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Seattle University Collaborative Projects - International Academy of ...

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Title T.B.A.Don Linszen, <strong>University</strong> <strong>of</strong> Amsterdam (d.h.linszen@amc.uva.nl)Don Linszen will present his views and attitudes concerning the normative framework <strong>of</strong>research ethics in mental health research with minors based on his experiences with research inthe area <strong>of</strong> early onset psychoses and schizophrenia.Mental Health Research with Minors: The Normative Framework RevisitedDorothee Horstkötter, Maastricht <strong>University</strong> (d.horstkoetter@maastrichtuniversity.nl)This presentation reflects on the current normative framework concerning the inclusion <strong>of</strong>minors in mental health research. It embarks upon the assumptions that in addition to atheoretical ethical analysis, the views, perspectives and experiences <strong>of</strong> researchers in the fieldsshould be taken into account. The three preceding presentations concerning mental healthresearch with children and adolescents in the areas <strong>of</strong> substance use, antisocial behaviour andpsychosis, respectively, will provide important input in this regard. Combining a theoreticalethical analysis with information gained from practice reports, I will end with severalsuggestions concerning suitable amendments <strong>of</strong> current ethical standards in mental healthresearch with minors113. Mental Health, Rights, and the LawPlanning for Future Mental Health Crises in New ZealandKatey Thom, <strong>University</strong> <strong>of</strong> Auckland (k.thom@auckland.ac.nz)Allowing patients to make advance decisions regarding their future health care is an importantfeature <strong>of</strong> health service provision. Within mental health various models <strong>of</strong> advance careplanning (ACP) have been developed and many advocates believe such planning has thepotential to facilitate autonomous decision-making and increase patient perceptions <strong>of</strong> controlover treatment. The consideration <strong>of</strong> ACP in mental health care is also particularly relevant giventhe current policy climate following the ratification <strong>of</strong> the Convention for the Rights <strong>of</strong> Peoplewith Disabilities. The Convention promotes service users’ ability to claim their right to makeimportant decisions regarding their lives, rather than being viewed as ‘objects’ <strong>of</strong> medicaltreatment and social protection. ACP has been touted as one method <strong>of</strong> ensuring service usershave a stronger role in the decision-making about their health and social care needs. This271

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