Pediatric Informatics: Computer Applications in Child Health (Health ...

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292 C. Sable et al. 17. Sable C, Roca T, Gold J, Gutierrez A, Gulotta E, Culpepper W. Live transmission of neonatal echocardiograms from underserved areas: accuracy, patient care, and cost. Telemed J. 1999;5:339–347. 18. Sharma S, Parness IA, Kamenir SA, Ko H, Haddow S, Steinberg LG, et al. Screening fetal echocardiography by telemedicine: efficacy and community acceptance. J Am Soc Echocardiogr. 2003;16(3): 202–208. 19. Trippi JA, Lee KS, Kopp G, Nelson D, Kovacs R. Emergency echocardiography telemedicine: an efficient method to provide 24-hour consultative echocardiography. J Am Coll Cardiol. 1996;27:1748–1752. 20. Stevenson JG. Evolution of echocardiography in neonatal diagnosis. Acta Paediatr Suppl. 1995;410:8–14. 21. Webb CL, Sable CA, Waugh CL, Grigsby J, Berdussis DJ. Impact of Telemedicine on Medical and Financial Outcomes in Infants with Suspected Heart Disease. Presented at the Twelfth Annual Scientific Sessions American Society of Echocardiography, Seattle WA, June 2001. 22. American Telemedicine Association. White paper: federal policy recommendations for home telehealth and remote monitoring; 2006. Available at: http://www.americantelemed.org/ files/public/policy/Home_Telehealth_Policy_ver3_5.pdf. Accessed December 21, 2008. 23. Marcin J, Ellis J, Mawis R, et al. Using telemedicine to provide pediatric subspecialty care to children with special health care needs in an underserved rural community. Pediatrics. 2004;113:1–6. 24. Fleisher L, Dechene J. Telemedicine and E-Health Law (Healthcare Law Series). New York: Law Journal Press; Ringbound (ed); 2004. 25. Whiten P, Duis L. American Telemedicine Association White Paper: Private Payer Reimbursement for Telemedicine Services in the United States; 2006. Available at: http://www.american telemed.org/files/public/policy/Private_Payer_Report.pdf. Accessed December 21, 2008.
Chapter 21 Personal Health Records Alan E. Zuckerman and George R. Kim Objectives To provide motivation and definitions for personal health records (PHRs) To summarize current progress in development and adoption of PHRs To project the use and challenges of PHRs in pediatrics 21.1 Introduction A personal health record (PHR, also known as a personally controlled health record or PCHR) is “an electronic application through which individuals can access, manage and share their health information, and that of others for whom they are authorized, in a private, secure, and confidential environment.” 1 PHRs are lifelong summaries of key information from all providers and include data gathered between encounters, and although they may be linked to and share information with electronic health records (EHRs), PHRs are distinct in that the locus of control of information is the patient 2 (and in the case of pediatrics, the parent or guardian) instead of a clinician or health care institution. While specific definitions are still evolving (including the HL7 PHR-S functional model 3 ) the goals of PHR development and adoption include: education and empowerment of health consumers, improvement of patient safety, health quality, and reduction of costs through information access (to improve efficiency and reduce duplication of services). Interest in development and adoption of PHRs has increased among employers, 4 professional health groups 5 and government agencies, 6 and a list of 20 recommendations on privacy, security requirements, interoperability, research and evaluation and federal roles in PHR and PHR system development has been published. 7 C.U. Lehmann et al. (eds.), Pediatric Informatics: Computer Applications 293 in Child Health, Health Informatics, © Springer Science + Business Media, LLC 2009
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Health Informatics (formerly Comput
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Editors Christoph U. Lehmann George
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vi Series Preface changes to both t
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viii Foreword This text will prove
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x Preface financial investment and
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How to Use This book This book is t
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xvi Contents 9 Pediatric Care, Safe
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xviii Contents Part VII A Vision an
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xx Contributors Donna M. D’Alessa
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xxii Contributors Christoph U. Lehm
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xxiv Contributors Mark M. Simonian,
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4 G.R. Kim pharmacy, medical educat
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6 K.B. Johnson and G.R. Kim Deaths
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8 K.B. Johnson and G.R. Kim 2.4.1 I
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10 K.B. Johnson and G.R. Kim 2.4.3
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12 K.B. Johnson and G.R. Kim Educat
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14 K.B. Johnson and G.R. Kim 2.6 Co
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Chapter 3 Core Pediatric Data Kevin
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3 Core Pediatric Data 21 3.3 Pediat
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3 Core Pediatric Data 23 3.6 Pediat
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Chapter 4 Neonatal Care and Data De
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4 Neonatal Care and Data 27 Essenti
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4 Neonatal Care and Data 29 4.3 The
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4 Neonatal Care and Data 31 some ma
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4 Neonatal Care and Data 33 Measure
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4 Neonatal Care and Data 35 4.5.2.4
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4 Neonatal Care and Data 37 4.6.3 I
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4 Neonatal Care and Data 39 4.7.2.2
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4 Neonatal Care and Data 41 Availab
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44 D.M.N. Paperny Tasks related to
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46 D.M.N. Paperny Behavioral risk d
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48 D.M.N. Paperny for outside ancil
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50 D.M.N. Paperny Video reinforceme
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52 D.M.N. Paperny 3. Litzelman DK,
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Chapter 6 Children with Development
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6 Children with Developmental Disor
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Chapter 7 Pediatric Emergency and P
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7 Pediatric Emergency and Pediatric
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84 W.H. Drummond et al. A recovery
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86 W.H. Drummond et al. 8.2.2 Forma
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88 W.H. Drummond et al. 8.2.2.1 Sys
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90 W.H. Drummond et al. The multidi
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92 W.H. Drummond et al. noise overl
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94 W.H. Drummond et al. needs requi
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96 W.H. Drummond et al. Children’
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98 W.H. Drummond et al. After the P
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100 W.H. Drummond et al. Table 8.2
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104 W.H. Drummond et al. when to su
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106 W.H. Drummond et al. It is crit
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108 W.H. Drummond et al. traditiona
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110 W.H. Drummond et al. and human
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112 W.H. Drummond et al. blood prod
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116 W.H. Drummond et al. 35. Collin
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Chapter 9 Pediatric Care, Safety, a
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9 Pediatric Care, Safety, and Stand
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134 D.M. D’Alessandro The EBM pro
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136 D.M. D’Alessandro 10.4 Pragma
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138 D.M. D’Alessandro 4. Case ser
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140 D.M. D’Alessandro Ontario, BC
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142 D.M. D’Alessandro Table 10.1
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144 D.M. D’Alessandro Children ar
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146 D.M. D’Alessandro 17. Ely JW,
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Chapter 11 Clinical Practice Guidel
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11 Clinical Practice Guidelines: Su
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162 M.J. Feldman in patients withou
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164 M.J. Feldman The art of medicin
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166 M.J. Feldman important design g
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168 M.J. Feldman Incorrect or missi
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170 M.J. Feldman Fig. 12.4 GIDEON D
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172 M.J. Feldman system or etiology
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174 M.J. Feldman ED-12: “Practica
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176 M.J. Feldman Fig. 12.7 DXplain:
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178 M.J. Feldman For GIDEON: Rabies
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180 M.J. Feldman KB on infectious d
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182 M.J. Feldman 4. Johnson KB, Fel
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Chapter 13 Managing Pediatric Knowl
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13 Managing Pediatric Knowledge Res
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Chapter 14 Supporting Continuing Pe
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14 Supporting Continuing Pediatric
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14 Supporting Continuing Pediatric
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Chapter 15 Pediatric Care Coordinat
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15 Pediatric Care Coordination: The
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Chapter 16 Prioritizing Pediatric I
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16 Prioritizing Pediatric Investmen
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Chapter 17 Aligning Pediatric Ambul
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17 Aligning Pediatric Ambulatory Ne
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346 S.H. Mitchell et al. 27.2.1 Med
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348 S.H. Mitchell et al. context of
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350 S.H. Mitchell et al. 27.3.3.1 C
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352 S.H. Mitchell et al. challenges
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354 S.H. Mitchell et al. work round
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Chapter 28 Medication Administratio
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28 Medication Administration and In
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Chapter 29 Understanding and Preven
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29 Understanding and Preventing Err
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386 D.C. Stockwell and A.D. Slonim
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400 J.H. Schneider a number of prob
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402 J.H. Schneider on governance, u
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404 J.H. Schneider 31.6.1 Data Rele
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406 J.H. Schneider Understanding op
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410 J.H. Schneider Table 31.1 (cont
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412 J.H. Schneider References 1. Am
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Chapter 32 Developing Pediatric Dat
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32 Developing Pediatric Data Standa
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430 G.R. Kim and S.T. Rosenbloom Co
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436 G.R. Kim and S.T. Rosenbloom ab
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Chapter 34 Pediatric Research and I
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34 Pediatric Research and Informati
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Chapter 35 The Moving Picture of Pe
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35 The Moving Picture of Pediatric
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470 G.R. Kim and K.B. Johnson Cente
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472 G.R. Kim and K.B. Johnson 36.4
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Index A 2006 AAP recommendations on
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Index 477 psychological data, 45 se
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Index 479 High frequency flow inter
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Index 481 O Online Mendelian Inheri
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Index 483 Standards development org
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