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E-POSTER: CASE STUDY<br />

E-Poster: Case Study<br />

EP 578<br />

KLIPPEL TRENAUNAY SYNDROME-OTPIMIZING WELL BEING<br />

Jan Rice 1<br />

1 LaTrobe University World of Wounds (Melbourne, Australia).<br />

Aim: This case study will highlight just how the clinician can impact on the well being of<br />

someone born with a congenital syndrome that has impacted on her young life resulting<br />

in hard to heal wounds. Klippel Trenaunay Syndrome is a rare syndrome usually<br />

involving port wine stains, excess growth of bones and soft tissue, and varicose veins.<br />

My patient was thirteen years old when I first met her – she is now twenty one years of<br />

age and has had multiple venous ulcers, surgery and scleropathy sessions with her<br />

vascular surgeon. My goal in her management plan was to provide support and<br />

strategies to self care and fulfill her life ambitions.<br />

Methods: As a health professional it is easy to pay lip service to the terms – holistic<br />

care. The reality is that this is sometimes very difficult to achieve in our cost constrained<br />

environments. Accurate assessment, appropriate referral, ongoing education and<br />

continual support through modern media has allowed my patient to explore her dreams<br />

and lead a fulfilling life to date<br />

Results/Discussion: My patient never spoke when I first met her – her mother<br />

answered all my questions. Today my patient is self caring-and with encouragement has<br />

managed to travel to India, Nepal and Israel in the past 2 years. Emails photographs<br />

allow us to chat about wound care and provide her with the support she has required to<br />

gain self confidence in self care.<br />

EP 579<br />

CANCER AND EPIDERMOLYSIS BULLOSA – CASE REPORT<br />

E-Poster: Case Study<br />

Silvana Prazeres 1 , Cheila Costa 2<br />

1 MaximedSul And Unisinos (Porto Alegre, Brazil);<br />

2 MaximedSul (Porto Alegre, Brazil).<br />

Introduction: Cancer is one of the most serious complications arising in patients with<br />

dystrophic epidermolysis bullosa (EB). It is a rare genetic disorder characterized by<br />

extremely fragile skin and mucosa, resulting in blisters and chronic wounds. There are<br />

studies demonstrating that squamous cell carcinoma, malignant melanoma infiltrative<br />

and basal cell carcinoma are often found as one of the complications and causes of<br />

death among individuals with recessive dystrophic epidermolysis bullosa (RDEB).<br />

Objective: The aim of this study is to report accompaniment a injury patient with RDEB<br />

in right knee type dermoid carcinoma.<br />

Method: The registry of the case was conducted during weekly home care, from<br />

September to December 2011, observing the injury healing processes, adapting nursing<br />

actions according to the evolution of postoperative carcinoma. Featuring ulcerated lesion<br />

on right knee. Exudative lesions and fetid with progressive worsening in recent months.<br />

He mades a biopsy and was diagnosed differentiated squalors cell carcinoma,<br />

keratinizing, invading the reticular dermis. It was to promote an atraumatic dressing and<br />

tissue regeneration. There were initiated daily heated dressings impregnated with soft<br />

silicone.<br />

Results: The purpose of this treatment was to minimize injury trauma, reducing pain,<br />

making exchanges less traumatic and less withdrawal of the new tissue. This permitted a<br />

repair tissue appropriate and not traumatic. Associated with to the dressing with silicone,<br />

an oily solution based on the insaturated essential fatty acids (AGEI). where was<br />

observed the ability to stimulate the healing process, from initial stimulation of the<br />

inflammatory response until complete reepithelialization that happened in about 60 days<br />

after surgery.<br />

<strong>EWMA</strong> <strong>2013</strong><br />

COPENHAGEN<br />

15-17 May · <strong>2013</strong><br />

Danish Wound<br />

Healing Society<br />

325

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