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Pediatric Informatics: Computer Applications in Child Health (Health ...

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21 Personal <strong>Health</strong> Records 299<br />

stored documents (or entered directly by the patient/user) is stored <strong>in</strong> a secure,<br />

encrypted database with privacy set by the user. In addition, the platform allows<br />

anonymous Internet searches for health topics as well as <strong>in</strong>terfaces to and from a<br />

number of health and communications devices and data sources, <strong>in</strong>clud<strong>in</strong>g fax,<br />

physiologic monitor<strong>in</strong>g tools, and laboratory and encounter reports.<br />

Still <strong>in</strong> development, a number of vendor organizations, <strong>in</strong>clud<strong>in</strong>g the American<br />

Heart Association, Johnson & Johnson LifeScan, NewYork-Presbyterian Hospital,<br />

the Mayo Cl<strong>in</strong>ic, and MedStar <strong>Health</strong> are partner<strong>in</strong>g with <strong>Health</strong>Vault to build<br />

applications and <strong>in</strong>frastructures that support and use PHR data. 35<br />

References<br />

1. Connect<strong>in</strong>g for <strong>Health</strong>. The personal health work<strong>in</strong>g group f<strong>in</strong>al report. Markle Foundation;<br />

2003. Available at: http://www.connect<strong>in</strong>gforhealth.org/resources/f<strong>in</strong>al_phwg_report1.pdf.<br />

Accessed December 21, 2008.<br />

2. Tang PC, Ash JS, Bates DW, Overhage JM, Sands DZ. Personal health records: def<strong>in</strong>itions,<br />

benefits, and strategies for overcom<strong>in</strong>g barriers to adoption. J Am Med Inform Assoc.<br />

2006;13(2):121–126.<br />

3. <strong>Health</strong> Data Management. Draft PHR Standard Model Approved; 2007. Available at: http://<br />

www.healthdatamanagement.com/news/standards_PHR25313-1.html. Accessed December<br />

20, 2008.<br />

4. Walton CG. Written testimony before the Secretary of HHS’s Public Advisory Body,<br />

the National Committee on Vital <strong>Health</strong> Statistics and the Subcommittee on Privacy and<br />

Confidentiality. January 23, 2007. Available at: http://www.ncvhs.hhs.gov/070123p1a.htm.<br />

Accessed December 21, 2008.<br />

5. Endsley S, Kibbe DC, L<strong>in</strong>ares A, Colorafi K. An <strong>in</strong>troduction to personal health records. Fam Pract<br />

Manage. May 2006;57–65.<br />

6. Centers for Medicare and Medicaid Services. Medicare Test<strong>in</strong>g Personal <strong>Health</strong> Records<br />

to <strong>Health</strong> Beneficiaries Better Manage Own <strong>Health</strong> Care. Press release; 2007. Available at:<br />

http://www.cms.hhs.gov/apps/media/press/release.asp?Counter=2217. Accessed November<br />

23, 2007.<br />

7. National Committee on Vital and <strong>Health</strong> Statistics. Personal <strong>Health</strong> Records and Personal<br />

<strong>Health</strong> Record Systems: A Report and Recommendations from the National Committee on<br />

Vital and <strong>Health</strong> Statistics. U.S. Department of <strong>Health</strong> and Human Services, Wash<strong>in</strong>gton,<br />

DC; 2006. Available at: http://www.ncvhs.hhs.gov/0602nhiirpt.pdf. Accessed November<br />

23, 2007.<br />

8. Esterhay RJ. Opportunities and Challenges with PHRs: Discussion. Panel on Opportunities<br />

and Challenges Fac<strong>in</strong>g PHI and PHR Initiatives, 2007 AMIA Spr<strong>in</strong>g Congress; 2007.<br />

9. Blechman EA. Testimony to American <strong>Health</strong> Information Community Consumer<br />

Empowerment Workgroup Hear<strong>in</strong>g on Personal <strong>Health</strong> Records; 2006. Available at: http://<br />

www.hhs.gov/healthit/ahic/materials/meet<strong>in</strong>g07/cemp/testimony/3-blechman.doc. Accessed<br />

November 23, 2007.<br />

10. Markle Foundation. Connect<strong>in</strong>g for <strong>Health</strong>. Connect<strong>in</strong>g Americans To Their <strong>Health</strong> Care:<br />

A Common Framework for Networked Personal <strong>Health</strong> Information; 2006. Available at:<br />

http://www.connect<strong>in</strong>gforhealth.org/commonframework/docs/P9_NetworkedPHRs.pdf.<br />

Accessed November 23, 2007.<br />

11. The <strong>Child</strong>ren’s Hospital <strong>Informatics</strong> Program. Indivo<strong>Health</strong> Boston, MA. Available at: http://<br />

www.<strong>in</strong>divohealth.org. Accessed December 21, 2008.

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