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Moving Forward Together in Aboriginal Women's Health: - Theses ...

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<strong>Mov<strong>in</strong>g</strong> <strong>Forward</strong> <strong>Together</strong>Janet KellySpirit and IntegrityMany Aborig<strong>in</strong>al people 16 regard spirit and <strong>in</strong>tegrity as the most importantvalues that unite them. Spirit refers to the ongo<strong>in</strong>g connection and cont<strong>in</strong>uitybetween past, current and future generations, and country. Integrity is aboutrespectful and honourable behaviours that hold Aborig<strong>in</strong>al and Torres StraitIslander values and cultures together (National <strong>Health</strong> and Medical ResearchCouncil 2003). By us<strong>in</strong>g collaborative models and the holistic view of health,my approach to research has supported concepts and experiences of spirit and<strong>in</strong>tegrity. I was cont<strong>in</strong>ually guided by the co-researchers as to what wasimportant for them, and to remember that there could be important cultural,spiritual and personal aspects and preferences that I was unaware of.User driven research & formal ethics applicationLocat<strong>in</strong>g this research with<strong>in</strong> a wider health and research agenda has beenanother important ethical aspect. Early meet<strong>in</strong>gs with Aborig<strong>in</strong>al healthresearch leaders from the Aborig<strong>in</strong>al <strong>Health</strong> Council of South Australia(ACHSA) and Fl<strong>in</strong>ders Aborig<strong>in</strong>al <strong>Health</strong> Research Unit (FAHRU) and the Cooperative Research Centre for Aborig<strong>in</strong>al <strong>Health</strong> (CRCAH), has ensured thatthis research complements other exist<strong>in</strong>g research projects <strong>in</strong> South Australiaas well as national directions of Aborig<strong>in</strong>al health research. A facilitateddevelopmental approach to Aborig<strong>in</strong>al research promoted by the CRCAH,ensures that Aborig<strong>in</strong>al people and the Aborig<strong>in</strong>al health sector provide thepriorities and directions for research, rather than external academics orresearchers follow<strong>in</strong>g their own <strong>in</strong>terests (Brands 2005).Prepar<strong>in</strong>g the ethics application was a collaborative process occurr<strong>in</strong>g afterextensive consultation with Aborig<strong>in</strong>al community women, healthprofessionals, the Aborig<strong>in</strong>al <strong>Health</strong> Council of South Australia (Chong, A.2005, pers. comm., 23 June) and the Fl<strong>in</strong>ders Aborig<strong>in</strong>al <strong>Health</strong> Research Unit(O'Donnell 2006a). Formal ethics approval was sought and granted from theFl<strong>in</strong>ders University Social and Behavioural Research Ethics Committee, theSouth Australian Aborig<strong>in</strong>al <strong>Health</strong> Research Ethics Committee, andDepartment of Education and Children’s Services (see Appendix 2). Letters of16 The NHMRC document discusses Aborig<strong>in</strong>al and Torres Strait Islander People. In this study Irefer only to Aborig<strong>in</strong>al people, as no co-researchers identified as Torres Strait Islander people.116

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