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A thesis submitted in partial fulfilment of - Queen Margaret University

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cont<strong>in</strong>ue to experience significant communication difficulties for the rest <strong>of</strong> their<br />

lives (Code and Herrmann, 2003; McArthur, Frederick, Hartley, Yardley, Booth<br />

and Armstrong, 2002; Hillis and Heidler, 2000). So what is the impact <strong>of</strong> aphasia<br />

on an <strong>in</strong>dividual’s quality <strong>of</strong> life?<br />

2.3 THE IMPACT OF APHASIA<br />

While many people associate the idea <strong>of</strong> disability with physical or sensory<br />

impairments (for example, people who use wheelchairs to mobilise)<br />

communication impairment such as aphasia cannot be seen. Aphasia therefore<br />

does not fit <strong>in</strong> easily with society’s perception <strong>of</strong> disability (Parr et al., 1997).<br />

Despite this perception the literature reports that aphasia has a large impact on<br />

a person’s life, turn<strong>in</strong>g ord<strong>in</strong>ary everyday communicative situations <strong>in</strong>to a<br />

struggle <strong>in</strong> understand<strong>in</strong>g what is be<strong>in</strong>g communicated to them and be<strong>in</strong>g<br />

understood by others (Doesborgh, van de Sandt-Koenderman, Dippel, van<br />

Harskamp, Koudstaal and Visch-Br<strong>in</strong>k, 2002).<br />

‘When I am with others and they speak to me I have to<br />

understand what they say right away, otherwise it is<br />

too late – the subject <strong>of</strong> discussion will have gone onto<br />

someth<strong>in</strong>g else’ (Christensen, 1997; 730)<br />

‘I was mad. I was mad <strong>in</strong> here that it wouldn’t come out<br />

– when I did try to say someth<strong>in</strong>g um….an it all come<br />

out….well gobbledegook…. em…. an I knew what I<br />

was go<strong>in</strong>g to say but I couldn’t say it’ (Parr et al., 1997;<br />

15)<br />

‘In my head I can talk, only the mouth will not’<br />

(Christensen, 1997; 733)<br />

8

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