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MAGICAL MEDICINE: HOW TO MAKE AN ILLNESS ... - Invest in ME

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body of evidence that these diseases are biomedical, there is still a school of thought that they are<br />

psychosocial behavioural conditions and that they can be overcome with firm handl<strong>in</strong>g, a course of<br />

cognitive behaviour therapy and graded exercises. It is apparent that this view still prevails at the DWP.<br />

This is so despite M<strong>in</strong>isters’ repeated assurances that they and the Department for Work and Pensions’<br />

employees and agents fully agree with the Department of Health statement that they ‘accept the World<br />

Health classification of CFS/<strong>ME</strong> as a neurological condition’….This Bill compounds the problems that have<br />

emerged from last year’s welfare reforms. The language is harsh, the sanctions punitive and the rule <strong>in</strong>flexible.<br />

It appears that decision‐makers will use subjective rather than objective measures as a basis for their plans…Past<br />

experience has shown that, no matter what the claimant tells the decision‐maker or what his medical notes <strong>in</strong>dicate, a<br />

claimant with a fluctuat<strong>in</strong>g condition is likely to be ‘directed to undertake specific work‐related activity <strong>in</strong> certa<strong>in</strong><br />

circumstances’. The M<strong>in</strong>ister spoke about elim<strong>in</strong>at<strong>in</strong>g discrim<strong>in</strong>ation. To quote aga<strong>in</strong> from that report: ‘The fact that<br />

people with <strong>ME</strong> cannot readily convey the reality of their illness experience on exist<strong>in</strong>g assessment forms or <strong>in</strong> early<br />

assessment <strong>in</strong>terviews shows that, from the first <strong>in</strong>teraction, such illnesses are discrim<strong>in</strong>ated aga<strong>in</strong>st’….I am worried<br />

that there is no <strong>in</strong>dication <strong>in</strong> the Bill of the level of tra<strong>in</strong><strong>in</strong>g that will be required of the advisers and decision‐makers or,<br />

if they are to be supplied by contract with the private sector, what practical and ethical checks will be made on their<br />

decisions”.<br />

This DWP control (where Professor Peter White is lead advisor on “CFS/<strong>ME</strong>”) seems to bear an alarm<strong>in</strong>g<br />

similarity to the National Socialist <strong>in</strong>fluence that swept across the Cont<strong>in</strong>ent of Europe dur<strong>in</strong>g the early<br />

20 th century.<br />

In 2001, the American Journal of Bioethics published an article by Warren T Reich from Georgetown<br />

University who reported on an <strong>in</strong>quiry <strong>in</strong>to ideas that were used to justify the shift of medical ethos <strong>in</strong><br />

Germany prior to and dur<strong>in</strong>g the Nazi era (AJOB 2001:1:1:64‐74). Reich, Professor Emeritus of Bioethics <strong>in</strong><br />

the Georgetown University School of Medic<strong>in</strong>e, considers the evidence <strong>in</strong> relation to the current ethos of<br />

care of the sick and the manipulation of that care:<br />

“To develop an adequate ethic for the healthcare professions, we need to look more deeply <strong>in</strong>to the sentiments and<br />

commitments of healthcare professionals…If we pursue this, we encounter precisely the sort of ethic on which<br />

much of Nazi medic<strong>in</strong>e was radically built, namely, physicians’ attitudes and the state’s attitudes towards<br />

care.<br />

“Erw<strong>in</strong> Liek and Karl Kotschau were two enormously <strong>in</strong>fluential physician‐theorists who argued for the reorientation<br />

of care (and who) were radically alter<strong>in</strong>g the major goals of medic<strong>in</strong>e.<br />

“By m<strong>in</strong>imis<strong>in</strong>g and even belittl<strong>in</strong>g cl<strong>in</strong>ical care of the <strong>in</strong>dividual…their argument entailed the manipulation of the<br />

very idea of care.<br />

“Liek was a prolific and extremely popular writer who wielded enormous <strong>in</strong>fluence <strong>in</strong> the medical world of Germany<br />

and many other countries.<br />

“Major responsibility for medical care shifts to the state, while the rationale for receiv<strong>in</strong>g care depends more and more<br />

on the <strong>in</strong>dividual’s contributions to the state.<br />

“Follow<strong>in</strong>g Liek’s death, (his disciple) Kotschau was still proclaim<strong>in</strong>g –‘almost with ideological obst<strong>in</strong>acy’ – that<br />

medic<strong>in</strong>e and people generally should turn away from their primary <strong>in</strong>terest <strong>in</strong> disease, its treatment and cure (care of<br />

<strong>in</strong>dividual sick persons), and apply themselves to health, its promotion and preservation (ie. the needs of the entire<br />

society)”.<br />

Turn<strong>in</strong>g away from a primary <strong>in</strong>terest <strong>in</strong> disease, its treatment and cure <strong>in</strong> favour of the commercial<br />

<strong>in</strong>terests of “society” seems to be exactly <strong>in</strong> what the PACE Trial Chief <strong>Invest</strong>igator, Peter White, is<br />

engaged, so it is worth reiterat<strong>in</strong>g his beliefs: “some people believe that medic<strong>in</strong>e is currently travell<strong>in</strong>g up a<br />

‘bl<strong>in</strong>d alley’ (and) that this ‘bl<strong>in</strong>d alley’ is the biomedical approach to healthcare. The biomedical model assumes that

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