B O O K - American College of Rheumatology

Session Overview:
Fifty percent of patients with long term conditions do not take
their medications. Furthermore patients can have variable clinic
experience. Patient feedback is valuable but is it possible to
survey every patient on every health care professional contact/
clinic visit? This session will discuss the impact on systems
improvement and effects on team productivity and well as
improving patient experience.
Upon completion of this session, participants should be able to:
• explain approaches to acquiring systematic patient feedback
• identify issues and develop solutions
• identify practical approaches to measuring patient feedback in
your practice settings
B313
Patient Perspective on Outcomes: Patients as Partners
in the Research Process
Moderators: John R. Kirwan, MD; Bristol Royal Infirmary; Bristol,
United Kingdom
Ingemar F. Petersson, MD; Lund University Hosp; Lund, Sweden
Robert Marshall, MD; University Hospitals Bristol NHS
Foundation Trust; Bristol, United Kingdom
Christina H. Opava, PhD; Karolinska Institutet; Huddinge, Sweden
1:00 PM
Introduction: Including the Patient Perspective in Outcomes by
Including Patients in the Research Process
Ingemar F. Petersson, MD; Lund University Hosp; Lund, Sweden
1:05 PM
Working With Patients at a Local Level
John R. Kirwan, MD; Bristol Royal Infirmary; Bristol, United
Kingdom
1:15 PM
Personal Experience of Patient Involvement in Priority Setting
in a National Research Granting Agency
Robert Marshall, MD; University Hospitals Bristol NHS
Foundation Trust; Bristol, United Kingdom
1:25 PM
A Nationwide Program of Patient Involvement
Christina H. Opava, PhD; Karolinska Institutet; Huddinge, Sweden
1:35 PM
Panel Discussion/Summary
Ingemar F. Petersson, MD; Lund University Hosp; Lund, Sweden
Session Overview:
The Patient Perspective in Outcomes Research Study Group has
had good support at previous meetings. Over 60 participants
attended in 2009. It has contributed to furthering research in
the field through dissemination of findings and discussions that
led to new research initiatives. The measurement of the broader
impact of arthritis has become an important issue, particularly in
relation to clinical trial outcomes. There is increasing recognition
that including patients directly in the process of formulating,
funding, conducting and interpreting research aids in the
inclusion and consideration of outcomes directly relevant to
patients.
Upon completion of this session, participants should be able to:
• describe the challenges faced by patients who become
partners in the research process
• describe the challenges faced by researchers when they work
with patient partners
• identify ways in which patients have enhanced research
in:research groups, research funding allocation in
Rheumatology and research promotion and development in a
national movement
• incorporate the patient perspective through the use of patient
research partners
A315
Rehabilitative Rheumatology
Moderators: Helen M. Emery, MD; Children’s Hospital & Regional
Medicine; Seattle, WA
J. Carter Thorne, MD; Southlake Regional Health Care;
Newmarket, ON, Canada
Speaker: Helen M. Emery, MD; Children’s Hospital & Regional
Medicine; Seattle, WA
Session Overview:
This Study Group session allows attendees interested in
rehabilitative rheumatology to share their ideas on how
to include rehabilitation in multiple facets of the specialty
including discussion on proposed educational curriculum for
rheumatology trainees in rehabilitation.
Upon completion of this session, participants should be able to:
• offer input into the proposed educational curriculum for
rheumatology trainees in rehabilitation
• participate in the multidisciplinary mangement of rheumatic
diseases
A316
Scleroderma-Biomarkers
Moderator: Robert A. Lafyatis, MD; Boston University School of
Medicine; Arlington, MA
1:00 PM
Chemokines as Scleroderma Biomarkers
Timothy R.D.J. Radstake, MD, PhD; Radboud University Nijmegen
Medical Centre; Nijmegen, Netherlands
1:20 PM
Biomarkers of Pulmonary Hypertension
Harrison Farber, MD; Boston University Medical Center; Boston,
MA
1:40 PM
Proteomic Approaches in Scleroderma Biomarkers
Sergio A. Jimenez, MD; Thomas Jefferson University;
Philadelphia, PA
Session Overview:
Biomarkers of disease activity and progression are needed to
stratify patients for treatment
Upon completion of this session, participants should be able to:
• identify emerging biomarkers for pulmonary hypertension
• understand challenges for biomarker discovery
• discuss biomarkers that predict future disease complications
wednesday
2010 Program Book 111