br />

elsewhere, ma<strong>in</strong>ly because of pressures exerted by those who did not want to be labelled by any particular ‘psychiatric’<br />

diagnosis. Thus, for example, chronic fatigue syndrome, which was listed together with neurasthenia for a long time, is<br />

now <strong>in</strong> the chapter conta<strong>in</strong><strong>in</strong>g <strong>in</strong>fectious diseases which are supposed to be caus<strong>in</strong>g it”. This is remarkable for three<br />

reasons, first because ICD‐10 G93.3 is conta<strong>in</strong>ed <strong>in</strong> Chapter 6 under Disorders of the Bra<strong>in</strong> (not under<br />

Infectious Diseases); secondly because <strong>ME</strong> (for which CFS is a synonym) has never been classified <strong>in</strong> the<br />

ICD as neurasthenia and thirdly, Norman Sartorius is President of the Association for the Improvement of<br />

Mental Health Programmes and holds professorial appo<strong>in</strong>tments at the Universities of London, Prague and<br />

Zagreb and at several other universities <strong>in</strong> the USA and Ch<strong>in</strong>a. He was a member of the WHO’s Topic<br />

Advisory Group for ICD–11 and a consultant to the American Psychiatric Research Institute, which supports<br />

the work on the DSM–V. He has also served as Director of the Division of Mental Health of the WHO and he<br />

is a past President of the World Psychiatric Association and of the Association of European Psychiatrists, so<br />

one could expect him to be accurate.<br />

Without the correct application of the scientific process, there can be no advancement of knowledge. There<br />

should be open debate and discussion, not suppression or dismissal of evidence that does not support a<br />

particular theory.<br />

The FINE Trial results do not support the Wessely School’s model, but contrary to the most basic pr<strong>in</strong>cipal<br />

of science, the Wessely School rema<strong>in</strong> wedded to a theory that is not supported even by their own evidence.<br />

Notwithstand<strong>in</strong>g the FINE Trial results, it is widely expected that the PACE Trial results will support the<br />

Wessely School’s model of “CFS/<strong>ME</strong>” not least because, accord<strong>in</strong>g to Professor Peter White, the aim of the

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