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Pediatric Informatics: Computer Applications in Child Health (Health ...

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24 Information Management by Patients and Parents <strong>in</strong> <strong>Health</strong> and Disease 323<br />

24.3 Other ICT Tools and Enhancement of Patient Care<br />

24.3.1 Practice Websites<br />

Practice Websites are Internet-based collections of <strong>in</strong>formation that are related to a<br />

physician, an office or a practitioner group. Over time, Websites have become simpler<br />

and faster to create and ma<strong>in</strong>ta<strong>in</strong> and can be customized by practitioners to <strong>in</strong>clude<br />

practice <strong>in</strong>formation, current health news, and seasonal <strong>in</strong>formation for patients. To<br />

standardize this process, a consortium of stakeholders has been formed to provide<br />

electronic services, <strong>in</strong>clud<strong>in</strong>g onl<strong>in</strong>e tools to facilitate practitioner Website creation<br />

and ma<strong>in</strong>tenance. The Medem (MEDical EMpowerment) consortium, consist<strong>in</strong>g of<br />

more than 80,000 physicians, 47 specialty and state medical societies, a number of<br />

health systems, health plans, patient advocacy groups, professional liability carriers,<br />

provides a s<strong>in</strong>gle Web entry po<strong>in</strong>t for patients to their physician’s Website and onl<strong>in</strong>e<br />

patient <strong>in</strong>formation libraries. 14 Practice Websites are branded by practice name and<br />

the professional society to which the provider a member (Fig. 24.2).<br />

Practitioners often provide self-written or collected <strong>in</strong>formation for patients <strong>in</strong><br />

the form of pamphlets with frequently asked questions and answers about normal<br />

and abnormal conditions. Professional medical societies (such as the AAP) sell prepared<br />

materials for patients and families as a value-added resource for a practice 15<br />

to educate families and to market practices. Electronic versions of pamphlets have<br />

advantages of easy creation, updat<strong>in</strong>g and dissem<strong>in</strong>ation by e-mail, Web and fax,<br />

Fig. 24.2 Example of a pediatric practice Website (Vendor: Medem. Practice of Mark<br />

M. Simonian MD)

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